Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Hello Everyone! I'm in Florida, but figured out how to tap into this site. We spent the last three days at Disney World and Kasey just loved it! She was such a trooper. (It is amazing how much attention Kasey generates. People are drawn to her in such a positive way. Have others experienced this with their kids?) Anyway, I want to clarify some conflicting info on seizures and PMG. When I took Kasey to see Dobyns, Dr. Guerrini was visiting him. It was right after the Dallas conference. So, Dr. Guerrini was able to also see Kasey! Since he is the real expert on PMG, Dobyns deferred to him quite a bit. While he was sometimes difficult to understand, he was very good at answering specific questions. One that I had was the difficulty of controlling Kasey's seizures. Our neuro had told us that it would be difficult. Guerrini immeditately told us this was NOT the case. He emphatically explained that PMG-related seizures are much easier to control than Liss-related. Dobyns agreed with his statement. Kasey has been seizure free since going on Depakene in July, so I have to agree with both of them. I hope this clears up the confusion since it came from the two experts! Hope all is well with everyone. Deanna and Kasey in sunny Florida with sister, Kayla! Quote Link to comment Share on other sites More sharing options...
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