Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Like all parents I want the most for my son, I realized long ago that getting the most for him is not an easy task.. it involves alot of work and continual updates from his school, his mom, and many others. As well I found back in 1996 that I had to speak.. I just couldn't keep my mouth shut..and that's when I first was registered as a Lobbyist in 1996.. It changed alot..by the end of the year I was in D.C. and spent the next several years doing IEP's/Due Process hearings, talking on the Hill, and finally in 2002 I ended up in Hawai'i over the felix consent decree.. I don't think many could blame me for staying here as a place to keep mellow while I still continue to do the same Advocacy by teleconference and Lobby in effect by teleconference.. but now I'm taking the approach with Lawmakers as a 'Concerned Father' ...it's seeming to carry much more weight with the transition team http://officeofadvocacy.spaces.live.com/ and those that are looking for the best ideas in America to adopt as policy..hence the Change.org site.. but not to worry.. I was told today that they are searching key words and already looking at some of the Ideas they didn't have. What's somewhat hard to understand is that they DO NOT have a pending request for a Presidential ACT on this.. and this needs some action in the 'first 100 days' ..we were promised alot..and must remember that. As parents we need to do our part ..whatever that part is. I've put together 100 of the best and 'allowed' emails from parents regarding their situation in their school.. they are quite BAD looking and will accompany this Legislative Request to President Obama. We have over 560,000 children in public schools that have the diagnosis of Autism or Autism Spectrum Disorder. We have a very competent number of parents..especially those on the lists..so please take a few minutes and go to http://www.change.org/idea/view/accept_and_sign_the_autism_reform_act_of_2009 When you get there remember to sign in or register really quickly and then go to the Autism Reform Act of 2009 and vote for it by clicking on the little 'vote' under the number....WE ARE 52 Votes from 3rd which advances us in the final round..close to 600 parents have voted I believe.. but still..out of 560,000... we need to not only vote as a community we need to spread the word.. If you think you have voted double check and make sure you did.. if you did it will say 'voted. . This is important as it includes input from parents across yahoo groups which means across the nation. All input was/is being used to draft the Actual Final Version of the ACT..but we still have parental input coming in.. if you want to share..please do so offlist to the yahoo email address up on top. Thank you all very much for your patience as I know some of you have seen this a bunch..but we need to untie..thats a big problem we have nationally..Lets do it ! E. , The Office of Advocacy for Autistic Children Quote Link to comment Share on other sites More sharing options...
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