Re: Absent seizures....or something else!

[Guest guest]

The video is best thing. They should do an EEG but they often show

nothing unless one is actually happening at the time. You may need

telemetry which is putting on EEG stuff for maybe 24 hours, in hospital,

and then doing long scans and video pictures. Even this showed nothing

for a friend's child. A sleep EEG is good too.

Sally

ru345mins wrote:

>

> A question to parents of kids with absent seizures or not if they

> have the same as my boy.

>

> Just before 3yrs old my son started to ...go into a catertonic freeze

> for a few seconds. I was told by Paed this is more than

> likely 'zoning out' but he never saw them.

>

> He will be doing anything and then freeze, his face goes into a blank

> stare and looks more serious usually mouth open...pupils are wide

> (but not sure this is from not blinking) then returns to normal size

> after 30seconds-1 minute after episode.

> He does not drop what he has in his hand but his hand will go down

> to 'resting' level. This last from 3 seconds to 8 seconds. I did

> start recording them and he started CFGF diet which they dramatically

> reduced to 1-4 a week. I think the casein is a factor as he has had

> occassional slpi and these episodes? return within 10 days....usually

> 7-10 days after casein.

>

> He does not respond to his name and then on thrid attempt of calling

> him he has a high pitch scream and comes out of them....their is no

> time factor involved but I think something to do with 1-1.5 hrs after

> a meal has ?????something to do with it also. These come in clusters

> was few times a day for few days then 2-5 days with no episodes. Now

> 1 a day then 5-7 days without any.

>

> It could be anywhere they happen!

>

> Any thoughts/experiences similar that you could share....will be

> presenting Paed with 3 months worth of 'episodes' recorded on

> behaviour charts. I am hoping (praying) he just daydreams. I will

> hopefully get eeg for him at some point.

>

> Sorry so long but wanted to explain them in as much detail for

> feedback....thanks.

>

>

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[Guest guest]

Our boy had these (similar) prior to age 3 and a half and up to age

4. None so far since then, that i know of.

We thought it was something we could do anything about, especiallly

considering what the alternative was, according to our idiot paed who

wanted eeg's etc (my boy would NEVER have stood for this) followed by

potential drugs!!!!

I think there was something going on with the development of his

brain but have no idea what it was, too much input? too much output?

I will never know, just glad they stopped.

what they looked like:

he would be running round, then suddenly stop, stare out the window

or the wall and no amount of calling him would make him respond. I

even did the hands in front of his face trick, and that did not work,

no eye movement, nothing.

I vaguely remember doing this when I was a child, in fact I dropped

to the floor once when i was about six, i never knew why.

but i am ok now.

I dont know, what i read is that so many children have

these " episodes " and there is no guarantee that an eeg or any other

test is going to help/pick them up and then even if they do, what is

the course of action??

>

> A question to parents of kids with absent seizures or not if they

> have the same as my boy.

>

> Just before 3yrs old my son started to ...go into a catertonic

freeze

> for a few seconds. I was told by Paed this is more than

> likely 'zoning out' but he never saw them.

>

> He will be doing anything and then freeze, his face goes into a

blank

> stare and looks more serious usually mouth open...pupils are wide

> (but not sure this is from not blinking) then returns to normal

size

> after 30seconds-1 minute after episode.

> He does not drop what he has in his hand but his hand will go down

> to 'resting' level. This last from 3 seconds to 8 seconds. I did

> start recording them and he started CFGF diet which they

dramatically

> reduced to 1-4 a week. I think the casein is a factor as he has had

> occassional slpi and these episodes? return within 10

days....usually

> 7-10 days after casein.

>

> He does not respond to his name and then on thrid attempt of

calling

> him he has a high pitch scream and comes out of them....their is no

> time factor involved but I think something to do with 1-1.5 hrs

after

> a meal has ?????something to do with it also. These come in

clusters

> was few times a day for few days then 2-5 days with no episodes.

Now

> 1 a day then 5-7 days without any.

>

> It could be anywhere they happen!

>

> Any thoughts/experiences similar that you could share....will be

> presenting Paed with 3 months worth of 'episodes' recorded on

> behaviour charts. I am hoping (praying) he just daydreams. I will

> hopefully get eeg for him at some point.

>

> Sorry so long but wanted to explain them in as much detail for

> feedback....thanks.

>

[Guest guest]

I agree with Sally an EEG might be a good idea and probably to get

one done quite soon. My son had a sleep induced EEG mainly to check

for Llandau Kleffner which is a condition quite similar to Autism.

Usually the absent seizures happen during sleeping with this

condition. I think that any seizures are worth checking out with the

docs anyway.

Kenny

> A question to parents of kids with absent seizures or not if they

> have the same as my boy.

>

> Just before 3yrs old my son started to ...go into a catertonic

freeze

> for a few seconds. I was told by Paed this is more than

> likely 'zoning out' but he never saw them.

>

> He will be doing anything and then freeze, his face goes into a

blank

> stare and looks more serious usually mouth open...pupils are wide

> (but not sure this is from not blinking) then returns to normal

size

> after 30seconds-1 minute after episode.

> He does not drop what he has in his hand but his hand will go down

> to 'resting' level. This last from 3 seconds to 8 seconds. I did

> start recording them and he started CFGF diet which they

dramatically

> reduced to 1-4 a week. I think the casein is a factor as he has had

> occassional slpi and these episodes? return within 10

days....usually

> 7-10 days after casein.

>

> He does not respond to his name and then on thrid attempt of

calling

> him he has a high pitch scream and comes out of them....their is no

> time factor involved but I think something to do with 1-1.5 hrs

after

> a meal has ?????something to do with it also. These come in

clusters

> was few times a day for few days then 2-5 days with no episodes.

Now

> 1 a day then 5-7 days without any.

>

> It could be anywhere they happen!

>

> Any thoughts/experiences similar that you could share....will be

> presenting Paed with 3 months worth of 'episodes' recorded on

> behaviour charts. I am hoping (praying) he just daydreams. I will

> hopefully get eeg for him at some point.

>

> Sorry so long but wanted to explain them in as much detail for

> feedback....thanks.

>