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Welcome Beth & Shaw

Could you tell us a bit about Seth? How long have you had the PMG

diagnosis? Does he have seizures? Do you have any pressing questions?

Kim Raub (mother of Teddy - 2 1/2 w/diffuse PMG)

He uses sign language, runs around, rides a big wheel,

has trouble chewing & swallowing solid foods,

has 1 identical twin (without PMG), 2 big brothers

and a busy Daddy. We live in CT.

Re: File: Request.txt

Hello,

My name is Beth. My husbands name is Shaw and we have two boys. Our

youngest Seth has 'Perisylvian Polymicrogyria' and he will be turning 1 year

old on the 26th of this month. Our oldest boy Skylar is 8yrs old.

I was referred through North Bay Regional Center who in turn referred me

Jill Fornabio and Tim Elias. I'm looking forward to joining the group. As

you may already know there is very little information that we have found so

far. We hope for Seth to have 'mandibulardistraction' surgery this summer.

Thank you for your time and consideration.

Beth and Shaw Tanny

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