Guest guest Posted September 6, 1999 Report Share Posted September 6, 1999 , Did you know I also set up a Megalencephaly (same as Macrocephaly) List that you're also welcome to join, if you want. There is also a Hemimegalencephaly Support Group run by Sue Cowper. Her web site is: http://users.mcmedia.com.au/~shooper Hemimegalencephaly means half the brain is large. Lots of these children also have large body parts, etc. Just thought I'd let you know, in case you're interested. Savage > -----Original Message----- > > > also has macrocephaly so she > looks even bigger. It's one of the things people notice right away about > her and I try not to let it get to me but sometimes is does. Hearing " How > old is she? She's huge " every time we go out in public is a bit tiring. > > ( - 13 mos. w/PMG) > Northern California > > > Quote Link to comment Share on other sites More sharing options...
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