Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 -Hi Sally, I think 180 families are following this treatment.They had information from the Russia,translated in Turkish and purchased the medicine on the internet.Leading parent expresses the progress of her 7 year old daughter,some of the others are also expressing positive view about the treatment.They look like very well informed about this intervention. Personally I object drugs,medications as an intervention for my son's problems.I may use it if it is absolutely necessary.The medication should be well researched for me to use.I don't know if there is enough evidence using this for treating children with autism.These parents are saying the medication is widely used in Germany but I don't know. Did you send an attachmentwith your e-mail?Could you send it to my address please if you have any articles related with cerebrolysin? Thanks alot. All the best nevin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 I'll answer you more fully this evening -- sorry I'm rushing around today. If you put cerebrolysin autism into PubMed you will get 3 references. If you put Dr Dealler into PubMed you will get his publications. Steve is was one of the most senior doctors warning that Mad Cow Disease might pass to people -- most but not all of his publications relate to BSE. He also devised a treatment for vCJD -- doctors refused to use it and the patient had to go to the High Court to order them to do so. It worked and is now recognised as the only treatment. If you click this link you will find the autism/science site that he has constructed. He was going to put cerebrolysin onto it when someone asked a few weeks ago but he has been very busy since then so he may not have got round to it. http://www.science-autism.org/ He was using casual language because he was writing to me (his sister) about his niece (my daughter). Put cerebrolysin into Google and you will find out what it is ie brain peptides (from animals I assume). What he is saying is that putting bits of other mammals' brain proteins into your blood stream by IV may not be a good idea long term because you may start to get an auto immune reaction to your own brain. It's a warning nothing more. There's no science either way that I can find because no one has been doing it long term. The dangers plus the mode of action (IV) are probably why it has never taken off in the West. It may yet do so. The latest Russian research is quite recent Trace all those today. If you've got any questions I'll try and answer them and if I can't I'll pass them on to him. Sally bornlivelife2 wrote: > > Just asking you to clarify the credibility or your information thats > all otherwise how can we act on it > > -- In Autism-Biomedical-Europe > <mailto:Autism-Biomedical-Europe%40yahoogroups.com>, Eva family > wrote: > > > > You are right. Do as you please > > Sally > > > > bornlivelife2 wrote: > > > > > > Sorry but i dont think a real doctor would say " and God knows what > > > would happen " it is not professional > > > > > > And why has he just researched " from the standard sources " rather > > > than from the whole pool of research knowledge that is available? > > > > > > EWven if he is a doctor, this is a massively specialized field > and he > > > would have to be proven to be an authority in this area to > comment as > > > such. > > > > > > Please provide more detail and proof of his credentials - this > > > medcine is widely used in Soviet and ex Soviet countries and they > are > > > regarded as some of the best pools of doctprs in the world. > > > > > > Standard sources of medicine in United Kingdom simply say there is > > > nothing that can be done to help autism, hence of course are far > > > more " head in sand " than organisations that have proven results of > > > curing it > > > > > > > > > > > > > > The reply below is from my brother who is a doctor. He has > > > researched > > > > autism quite thoroughly from standard sources. You might like to > > > > consider his warning in the second sentence > > > > Sally > > > > > > > > Dr Dealler writes: > > > > > > > > Cerebrolysin is in fact a mixture of peptides derived from brain > > > that > > > > has been broken down with enzymes. As such if given for too long > > > it is > > > > likely to become antigenic and antibodies and immunity formed > > > against it > > > > (and then God knows what will happen). The injections have > > > potential > > > > problems (it cannot be given orally) but it was tried in > Alzheimer's > > > > disease and other damage conditions (stroke etc) for relatively > > > short > > > > periods. The E European paper that you suggest is interesting > and > > > they > > > > have obviously tried hard to see the effect...and seem to have > found > > > > one. I will put it on the web site but dont be surprised if it > > > does not > > > > take off in any way because of the extreme difficulty in giving > the > > > drug > > > > and long term problems. > > > > STeve > > > > > > > > [An effect of long-term cerebrolysin therapy in > combination > > > > with neuroleptics on behavioral and cognitive disturbances in > > > endogenous > > > > childhood autism] > > > > > > > > > > > > http://www.websciences.org/cftemplate/NAPS/archives/indiv.cfm? > <http://www.websciences.org/cftemplate/NAPS/archives/indiv.cfm?> > > > <http://www.websciences.org/cftemplate/NAPS/archives/indiv.cfm? > <http://www.websciences.org/cftemplate/NAPS/archives/indiv.cfm?>> > > > ID=20061309 > > > > No virus found in this incoming message. > > > > Checked by AVG - http://www.avg.com <http://www.avg.com> > <http://www.avg.com <http://www.avg.com>> > > > > Version: 8.0.138 / Virus Database: 270.6.4/1617 - Release Date: > > > 17/08/2008 > > > > 12:58 > > > > > > > > > > > > > > > > > > > > > > > > ********************************************************************** > > > > ********************************************************************** > > > *** > > > > > > > > The information contained in this email may be subject to public > > > > disclosure under the Freedom of Information (Scotland) Act 2002. > > > > > > > > This email is intended only for the addressee named above and > the > > > > contents should not be disclosed to any other person or copies > > > > taken. 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