Re: first of all,thank you all (MELD info & Jerry)

[Guest guest]

Sorry I've been gone so long. I hope everyone had a great

Thanksgiving. My daughter and I went on a nature hike and a lady

passing by on a horse offered her a horseback ride. She lit up like a

Christmas tree. She loves horses! So on Thanskgiving my daughter got

to ride her first horse. It was awesome.

About MELD, I've included a link from the UNOS site that goes over it

much clearer. It's ina PDF file and I also put a copy in the files

section for future reference. But, you can be listed with a MELD score

of 6 and greater. They normally don't transplant until a score of 15.

There are exceptions. For example if there are no candidates for the

liver at 15 or higher, they can then go down to 14 or below until it's

matched.

Jerry,

My advice is to see if you can be referred to another doctor who is

more proactive with your health care. You may have different avenues

to do this. One, is to just ask your doctor that you would like a

referral for a second opinion. I would also ask to see the patients

bill of rights for that hospital. It should go over that.

Write down what questions you are asking and what she's not answering.

You can bring this to the attention of the hospitals patient advocate.

Your questions should be clearly answered. This should also be in the

patients bill of rights.

MaC

>

> I know that the criteria are different for every transplant center,

but the lowest MELD I have seen that would allow you on the list is a

15.  However, there is quite possibly one I don't know about as we

don't have experience with transplant centers, other research.  I'm

sure there are others here who can give you a better answer.

>

> If you feel this doctor is not managing your healthcare well, fire

him/her and get another doctor.  It is vital that you have a good

relationship with your doctor.

>

> I pray you continue to improve and that this doctor is right and you

never need the transplant.  God bless!

>

> Hugs............

> Diane

>

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Friday, November 28, 2008 5:14:47 PM

> Subject: first of all,thank you all

>

>

> hello. o.k. i had another dr. appointment wed. and most of my scores

> from my blood draw were good,but i have noticed that my dr.(whom i've

> been seeing since i had my liver failure 1 1/2 years ago)i ask her some

> very basic questions about my health and liver failure and she looks at

> me with a blank look.isn't it sort of a doctors responsibility when

> he/she takes your case that he/she atleast take the time to study the

> patient and learn about the illness he has.i frequently have to ask for

> certain tests i know i probably should have gotten already. i know it

> is my

> illness but the doctor is supposed to know a little right? i am still

> affected from my failure and working so hard to be somewhat normal

> again. but like i have said before,i am still trying to remember what

> happened.well. ..i asked this. am i currently on a transplant list or

> should i be. and she kind of smirked and said that i don't need to be

> and i probably never have.is this right? my meld score is down to a 9

>

>

>

>

[Guest guest]

It would help if I posted the link. :-)

http://www.unos.org/SharedContentDocuments/MELD_PELD.pdf

MaC

>

> Sorry I've been gone so long. I hope everyone had a great

> Thanksgiving. My daughter and I went on a nature hike and a lady

> passing by on a horse offered her a horseback ride. She lit up like a

> Christmas tree. She loves horses! So on Thanskgiving my daughter got

> to ride her first horse. It was awesome.

>

> About MELD, I've included a link from the UNOS site that goes over it

> much clearer. It's ina PDF file and I also put a copy in the files

> section for future reference. But, you can be listed with a MELD score

> of 6 and greater. They normally don't transplant until a score of 15.

> There are exceptions. For example if there are no candidates for the

> liver at 15 or higher, they can then go down to 14 or below until it's

> matched.

>

> Jerry,

> My advice is to see if you can be referred to another doctor who is

> more proactive with your health care. You may have different avenues

> to do this. One, is to just ask your doctor that you would like a

> referral for a second opinion. I would also ask to see the patients

> bill of rights for that hospital. It should go over that.

>

> Write down what questions you are asking and what she's not answering.

> You can bring this to the attention of the hospitals patient advocate.

> Your questions should be clearly answered. This should also be in the

> patients bill of rights.

>

> MaC

>

>