Guest guest Posted October 17, 1999 Report Share Posted October 17, 1999 Hey, guys - someone's finally taking me seriously. Everyone reading this - remember, this can apply to your loved ones also....Please spread the word ..... - mommy of my everloving Crystal Aquielle BPP - a form of CBPS. Dear I believe that children are a gift from God, as stated in the Holy Bible. We have no right to end something that God gives. I know I have not been in the situation of rape or incest, but I believe that God made that life that results in many instances and we should cherish it and learn the lessons He would have us learn. Any child is a gift from God. Whether determined to be developmentally disabled or Down's Syndrome or spina bifida or too many in the womb due to fertility therapy, God made that child, or those children! What God made is good and not to be treated as garbage or useless and unworthy of life. As I have worked with developmentally disabled persons and watched my coworkers with these persons, I have become aware of how learning capable they are, when even the parents think they can't be taught. No, I definitely disagree with Mr. Singer. Life is not ours to give or take, but God makes that decision and we should not interfere. May God bless you and your very special, God-given child. Sincerely, Peggy On 16 Oct 99 14:07:51 PDT Advocates for Full Community Inclusion writes: > To all AFCI list members, > > I'm forwarding the following e-mail I received yesterday from Chris > Wickman, a > member of UPPS (United Parents Protesting Singer). Please feel free > to send a > response to her at . I will be sending my own > response this > weekend, and will distribute it to all of you at that time. > > ----Original Message Follows---- > Crsmoogie@... wrote: > > I belong to a group of parents who are VERY concerned with > Singer's > views. ( United Parents Protesting Singer ) The article posted to > the Trenton > Times - written by Ron Southwick, is an example of how the media is > handling > this situation. They have NO IDEA what's going on. > > I'm the mother of a disabled baby. She's 18 mos. old & the joy of > our lives. > If Mr. Singer's views become public policy, life will be very > different for > kids like Crystal. She was born with a brain abnormality that didn't > become > apparent until she was 4 mos. old. She presented with Infantile > Spasms (a form > of Childhood Epilepsy) . By 6 mos old she was placed on ACTH (an > intra-muscular injected steroid) which eradicated her seizures > within a week. > She has been seizure free ever since (thank God!!). > > She is only mildy developmentally delayed, thanks to the services of > Early > Intervention. That's a gov't program that helps the disabled child > try to > catch up to its peers.Thanks to her Occupational & Physical > Therapists, she > went from not being able to turn over at 9 mos., to walking at 17 > mos. old. > She's doing things that the doctor's cannot explain. Her therapists > are > thrilled with her progress. If Singer's opinions become public > policy, will > programs like this still exist?? Will kids like Crystal be left to > struggle > because their parents chose to let them live?? Will babies with > seizure > disorders be allowed to die?? (quite often the seizures are very > hard to > control & many different medications are tried with limited success) > These are > very hard questions, & I really don't believe Mr.Singer has the > right to > determine who is & isn't a person... > > If Crystal's abnormality would've been discovered inutero or soon > after, > things could've gone very differently. I might have been urged to > abort her. > > In medical journals, her diagnosis has a very poor prognosis. If > doctors > would've used those articles to determine her quality of life (as > Mr. Singer > proposes) we would most likely have been urged to terminate her > life. This is > ludicrous. How can someone determine whether someone lives or dies > by such > criteria??? Noone is perfect, least of all doctors!!! They are NOT > God, & > therefore cannot tell whether someone will, or will not have a > fullfilling > life. Allowing Doctors & parents 28 days (post-partum) to make such > a decision > is monstrous. > > I know that material representing our concerns has already been sent > out to > you. Could you please let me know where you stand concerning this??? > > I'm attaching a pic of Crystal Aquielle, so you can see who all the > fuss is > about. > > Sincerely, > > Wickman - mom of Crystal Aquielle - Bilateral Perisylvian > Polymicrogyria ( a form of Congenital Bilateral Perisylvian > Syndrome) & cute > as a button... > > > --------------------------------------------- > > Attachment: Crys G > > MIME Type: text/plain > > --------------------------------------------- > ----End of Message---- > Dave Reynolds > Spangle, Washington USA > AFCI@... > Advocates for Full Community Inclusion > > ____________________________________________________________________ > Get free email and a permanent address at > http://www.netaddress.com/?N=1 ___________________________________________________________________ Get the Internet just the way you want it. Free software, free e-mail, and free Internet access for a month! Try Juno Web: http://dl.www.juno.com/dynoget/tagj. 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