Re: One Down, 47 To Go

[Guest guest]

Yep, I asked Sharon if she wanted me to make a movie of her experience

regardless of how bad she felt, and she said yes. I have a digitsal camera and

people didn't realize that it was filming video, so no one hasseled me in the

hospital, because you know it is usually a no no in the hospital to have a

camera. People hear opf a law and get stupid. I actually had a guard tell me

that because of HIPPA, I could nt film in the hospital. I asked " what a bout all

the husbands filming vaginal births upstairs?? You're going to make a stink over

a few clips of my wife??? " She lost that argument. Hehe. Good luck and hang in

there, Penny. Love. B

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One Down, 47 To Go

Hi all,

Thank you all for your encouraging words and support. Bobby, that is

a good idea to film it all. I didn't even think of that. Maybe I

will do some of that.

Lori gave me my first shot in the back of my arm tonight. So far, so

good. Nothing has happened yet. It's only been a couple of hours,

though. That makes it so much easier for her to give me the shot

especially for the first time. Next week she will do it again, and

then after that, I will start doing it myself, but she will still be

here with me. She thought that would be easier for me since I'm

mostly thinking about the side effects right now.

We had a ball taking a hundred pictures of ourselves, and watching

the video of her jumping out of the plane. That was so cool! It

looked like so much fun! She left the DVD with me, so I think I will

copy it onto my computer, and maybe put it on my Myspace page.

Everyone take care of yourselves.

Penny

[Guest guest]

You touched a sore spot with the HIPPA and me. I've had HIPPA training because I

deal with medical information and I hate the fact now that the Medical Community

is so scared of the law that they hide behind it. A security guard, doubtfully,

fully understands the law. HIPPA is to protect the disclosure of health

information to persons who otherwise should not have have access to it without

consent of the patient even in pursuant of their official duties. This can

include the family to a certain extent. I have even had to clarify HIPPA law to

medical staff when they wouldn't let me see my wifes medical records but would

allow me to give a DNR without consent. Go figure!

And if shooting a video is against HIPPA law then so are all the security

cameras that film 24/7 in hospitals without patients consent.

Ok, I'll calm down now. Sorry. Bad experience with all that HIPPA crap. I guess

next time you can make up a release form, have your wife sign it and bring that

with you. Wonder what they would do then? :-)

MaC

By filming your wife, you are not disclosing her personal health information

without her consent.

robwalkingeagle@... wrote: Yep, I asked Sharon

if she wanted me to make a movie of her experience regardless of how bad she

felt, and she said yes. I have a digitsal camera and people didn't realize that

it was filming video, so no one hasseled me in the hospital, because you know it

is usually a no no in the hospital to have a camera. People hear opf a law and

get stupid. I actually had a guard tell me that because of HIPPA, I could nt

film in the hospital. I asked " what a bout all the husbands filming vaginal

births upstairs?? You're going to make a stink over a few clips of my wife??? "

She lost that argument. Hehe. Good luck and hang in there, Penny. Love. B

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[Guest guest]

we are here for you...as you are for us...love sandra

________________________________

To: livercirrhosissupport

Sent: Tuesday, December 2, 2008 10:50:31 PM

Subject: One Down, 47 To Go

Hi all,

Thank you all for your encouraging words and support. Bobby, that is

a good idea to film it all. I didn't even think of that. Maybe I

will do some of that.

Lori gave me my first shot in the back of my arm tonight. So far, so

good. Nothing has happened yet. It's only been a couple of hours,

though. That makes it so much easier for her to give me the shot

especially for the first time. Next week she will do it again, and

then after that, I will start doing it myself, but she will still be

here with me. She thought that would be easier for me since I'm

mostly thinking about the side effects right now.

We had a ball taking a hundred pictures of ourselves, and watching

the video of her jumping out of the plane. That was so cool! It

looked like so much fun! She left the DVD with me, so I think I will

copy it onto my computer, and maybe put it on my Myspace page.

Everyone take care of yourselves.

Penny

[Guest guest]

Congratulations, Penny!  I'm so happy it went well for you.  Continuing to pray

that all continues to go smoothly.

Hugs.......

Diane

________________________________

To: livercirrhosissupport

Sent: Tuesday, December 2, 2008 9:50:31 PM

Subject: One Down, 47 To Go

Hi all,

Thank you all for your encouraging words and support. Bobby, that is

a good idea to film it all. I didn't even think of that. Maybe I

will do some of that.

Lori gave me my first shot in the back of my arm tonight. So far, so

good. Nothing has happened yet. It's only been a couple of hours,

though. That makes it so much easier for her to give me the shot

especially for the first time. Next week she will do it again, and

then after that, I will start doing it myself, but she will still be

here with me. She thought that would be easier for me since I'm

mostly thinking about the side effects right now.

We had a ball taking a hundred pictures of ourselves, and watching

the video of her jumping out of the plane. That was so cool! It

looked like so much fun! She left the DVD with me, so I think I will

copy it onto my computer, and maybe put it on my Myspace page.

Everyone take care of yourselves.

Penny

[Guest guest]

I had an intake person at the emergency room tell me that my husband and I were

not married, because we don't have a marriage license.  It PISSED me off beyond

belief and I went ballistic!  I thanked her for informing me and set out to

figure out how to get the paperwork with him in the hospital.  It turns out that

Proxy marriage isn't recognized, but common-law marriage IS; therefore, she was

wrong and put me through two days of pure frustration and panic that I did not

need.  Even though I am the primary on BC/BS and pay for my husbands doctors,

etc., I had no right to know what his test results, etc. were, so here we are. 

This world can really be cruel. 

Yep, I asked Sharon if she wanted me to make a

movie of her experience regardless of how bad she felt, and she said yes. I have

a digitsal camera and people didn't realize that it was filming video, so no one

hasseled me in the hospital, because you know it is usually a no no in the

hospital to have a camera. People hear opf a law and get stupid. I actually had

a guard tell me that because of HIPPA, I could nt film in the hospital. I

asked " what a bout all the husbands filming vaginal births upstairs?? You're

going to make a stink over a few clips of my wife??? " She lost that argument.

Hehe. Good luck and hang in there, Penny. Love. B

Sent via BlackBerry from T-Mobile