Re: wendy

[Guest guest]

FYI   I was told that I could not have a transplant without a caregiver and the

promise of help from my family.......I so luckly that I heve them.

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

Subject: wendy

To: livercirrhosissupport

Date: Wednesday, December 10, 2008, 4:52 PM

Hello everyone my step children took over my p.c,so I havent posted

for a minute.As I lay awake with my everynight insomnia,I think of

all sorts of things to ask certain people and then I get mixed up on

who has dealt with " this & that " and then forget details of " who is

who " ...first off the list,Bobby,somehow I had the impresion you to

were waiting on a transplant.I was reading your posts on pain meds.I

have been wanting to maybe ask some personal questions about

Ardis,you told me that she wasnt recomended for a transplant from the

team,because if I can recall they said she needed a better support

system? hmm... maybe I'm wrong,but it has had me thinking overtime if

thats possible.I havent been to the Cleveland Clinic yet,they are

dragging there feet,Abijann told me to light a fire under there ass's

not in those particular words,but I figure i would rather wait till

after the holidays anyways there is a story in A.A. about a

transplant patient,she said she had to see a psychiatrist first

also,O.K.Now here is where the big bad story started..... Had a shrink,

(depressed alcoholic),was presribed anti-depressents (never worked

and have tried them all)had some blood work done ,found out i had

HepC,my infectious disease dr. told me i couldnt take the interfuron

because it could cause me to committ suicide-long story short,I quit

taking anti-depressents, and started drinking again on and off until

last May when I almost died.So now I'm going to my meetings,I have

found me another psychiatrist, and i am doing everything in my power

to be accepted but,now I'm worried about support,I have it but will

they agree???I am the busy body caregiver in this family.I have been

taking care of his fateher for 10 yrs of Alzheimers,my mom is on

oxygen (at her house)my dad has diabetes,my sister is 37 and still

with us with down syndrom,a baby sister 31 whom still suffers from a

crack addiction and just lost her baby 2 days ago,did I mention the

partrich in a pear tree LOL!Ive got to much here going on to be able

to do that too.As far as the transplant team I want to be as honest

with them as possible and i know everyone will survive if i do get a

transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

was in I.C.u. in May and it took close to 4 months before I was of

any help to anyone,hey! and noone died:)Oh and last but not least,I

too have genotype 1a HepC I didnt know that it was the hardest to

treat,wich leads me to a new slew of questions... .would they try

treatment first? I heard it can ruin my new liver quicker than this

one.I'm so glad to have all of you,have no fear wendy will

appear,with new questions. Love all of you! HI ELSIE:) god

bless,

[Guest guest]

It doesn't make sense they would use that reason for Ardis with all the

support she got for Bobby and Sharon. How much more can you give? Jan H

> FYI I was told that I could not have a transplant without a caregiver

> and the promise of help from my family.......I so luckly that I heve them.

>

> Lyncia

>

> In life family and friends take us on all kinds of adventures, God helps us

> choose our path....Enjoy your journey!

>

>

>

> From: italybell69 <italybell69@... <italybell69%40yahoo.com>>

> Subject: wendy

> To:

livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> Date: Wednesday, December 10, 2008, 4:52 PM

>

>

> Hello everyone my step children took over my p.c,so I havent posted

> for a minute.As I lay awake with my everynight insomnia,I think of

> all sorts of things to ask certain people and then I get mixed up on

> who has dealt with " this & that " and then forget details of " who is

> who " ...first off the list,Bobby,somehow I had the impresion you to

> were waiting on a transplant.I was reading your posts on pain meds.I

> have been wanting to maybe ask some personal questions about

> Ardis,you told me that she wasnt recomended for a transplant from the

> team,because if I can recall they said she needed a better support

> system? hmm... maybe I'm wrong,but it has had me thinking overtime if

> thats possible.I havent been to the Cleveland Clinic yet,they are

> dragging there feet,Abijann told me to light a fire under there ass's

> not in those particular words,but I figure i would rather wait till

> after the holidays anyways there is a story in A.A. about a

> transplant patient,she said she had to see a psychiatrist first

> also,O.K.Now here is where the big bad story started..... Had a shrink,

> (depressed alcoholic),was presribed anti-depressents (never worked

> and have tried them all)had some blood work done ,found out i had

> HepC,my infectious disease dr. told me i couldnt take the interfuron

> because it could cause me to committ suicide-long story short,I quit

> taking anti-depressents, and started drinking again on and off until

> last May when I almost died.So now I'm going to my meetings,I have

> found me another psychiatrist, and i am doing everything in my power

> to be accepted but,now I'm worried about support,I have it but will

> they agree???I am the busy body caregiver in this family.I have been

> taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> oxygen (at her house)my dad has diabetes,my sister is 37 and still

> with us with down syndrom,a baby sister 31 whom still suffers from a

> crack addiction and just lost her baby 2 days ago,did I mention the

> partrich in a pear tree LOL!Ive got to much here going on to be able

> to do that too.As far as the transplant team I want to be as honest

> with them as possible and i know everyone will survive if i do get a

> transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> was in I.C.u. in May and it took close to 4 months before I was of

> any help to anyone,hey! and noone died:)Oh and last but not least,I

> too have genotype 1a HepC I didnt know that it was the hardest to

> treat,wich leads me to a new slew of questions... .would they try

> treatment first? I heard it can ruin my new liver quicker than this

> one.I'm so glad to have all of you,have no fear wendy will

> appear,with new questions. Love all of you! HI ELSIE:) god

> bless,

>

>

[Guest guest]

Lyncia,have you had yours?Like I said,my family wont crumble and die without

me,but how much caregiving will I need?When I was bed ridden over the summer and

could barely walk Bob did well with his father and that is a very trying

experience that he wasnt really wasnt prepared for, (the patience is a virtue

motto)he did acquire a new found respect for me finding out first handed what

his dad can be like sometimes,and what all entails on taking care 24-7 of an

alzheimer patient,and he did wait on me hand and foot,he can work from home if

he needs to also wich is a blessing,so what exactly are they going to expect

from him at the transplant meetings,he is all worried and sometimes gets me in a

tissy,wanting to know what to say...Thanks,

From: italybell69 <italybell69@ yahoo.com>

Subject: wendy

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Wednesday, December 10, 2008, 4:52 PM

Hello everyone my step children took over my p.c,so I havent posted

for a minute.As I lay awake with my everynight insomnia,I think of

all sorts of things to ask certain people and then I get mixed up on

who has dealt with " this & that " and then forget details of " who is

who " ...first off the list,Bobby,somehow I had the impresion you to

were waiting on a transplant.I was reading your posts on pain meds.I

have been wanting to maybe ask some personal questions about

Ardis,you told me that she wasnt recomended for a transplant from the

team,because if I can recall they said she needed a better support

system? hmm... maybe I'm wrong,but it has had me thinking overtime if

thats possible.I havent been to the Cleveland Clinic yet,they are

dragging there feet,Abijann told me to light a fire under there ass's

not in those particular words,but I figure i would rather wait till

after the holidays anyways there is a story in A.A. about a

transplant patient,she said she had to see a psychiatrist first

also,O.K.Now here is where the big bad story started..... Had a shrink,

(depressed alcoholic),was presribed anti-depressents (never worked

and have tried them all)had some blood work done ,found out i had

HepC,my infectious disease dr. told me i couldnt take the interfuron

because it could cause me to committ suicide-long story short,I quit

taking anti-depressents, and started drinking again on and off until

last May when I almost died.So now I'm going to my meetings,I have

found me another psychiatrist, and i am doing everything in my power

to be accepted but,now I'm worried about support,I have it but will

they agree???I am the busy body caregiver in this family.I have been

taking care of his fateher for 10 yrs of Alzheimers,my mom is on

oxygen (at her house)my dad has diabetes,my sister is 37 and still

with us with down syndrom,a baby sister 31 whom still suffers from a

crack addiction and just lost her baby 2 days ago,did I mention the

partrich in a pear tree LOL!Ive got to much here going on to be able

to do that too.As far as the transplant team I want to be as honest

with them as possible and i know everyone will survive if i do get a

transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

was in I.C.u. in May and it took close to 4 months before I was of

any help to anyone,hey! and noone died:)Oh and last but not least,I

too have genotype 1a HepC I didnt know that it was the hardest to

treat,wich leads me to a new slew of questions... .would they try

treatment first? I heard it can ruin my new liver quicker than this

one.I'm so glad to have all of you,have no fear wendy will

appear,with new questions. Love all of you! HI ELSIE:) god

bless,

[Guest guest]

That was what I was thinking also,I cant remember what exactly he told me.

>

> From: italybell69 <italybell69@ yahoo.com <italybell69% 40yahoo.com> >

> Subject: wendy

> To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp

ort%40yahoogroup s.com>

> Date: Wednesday, December 10, 2008, 4:52 PM

>

>

> Hello everyone my step children took over my p.c,so I havent posted

> for a minute.As I lay awake with my everynight insomnia,I think of

> all sorts of things to ask certain people and then I get mixed up on

> who has dealt with " this & that " and then forget details of " who is

> who " ...first off the list,Bobby,somehow I had the impresion you to

> were waiting on a transplant.I was reading your posts on pain meds.I

> have been wanting to maybe ask some personal questions about

> Ardis,you told me that she wasnt recomended for a transplant from the

> team,because if I can recall they said she needed a better support

> system? hmm... maybe I'm wrong,but it has had me thinking overtime if

> thats possible.I havent been to the Cleveland Clinic yet,they are

> dragging there feet,Abijann told me to light a fire under there ass's

> not in those particular words,but I figure i would rather wait till

> after the holidays anyways there is a story in A.A. about a

> transplant patient,she said she had to see a psychiatrist first

> also,O.K.Now here is where the big bad story started..... Had a shrink,

> (depressed alcoholic),was presribed anti-depressents (never worked

> and have tried them all)had some blood work done ,found out i had

> HepC,my infectious disease dr. told me i couldnt take the interfuron

> because it could cause me to committ suicide-long story short,I quit

> taking anti-depressents, and started drinking again on and off until

> last May when I almost died.So now I'm going to my meetings,I have

> found me another psychiatrist, and i am doing everything in my power

> to be accepted but,now I'm worried about support,I have it but will

> they agree???I am the busy body caregiver in this family.I have been

> taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> oxygen (at her house)my dad has diabetes,my sister is 37 and still

> with us with down syndrom,a baby sister 31 whom still suffers from a

> crack addiction and just lost her baby 2 days ago,did I mention the

> partrich in a pear tree LOL!Ive got to much here going on to be able

> to do that too.As far as the transplant team I want to be as honest

> with them as possible and i know everyone will survive if i do get a

> transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> was in I.C.u. in May and it took close to 4 months before I was of

> any help to anyone,hey! and noone died:)Oh and last but not least,I

> too have genotype 1a HepC I didnt know that it was the hardest to

> treat,wich leads me to a new slew of questions... .would they try

> treatment first? I heard it can ruin my new liver quicker than this

> one.I'm so glad to have all of you,have no fear wendy will

> appear,with new questions. Love all of you! HI ELSIE:) god

> bless,

>

>

[Guest guest]

Hi ,

I know you addressed this to Lyncia, but I thought I would put my two

cents in since I had a transplant.

When you have the transplant evaluation, it would be good for your

husband and any other family members go with you for support. The

transplant team just wants to know that you will be cared for after

the transplant because you won't do anything but heal up, do some

walking, showering, eating, etc. My husband had to help me get up

off the toilet at times for a little while after the transplant, and

help me up the couple of steps to get into our house. He also had to

drive me to labs three times a week. You are not supposed to drive

yourself for quite a while after having a transplant...not until you

get off of the pain medicine anyway. If my husband couldn't drive

me, my dad or my brother would. You need someone to cook and clean

for you since you won't be able to do it, and you can't lift more

than 5 pounds for a while too. My husband helped me put lotion on,

helped me do leg excercises that I was supposed to do daily, put

those socks on that help squeeze the excess water out of the legs (I

can't remember what they are called), and whatever I needed to have

done. My parents came over to clean the house once a week since my

husband was working and taking care of me at night. I spent the days

while my husband was at work at my parent's house for a few weeks too.

It sounds like your husband will do a fine job sincee he has helped

you before. That's all they need to know that you will be cared for

at home.

I hope that helps to ease your mind a bit.

Penny

>

> From: italybell69 <italybell69@ yahoo.com>

> Subject: wendy

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Wednesday, December 10, 2008, 4:52 PM

>

> Hello everyone my step children took over my p.c,so I havent posted

> for a minute.As I lay awake with my everynight insomnia,I think of

> all sorts of things to ask certain people and then I get mixed up

on

> who has dealt with " this & that " and then forget details of " who is

> who " ...first off the list,Bobby,somehow I had the impresion you to

> were waiting on a transplant.I was reading your posts on pain

meds.I

> have been wanting to maybe ask some personal questions about

> Ardis,you told me that she wasnt recomended for a transplant from

the

> team,because if I can recall they said she needed a better support

> system? hmm... maybe I'm wrong,but it has had me thinking overtime

if

> thats possible.I havent been to the Cleveland Clinic yet,they are

> dragging there feet,Abijann told me to light a fire under there

ass's

> not in those particular words,but I figure i would rather wait till

> after the holidays anyways there is a story in A.A. about a

> transplant patient,she said she had to see a psychiatrist first

> also,O.K.Now here is where the big bad story started..... Had a

shrink,

> (depressed alcoholic),was presribed anti-depressents (never worked

> and have tried them all)had some blood work done ,found out i had

> HepC,my infectious disease dr. told me i couldnt take the

interfuron

> because it could cause me to committ suicide-long story short,I

quit

> taking anti-depressents, and started drinking again on and off

until

> last May when I almost died.So now I'm going to my meetings,I have

> found me another psychiatrist, and i am doing everything in my

power

> to be accepted but,now I'm worried about support,I have it but will

> they agree???I am the busy body caregiver in this family.I have

been

> taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> oxygen (at her house)my dad has diabetes,my sister is 37 and still

> with us with down syndrom,a baby sister 31 whom still suffers from

a

> crack addiction and just lost her baby 2 days ago,did I mention the

> partrich in a pear tree LOL!Ive got to much here going on to be

able

> to do that too.As far as the transplant team I want to be as honest

> with them as possible and i know everyone will survive if i do get

a

> transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> was in I.C.u. in May and it took close to 4 months before I was of

> any help to anyone,hey! and noone died:)Oh and last but not least,I

> too have genotype 1a HepC I didnt know that it was the hardest to

> treat,wich leads me to a new slew of questions... .would they try

> treatment first? I heard it can ruin my new liver quicker than this

> one.I'm so glad to have all of you,have no fear wendy will

> appear,with new questions. Love all of you! HI ELSIE:) god

> bless,

>

>

[Guest guest]

I don;t really know.  I am in TX and they are in another sate.  Mine is not from

drinking but from NASH.  I have had dibetis for over 40 years and have not

reached the age of 60 yet.  My body is healty.....so don't really know why.

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

>

> From: italybell69 <italybell69@ yahoo.com <italybell69% 40yahoo.com> >

> Subject: wendy

> To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp

ort%40yahoogroup s.com>

> Date: Wednesday, December 10, 2008, 4:52 PM

>

>

> Hello everyone my step children took over my p.c,so I havent posted

> for a minute.As I lay awake with my everynight insomnia,I think of

> all sorts of things to ask certain people and then I get mixed up on

> who has dealt with " this & that " and then forget details of " who is

> who " ...first off the list,Bobby,somehow I had the impresion you to

> were waiting on a transplant.I was reading your posts on pain meds.I

> have been wanting to maybe ask some personal questions about

> Ardis,you told me that she wasnt recomended for a transplant from the

> team,because if I can recall they said she needed a better support

> system? hmm... maybe I'm wrong,but it has had me thinking overtime if

> thats possible.I havent been to the Cleveland Clinic yet,they are

> dragging there feet,Abijann told me to light a fire under there ass's

> not in those particular words,but I figure i would rather wait till

> after the holidays anyways there is a story in A.A. about a

> transplant patient,she said she had to see a psychiatrist first

> also,O.K.Now here is where the big bad story started..... Had a shrink,

> (depressed alcoholic),was presribed anti-depressents (never worked

> and have tried them all)had some blood work done ,found out i had

> HepC,my infectious disease dr. told me i couldnt take the interfuron

> because it could cause me to committ suicide-long story short,I quit

> taking anti-depressents, and started drinking again on and off until

> last May when I almost died.So now I'm going to my meetings,I have

> found me another psychiatrist, and i am doing everything in my power

> to be accepted but,now I'm worried about support,I have it but will

> they agree???I am the busy body caregiver in this family.I have been

> taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> oxygen (at her house)my dad has diabetes,my sister is 37 and still

> with us with down syndrom,a baby sister 31 whom still suffers from a

> crack addiction and just lost her baby 2 days ago,did I mention the

> partrich in a pear tree LOL!Ive got to much here going on to be able

> to do that too.As far as the transplant team I want to be as honest

> with them as possible and i know everyone will survive if i do get a

> transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> was in I.C.u. in May and it took close to 4 months before I was of

> any help to anyone,hey! and noone died:)Oh and last but not least,I

> too have genotype 1a HepC I didnt know that it was the hardest to

> treat,wich leads me to a new slew of questions... .would they try

> treatment first? I heard it can ruin my new liver quicker than this

> one.I'm so glad to have all of you,have no fear wendy will

> appear,with new questions. Love all of you! HI ELSIE:) god

> bless,

>

>

[Guest guest]

Thank you for the information,do or did you have hepC?did they treat you before

or after if so,and is that all determined by how long before I will absolutly

need a new liver.

Subject: Re: wendy

To: livercirrhosissupport

Date: Wednesday, December 10, 2008, 9:10 PM

Hi ,

I know you addressed this to Lyncia, but I thought I would put my two

cents in since I had a transplant.

When you have the transplant evaluation, it would be good for your

husband and any other family members go with you for support. The

transplant team just wants to know that you will be cared for after

the transplant because you won't do anything but heal up, do some

walking, showering, eating, etc. My husband had to help me get up

off the toilet at times for a little while after the transplant, and

help me up the couple of steps to get into our house. He also had to

drive me to labs three times a week. You are not supposed to drive

yourself for quite a while after having a transplant.. .not until you

get off of the pain medicine anyway. If my husband couldn't drive

me, my dad or my brother would. You need someone to cook and clean

for you since you won't be able to do it, and you can't lift more

than 5 pounds for a while too. My husband helped me put lotion on,

helped me do leg excercises that I was supposed to do daily, put

those socks on that help squeeze the excess water out of the legs (I

can't remember what they are called), and whatever I needed to have

done. My parents came over to clean the house once a week since my

husband was working and taking care of me at night. I spent the days

while my husband was at work at my parent's house for a few weeks too.

It sounds like your husband will do a fine job sincee he has helped

you before. That's all they need to know that you will be cared for

at home.

I hope that helps to ease your mind a bit.

Penny

>

> From: italybell69 <italybell69@ yahoo.com>

> Subject: wendy

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Wednesday, December 10, 2008, 4:52 PM

>

> Hello everyone my step children took over my p.c,so I havent posted

> for a minute.As I lay awake with my everynight insomnia,I think of

> all sorts of things to ask certain people and then I get mixed up

on

> who has dealt with " this & that " and then forget details of " who is

> who " ...first off the list,Bobby,somehow I had the impresion you to

> were waiting on a transplant.I was reading your posts on pain

meds.I

> have been wanting to maybe ask some personal questions about

> Ardis,you told me that she wasnt recomended for a transplant from

the

> team,because if I can recall they said she needed a better support

> system? hmm... maybe I'm wrong,but it has had me thinking overtime

if

> thats possible.I havent been to the Cleveland Clinic yet,they are

> dragging there feet,Abijann told me to light a fire under there

ass's

> not in those particular words,but I figure i would rather wait till

> after the holidays anyways there is a story in A.A. about a

> transplant patient,she said she had to see a psychiatrist first

> also,O.K.Now here is where the big bad story started..... Had a

shrink,

> (depressed alcoholic),was presribed anti-depressents (never worked

> and have tried them all)had some blood work done ,found out i had

> HepC,my infectious disease dr. told me i couldnt take the

interfuron

> because it could cause me to committ suicide-long story short,I

quit

> taking anti-depressents, and started drinking again on and off

until

> last May when I almost died.So now I'm going to my meetings,I have

> found me another psychiatrist, and i am doing everything in my

power

> to be accepted but,now I'm worried about support,I have it but will

> they agree???I am the busy body caregiver in this family.I have

been

> taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> oxygen (at her house)my dad has diabetes,my sister is 37 and still

> with us with down syndrom,a baby sister 31 whom still suffers from

a

> crack addiction and just lost her baby 2 days ago,did I mention the

> partrich in a pear tree LOL!Ive got to much here going on to be

able

> to do that too.As far as the transplant team I want to be as honest

> with them as possible and i know everyone will survive if i do get

a

> transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> was in I.C.u. in May and it took close to 4 months before I was of

> any help to anyone,hey! and noone died:)Oh and last but not least,I

> too have genotype 1a HepC I didnt know that it was the hardest to

> treat,wich leads me to a new slew of questions... .would they try

> treatment first? I heard it can ruin my new liver quicker than this

> one.I'm so glad to have all of you,have no fear wendy will

> appear,with new questions. Love all of you! HI ELSIE:) god

> bless,

>

>

[Guest guest]

I am on thel list for a dual transplant and have a daughter-in-law and two sons

h=that are doing the caregiveing and helphing my with SS.  Somedays I can't get

out of bed and some days I can skin a bear.  Who knows?

 

I am not for sure where I am at on the list in my area.  I gi bacj ib tge 22nd

and find out and will let everyone know.

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

From: italybell69 <italybell69@ yahoo.com>

Subject: wendy

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Wednesday, December 10, 2008, 4:52 PM

Hello everyone my step children took over my p.c,so I havent posted

for a minute.As I lay awake with my everynight insomnia,I think of

all sorts of things to ask certain people and then I get mixed up on

who has dealt with " this & that " and then forget details of " who is

who " ...first off the list,Bobby,somehow I had the impresion you to

were waiting on a transplant.I was reading your posts on pain meds.I

have been wanting to maybe ask some personal questions about

Ardis,you told me that she wasnt recomended for a transplant from the

team,because if I can recall they said she needed a better support

system? hmm... maybe I'm wrong,but it has had me thinking overtime if

thats possible.I havent been to the Cleveland Clinic yet,they are

dragging there feet,Abijann told me to light a fire under there ass's

not in those particular words,but I figure i would rather wait till

after the holidays anyways there is a story in A.A. about a

transplant patient,she said she had to see a psychiatrist first

also,O.K.Now here is where the big bad story started..... Had a shrink,

(depressed alcoholic),was presribed anti-depressents (never worked

and have tried them all)had some blood work done ,found out i had

HepC,my infectious disease dr. told me i couldnt take the interfuron

because it could cause me to committ suicide-long story short,I quit

taking anti-depressents, and started drinking again on and off until

last May when I almost died.So now I'm going to my meetings,I have

found me another psychiatrist, and i am doing everything in my power

to be accepted but,now I'm worried about support,I have it but will

they agree???I am the busy body caregiver in this family.I have been

taking care of his fateher for 10 yrs of Alzheimers,my mom is on

oxygen (at her house)my dad has diabetes,my sister is 37 and still

with us with down syndrom,a baby sister 31 whom still suffers from a

crack addiction and just lost her baby 2 days ago,did I mention the

partrich in a pear tree LOL!Ive got to much here going on to be able

to do that too.As far as the transplant team I want to be as honest

with them as possible and i know everyone will survive if i do get a

transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

was in I.C.u. in May and it took close to 4 months before I was of

any help to anyone,hey! and noone died:)Oh and last but not least,I

too have genotype 1a HepC I didnt know that it was the hardest to

treat,wich leads me to a new slew of questions... .would they try

treatment first? I heard it can ruin my new liver quicker than this

one.I'm so glad to have all of you,have no fear wendy will

appear,with new questions. Love all of you! HI ELSIE:) god

bless,

[Guest guest]

Wow,brain blip again!! Sorry Penny,thought I was talking to Lyncia,I'm giggling

because I keep getting everyone mixed up,and you of all people are having your

shots right now!!! I do know that,I'll get everyone straight sooner or later

just forget the last post about the Hepc.... & sounds like your doing great! lots

of love,

Subject: Re: wendy

To: livercirrhosissupport

Date: Wednesday, December 10, 2008, 9:10 PM

Hi ,

I know you addressed this to Lyncia, but I thought I would put my two

cents in since I had a transplant.

When you have the transplant evaluation, it would be good for your

husband and any other family members go with you for support. The

transplant team just wants to know that you will be cared for after

the transplant because you won't do anything but heal up, do some

walking, showering, eating, etc. My husband had to help me get up

off the toilet at times for a little while after the transplant, and

help me up the couple of steps to get into our house. He also had to

drive me to labs three times a week. You are not supposed to drive

yourself for quite a while after having a transplant.. .not until you

get off of the pain medicine anyway. If my husband couldn't drive

me, my dad or my brother would. You need someone to cook and clean

for you since you won't be able to do it, and you can't lift more

than 5 pounds for a while too. My husband helped me put lotion on,

helped me do leg excercises that I was supposed to do daily, put

those socks on that help squeeze the excess water out of the legs (I

can't remember what they are called), and whatever I needed to have

done. My parents came over to clean the house once a week since my

husband was working and taking care of me at night. I spent the days

while my husband was at work at my parent's house for a few weeks too.

It sounds like your husband will do a fine job sincee he has helped

you before. That's all they need to know that you will be cared for

at home.

I hope that helps to ease your mind a bit.

Penny

>

> From: italybell69 <italybell69@ yahoo.com>

> Subject: wendy

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Wednesday, December 10, 2008, 4:52 PM

>

> Hello everyone my step children took over my p.c,so I havent posted

> for a minute.As I lay awake with my everynight insomnia,I think of

> all sorts of things to ask certain people and then I get mixed up

on

> who has dealt with " this & that " and then forget details of " who is

> who " ...first off the list,Bobby,somehow I had the impresion you to

> were waiting on a transplant.I was reading your posts on pain

meds.I

> have been wanting to maybe ask some personal questions about

> Ardis,you told me that she wasnt recomended for a transplant from

the

> team,because if I can recall they said she needed a better support

> system? hmm... maybe I'm wrong,but it has had me thinking overtime

if

> thats possible.I havent been to the Cleveland Clinic yet,they are

> dragging there feet,Abijann told me to light a fire under there

ass's

> not in those particular words,but I figure i would rather wait till

> after the holidays anyways there is a story in A.A. about a

> transplant patient,she said she had to see a psychiatrist first

> also,O.K.Now here is where the big bad story started..... Had a

shrink,

> (depressed alcoholic),was presribed anti-depressents (never worked

> and have tried them all)had some blood work done ,found out i had

> HepC,my infectious disease dr. told me i couldnt take the

interfuron

> because it could cause me to committ suicide-long story short,I

quit

> taking anti-depressents, and started drinking again on and off

until

> last May when I almost died.So now I'm going to my meetings,I have

> found me another psychiatrist, and i am doing everything in my

power

> to be accepted but,now I'm worried about support,I have it but will

> they agree???I am the busy body caregiver in this family.I have

been

> taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> oxygen (at her house)my dad has diabetes,my sister is 37 and still

> with us with down syndrom,a baby sister 31 whom still suffers from

a

> crack addiction and just lost her baby 2 days ago,did I mention the

> partrich in a pear tree LOL!Ive got to much here going on to be

able

> to do that too.As far as the transplant team I want to be as honest

> with them as possible and i know everyone will survive if i do get

a

> transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> was in I.C.u. in May and it took close to 4 months before I was of

> any help to anyone,hey! and noone died:)Oh and last but not least,I

> too have genotype 1a HepC I didnt know that it was the hardest to

> treat,wich leads me to a new slew of questions... .would they try

> treatment first? I heard it can ruin my new liver quicker than this

> one.I'm so glad to have all of you,have no fear wendy will

> appear,with new questions. Love all of you! HI ELSIE:) god

> bless,

>

>

[Guest guest]

You pretty well get the idea. Ardis was content to die in her own apartment,

which we got her settled into after she spent winter 50-06 in my backyard in our

camper with a small electric heater and her trusty Aussie, . On the 4th

of July weekend, I came over just like every day after work, and she just looked

so bad. Her eyes looked dry, and dull, and so yellow they literally looked like

egg yolk. I couldn't take it. I called 911. I got rather emotional once the

hospital finally recognized me as a caretaker with power of attorney. I got a

little demanding at that point. I didnt want anyone feeding her gluten, she had

celiacs disease, and it was making her even sicker if that was even possible. I

asked for a transplant evaluation,. The catch was that at CU you need a PCP

referral for a transplant eval. She didn't even have a PCP yet. They finally got

us a social worker, the attending handed Ardis thick as a brick chart to a young

med student, and

told her, figure out who this man is, and get a plan going for them. She did.

So that lady got her an appointment

for a late July meeting with dr Burton, the second in command at the

transplant center. When he saw her, he said " oh, yeah, she'll be up at the top

of the list, and we can get the ball rolling. She was readmitted, and the next

morning, they sent the social worker form the transplant team to get past the

first hurdle, social support- as they had a suspicion that she wasn't going to

pass the test, based on her address.-------- It was a nursing home.-------- They

had discharged her earlier in the month to this nursing home. Now they were

looking at her as a transplant candidate. She was even housed up on the 8th

floor. At university hospital in Denver, that in itself is a BIG deal. It's the

transplant floor. They are so sweet up there, and the staff do not get impatient

with the patients. Even the terribly encephalopathic ones, who repeat repeat

themselves over and over. But the thing is that a " nursing

home-for-a-post-transplant-discharge-plan- "

is not going to pass muster with the transplant surgeon. Period . Ever. .Now,

had I known that I would have been leaving work on September 15 and not coming

back, even ending up on SSDI, that might have changed things, but probably not.

She would have needed a lot of care after ward, and Sharon was recovering from

surgery she had in April, and would go back under the knife the following June,

Brain surgery. We had exhausted our ability to help her, and she was very tired

and ready to be done. Remember, I was the one who intervened against her will

-back on July 4th. Love, Bobby.

If you ever want to or have time to IM, I am robwalkingeagle@.... (

I would like that)

long life, old age, everything good-Apache prayer

________________________________

To: livercirrhosissupport

Sent: Wednesday, December 10, 2008 3:52:22 PM

Subject: wendy

Hello everyone my step children took over my p.c,so I havent posted

for a minute.As I lay awake with my everynight insomnia,I think of

all sorts of things to ask certain people and then I get mixed up on

who has dealt with " this & that " and then forget details of " who is

who " ...first off the list,Bobby,somehow I had the impresion you to

were waiting on a transplant.I was reading your posts on pain meds.I

have been wanting to maybe ask some personal questions about

Ardis,you told me that she wasnt recomended for a transplant from the

team,because if I can recall they said she needed a better support

system? hmm... maybe I'm wrong,but it has had me thinking overtime if

thats possible.I havent been to the Cleveland Clinic yet,they are

dragging there feet,Abijann told me to light a fire under there ass's

not in those particular words,but I figure i would rather wait till

after the holidays anyways there is a story in A.A. about a

transplant patient,she said she had to see a psychiatrist first

also,O.K.Now here is where the big bad story started..... Had a shrink,

(depressed alcoholic),was presribed anti-depressents (never worked

and have tried them all)had some blood work done ,found out i had

HepC,my infectious disease dr. told me i couldnt take the interfuron

because it could cause me to committ suicide-long story short,I quit

taking anti-depressents, and started drinking again on and off until

last May when I almost died.So now I'm going to my meetings,I have

found me another psychiatrist, and i am doing everything in my power

to be accepted but,now I'm worried about support,I have it but will

they agree???I am the busy body caregiver in this family.I have been

taking care of his fateher for 10 yrs of Alzheimers,my mom is on

oxygen (at her house)my dad has diabetes,my sister is 37 and still

with us with down syndrom,a baby sister 31 whom still suffers from a

crack addiction and just lost her baby 2 days ago,did I mention the

partrich in a pear tree LOL!Ive got to much here going on to be able

to do that too.As far as the transplant team I want to be as honest

with them as possible and i know everyone will survive if i do get a

transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

was in I.C.u. in May and it took close to 4 months before I was of

any help to anyone,hey! and noone died:)Oh and last but not least,I

too have genotype 1a HepC I didnt know that it was the hardest to

treat,wich leads me to a new slew of questions... .would they try

treatment first? I heard it can ruin my new liver quicker than this

one.I'm so glad to have all of you,have no fear wendy will

appear,with new questions. Love all of you! HI ELSIE:) god

bless,

[Guest guest]

It was the nursing home. They consider it way to dirty and the care not specific

enough. If we could have took her in again, it might have worked out, but she

was so allergic to my cats, she could only really be in here for less than 30

minutes at a time. We even discussed doing a decontamination of the house, but

would have to have gotten rid of our cats. It just wasnt to be. I wished her

real family would have been more reasonable.

long life, old age, everything good-Apache prayer

________________________________

To: livercirrhosissupport

Sent: Wednesday, December 10, 2008 5:33:59 PM

Subject: Re: wendy

It doesn't make sense they would use that reason for Ardis with all the

support she got for Bobby and Sharon. How much more can you give? Jan H

On Wed, Dec 10, 2008 at 5:30 PM, Lyncia <lmlangdonyahoo (DOT) com> wrote:

> FYI I was told that I could not have a transplant without a caregiver

> and the promise of help from my family...... .I so luckly that I heve them.

>

> Lyncia

>

> In life family and friends take us on all kinds of adventures, God helps us

> choose our path....Enjoy your journey!

>

>

>

> From: italybell69 <italybell69@ yahoo.com <italybell69% 40yahoo.com> >

> Subject: wendy

> To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp

ort%40yahoogroup s.com>

> Date: Wednesday, December 10, 2008, 4:52 PM

>

>

> Hello everyone my step children took over my p.c,so I havent posted

> for a minute.As I lay awake with my everynight insomnia,I think of

> all sorts of things to ask certain people and then I get mixed up on

> who has dealt with " this & that " and then forget details of " who is

> who " ...first off the list,Bobby,somehow I had the impresion you to

> were waiting on a transplant.I was reading your posts on pain meds.I

> have been wanting to maybe ask some personal questions about

> Ardis,you told me that she wasnt recomended for a transplant from the

> team,because if I can recall they said she needed a better support

> system? hmm... maybe I'm wrong,but it has had me thinking overtime if

> thats possible.I havent been to the Cleveland Clinic yet,they are

> dragging there feet,Abijann told me to light a fire under there ass's

> not in those particular words,but I figure i would rather wait till

> after the holidays anyways there is a story in A.A. about a

> transplant patient,she said she had to see a psychiatrist first

> also,O.K.Now here is where the big bad story started..... Had a shrink,

> (depressed alcoholic),was presribed anti-depressents (never worked

> and have tried them all)had some blood work done ,found out i had

> HepC,my infectious disease dr. told me i couldnt take the interfuron

> because it could cause me to committ suicide-long story short,I quit

> taking anti-depressents, and started drinking again on and off until

> last May when I almost died.So now I'm going to my meetings,I have

> found me another psychiatrist, and i am doing everything in my power

> to be accepted but,now I'm worried about support,I have it but will

> they agree???I am the busy body caregiver in this family.I have been

> taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> oxygen (at her house)my dad has diabetes,my sister is 37 and still

> with us with down syndrom,a baby sister 31 whom still suffers from a

> crack addiction and just lost her baby 2 days ago,did I mention the

> partrich in a pear tree LOL!Ive got to much here going on to be able

> to do that too.As far as the transplant team I want to be as honest

> with them as possible and i know everyone will survive if i do get a

> transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> was in I.C.u. in May and it took close to 4 months before I was of

> any help to anyone,hey! and noone died:)Oh and last but not least,I

> too have genotype 1a HepC I didnt know that it was the hardest to

> treat,wich leads me to a new slew of questions... .would they try

> treatment first? I heard it can ruin my new liver quicker than this

> one.I'm so glad to have all of you,have no fear wendy will

> appear,with new questions. Love all of you! HI ELSIE:) god

> bless,

>

>

[Guest guest]

I knew there was something about you that I really liked:)my cat " BRUISER " is my

best friend:):)love,

>

> From: italybell69 <italybell69@ yahoo.com <italybell69% 40yahoo.com> >

> Subject: wendy

> To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp

ort%40yahoogroup s.com>

> Date: Wednesday, December 10, 2008, 4:52 PM

>

>

> Hello everyone my step children took over my p.c,so I havent posted

> for a minute.As I lay awake with my everynight insomnia,I think of

> all sorts of things to ask certain people and then I get mixed up on

> who has dealt with " this & that " and then forget details of " who is

> who " ...first off the list,Bobby,somehow I had the impresion you to

> were waiting on a transplant.I was reading your posts on pain meds.I

> have been wanting to maybe ask some personal questions about

> Ardis,you told me that she wasnt recomended for a transplant from the

> team,because if I can recall they said she needed a better support

> system? hmm... maybe I'm wrong,but it has had me thinking overtime if

> thats possible.I havent been to the Cleveland Clinic yet,they are

> dragging there feet,Abijann told me to light a fire under there ass's

> not in those particular words,but I figure i would rather wait till

> after the holidays anyways there is a story in A.A. about a

> transplant patient,she said she had to see a psychiatrist first

> also,O.K.Now here is where the big bad story started..... Had a shrink,

> (depressed alcoholic),was presribed anti-depressents (never worked

> and have tried them all)had some blood work done ,found out i had

> HepC,my infectious disease dr. told me i couldnt take the interfuron

> because it could cause me to committ suicide-long story short,I quit

> taking anti-depressents, and started drinking again on and off until

> last May when I almost died.So now I'm going to my meetings,I have

> found me another psychiatrist, and i am doing everything in my power

> to be accepted but,now I'm worried about support,I have it but will

> they agree???I am the busy body caregiver in this family.I have been

> taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> oxygen (at her house)my dad has diabetes,my sister is 37 and still

> with us with down syndrom,a baby sister 31 whom still suffers from a

> crack addiction and just lost her baby 2 days ago,did I mention the

> partrich in a pear tree LOL!Ive got to much here going on to be able

> to do that too.As far as the transplant team I want to be as honest

> with them as possible and i know everyone will survive if i do get a

> transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> was in I.C.u. in May and it took close to 4 months before I was of

> any help to anyone,hey! and noone died:)Oh and last but not least,I

> too have genotype 1a HepC I didnt know that it was the hardest to

> treat,wich leads me to a new slew of questions... .would they try

> treatment first? I heard it can ruin my new liver quicker than this

> one.I'm so glad to have all of you,have no fear wendy will

> appear,with new questions. Love all of you! HI ELSIE:) god

> bless,

>

>

[Guest guest]

Hi ,

Yes, I have Hepatitis C. I did not do treatment before the

transplant. I never wanted to because I was afraid of the side

effects of treatment, and I thought my liver would last forever. I

was wrong, and so far the side effects of the treatment are almost

non existant. I'm doing treatment now. They wanted me to start

treatment before the transplant, but by that time, I was too sick to

handle treatment. They like you to do the treatment before the

transplant, but you still have to do the treatment after the

transplant because it comes back quickly after transplant.

The treatment for Hep C should be done long before you have cirrhosis

unless, of course, you don't know you have Hep C until you have

cirrhosis already. I knew I had Hep C for many years before I had

cirrhosis, but I never did the treatment. I will tell everyone now

that they really should do the treatment before the liver gets to the

point of cirrhosis.

Your doctor should refer you for a transplant as soon as you start

having cirrhosis.

Penny

> >

> > From: italybell69 <italybell69@ yahoo.com>

> > Subject: wendy

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Date: Wednesday, December 10, 2008, 4:52 PM

> >

> > Hello everyone my step children took over my p.c,so I havent

posted

> > for a minute.As I lay awake with my everynight insomnia,I think

of

> > all sorts of things to ask certain people and then I get mixed up

> on

> > who has dealt with " this & that " and then forget details of " who

is

> > who " ...first off the list,Bobby,somehow I had the impresion you

to

> > were waiting on a transplant.I was reading your posts on pain

> meds.I

> > have been wanting to maybe ask some personal questions about

> > Ardis,you told me that she wasnt recomended for a transplant from

> the

> > team,because if I can recall they said she needed a better

support

> > system? hmm... maybe I'm wrong,but it has had me thinking

overtime

> if

> > thats possible.I havent been to the Cleveland Clinic yet,they are

> > dragging there feet,Abijann told me to light a fire under there

> ass's

> > not in those particular words,but I figure i would rather wait

till

> > after the holidays anyways there is a story in A.A. about a

> > transplant patient,she said she had to see a psychiatrist first

> > also,O.K.Now here is where the big bad story started..... Had a

> shrink,

> > (depressed alcoholic),was presribed anti-depressents (never

worked

> > and have tried them all)had some blood work done ,found out i had

> > HepC,my infectious disease dr. told me i couldnt take the

> interfuron

> > because it could cause me to committ suicide-long story short,I

> quit

> > taking anti-depressents, and started drinking again on and off

> until

> > last May when I almost died.So now I'm going to my meetings,I

have

> > found me another psychiatrist, and i am doing everything in my

> power

> > to be accepted but,now I'm worried about support,I have it but

will

> > they agree???I am the busy body caregiver in this family.I have

> been

> > taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> > oxygen (at her house)my dad has diabetes,my sister is 37 and

still

> > with us with down syndrom,a baby sister 31 whom still suffers

from

> a

> > crack addiction and just lost her baby 2 days ago,did I mention

the

> > partrich in a pear tree LOL!Ive got to much here going on to be

> able

> > to do that too.As far as the transplant team I want to be as

honest

> > with them as possible and i know everyone will survive if i do

get

> a

> > transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when

i

> > was in I.C.u. in May and it took close to 4 months before I was

of

> > any help to anyone,hey! and noone died:)Oh and last but not

least,I

> > too have genotype 1a HepC I didnt know that it was the hardest to

> > treat,wich leads me to a new slew of questions... .would they try

> > treatment first? I heard it can ruin my new liver quicker than

this

> > one.I'm so glad to have all of you,have no fear wendy will

> > appear,with new questions. Love all of you! HI ELSIE:) god

> > bless,

> >

> >

[Guest guest]

That's no problem, . Don't worry about it.

Penny

> >

> > From: italybell69 <italybell69@ yahoo.com>

> > Subject: wendy

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Date: Wednesday, December 10, 2008, 4:52 PM

> >

> > Hello everyone my step children took over my p.c,so I havent

posted

> > for a minute.As I lay awake with my everynight insomnia,I think

of

> > all sorts of things to ask certain people and then I get mixed up

> on

> > who has dealt with " this & that " and then forget details of " who

is

> > who " ...first off the list,Bobby,somehow I had the impresion you

to

> > were waiting on a transplant.I was reading your posts on pain

> meds.I

> > have been wanting to maybe ask some personal questions about

> > Ardis,you told me that she wasnt recomended for a transplant from

> the

> > team,because if I can recall they said she needed a better

support

> > system? hmm... maybe I'm wrong,but it has had me thinking

overtime

> if

> > thats possible.I havent been to the Cleveland Clinic yet,they are

> > dragging there feet,Abijann told me to light a fire under there

> ass's

> > not in those particular words,but I figure i would rather wait

till

> > after the holidays anyways there is a story in A.A. about a

> > transplant patient,she said she had to see a psychiatrist first

> > also,O.K.Now here is where the big bad story started..... Had a

> shrink,

> > (depressed alcoholic),was presribed anti-depressents (never

worked

> > and have tried them all)had some blood work done ,found out i had

> > HepC,my infectious disease dr. told me i couldnt take the

> interfuron

> > because it could cause me to committ suicide-long story short,I

> quit

> > taking anti-depressents, and started drinking again on and off

> until

> > last May when I almost died.So now I'm going to my meetings,I

have

> > found me another psychiatrist, and i am doing everything in my

> power

> > to be accepted but,now I'm worried about support,I have it but

will

> > they agree???I am the busy body caregiver in this family.I have

> been

> > taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> > oxygen (at her house)my dad has diabetes,my sister is 37 and

still

> > with us with down syndrom,a baby sister 31 whom still suffers

from

> a

> > crack addiction and just lost her baby 2 days ago,did I mention

the

> > partrich in a pear tree LOL!Ive got to much here going on to be

> able

> > to do that too.As far as the transplant team I want to be as

honest

> > with them as possible and i know everyone will survive if i do

get

> a

> > transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when

i

> > was in I.C.u. in May and it took close to 4 months before I was

of

> > any help to anyone,hey! and noone died:)Oh and last but not

least,I

> > too have genotype 1a HepC I didnt know that it was the hardest to

> > treat,wich leads me to a new slew of questions... .would they try

> > treatment first? I heard it can ruin my new liver quicker than

this

> > one.I'm so glad to have all of you,have no fear wendy will

> > appear,with new questions. Love all of you! HI ELSIE:) god

> > bless,

> >

> >

[Guest guest]

Hi ,

I have cats too...4 of them. I had 5, but my oldest baby (Buster)

passed away in March of this year. He was my best, best friend. He

was my baby! He got me through a lot of times over the years. My

dog, , is my shadow now since I got her two years ago. She is

attached to my hip...lol. She's gone through a lot with me too, and

I missed her terribly when I was in the hospital for 27 days.

My friend, Lori, who has been helping me with treatment is allergic

to my cats, but she comes to help me anyway. Her husband came along

last night too, and he is even more allergic to cats, but they are

the most wonderful people. He was all stuffed up by the time they

left, but Lori was fine. We always have a little prayer circle

before they leave, and my dog, , always gets in the middle of

the circle when we pray. It's so cute!

Penny

> >

> > From: italybell69 <italybell69@ yahoo.com <italybell69%

40yahoo.com> >

> > Subject: wendy

> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp

ort%40yahoogroup s.com>

> > Date: Wednesday, December 10, 2008, 4:52 PM

> >

> >

> > Hello everyone my step children took over my p.c,so I havent

posted

> > for a minute.As I lay awake with my everynight insomnia,I think of

> > all sorts of things to ask certain people and then I get mixed up

on

> > who has dealt with " this & that " and then forget details of " who

is

> > who " ...first off the list,Bobby,somehow I had the impresion you to

> > were waiting on a transplant.I was reading your posts on pain

meds.I

> > have been wanting to maybe ask some personal questions about

> > Ardis,you told me that she wasnt recomended for a transplant from

the

> > team,because if I can recall they said she needed a better support

> > system? hmm... maybe I'm wrong,but it has had me thinking

overtime if

> > thats possible.I havent been to the Cleveland Clinic yet,they are

> > dragging there feet,Abijann told me to light a fire under there

ass's

> > not in those particular words,but I figure i would rather wait

till

> > after the holidays anyways there is a story in A.A. about a

> > transplant patient,she said she had to see a psychiatrist first

> > also,O.K.Now here is where the big bad story started..... Had a

shrink,

> > (depressed alcoholic),was presribed anti-depressents (never worked

> > and have tried them all)had some blood work done ,found out i had

> > HepC,my infectious disease dr. told me i couldnt take the

interfuron

> > because it could cause me to committ suicide-long story short,I

quit

> > taking anti-depressents, and started drinking again on and off

until

> > last May when I almost died.So now I'm going to my meetings,I have

> > found me another psychiatrist, and i am doing everything in my

power

> > to be accepted but,now I'm worried about support,I have it but

will

> > they agree???I am the busy body caregiver in this family.I have

been

> > taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> > oxygen (at her house)my dad has diabetes,my sister is 37 and still

> > with us with down syndrom,a baby sister 31 whom still suffers

from a

> > crack addiction and just lost her baby 2 days ago,did I mention

the

> > partrich in a pear tree LOL!Ive got to much here going on to be

able

> > to do that too.As far as the transplant team I want to be as

honest

> > with them as possible and i know everyone will survive if i do

get a

> > transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> > was in I.C.u. in May and it took close to 4 months before I was of

> > any help to anyone,hey! and noone died:)Oh and last but not

least,I

> > too have genotype 1a HepC I didnt know that it was the hardest to

> > treat,wich leads me to a new slew of questions... .would they try

> > treatment first? I heard it can ruin my new liver quicker than

this

> > one.I'm so glad to have all of you,have no fear wendy will

> > appear,with new questions. Love all of you! HI ELSIE:) god

> > bless,

> >

> >

[Guest guest]

Aww,sorry you lost your best friend. My bruiser is 12,Bob is jealous,I just tell

him he is smarter than most men I know,and he knows when that sad terrible day

ever comes,I had better have a big fat orange tabby under my pillow.Love,wendy

Subject: Re: wendy

To: livercirrhosissupport

Date: Wednesday, December 10, 2008, 10:12 PM

Hi ,

I have cats too...4 of them. I had 5, but my oldest baby (Buster)

passed away in March of this year. He was my best, best friend. He

was my baby! He got me through a lot of times over the years. My

dog, , is my shadow now since I got her two years ago. She is

attached to my hip...lol. She's gone through a lot with me too, and

I missed her terribly when I was in the hospital for 27 days.

My friend, Lori, who has been helping me with treatment is allergic

to my cats, but she comes to help me anyway. Her husband came along

last night too, and he is even more allergic to cats, but they are

the most wonderful people. He was all stuffed up by the time they

left, but Lori was fine. We always have a little prayer circle

before they leave, and my dog, , always gets in the middle of

the circle when we pray. It's so cute!

Penny

> >

> > From: italybell69 <italybell69@ yahoo.com <italybell69%

40yahoo.com> >

> > Subject: wendy

> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp

ort%40yahoogroup s.com>

> > Date: Wednesday, December 10, 2008, 4:52 PM

> >

> >

> > Hello everyone my step children took over my p.c,so I havent

posted

> > for a minute.As I lay awake with my everynight insomnia,I think of

> > all sorts of things to ask certain people and then I get mixed up

on

> > who has dealt with " this & that " and then forget details of " who

is

> > who " ...first off the list,Bobby,somehow I had the impresion you to

> > were waiting on a transplant.I was reading your posts on pain

meds.I

> > have been wanting to maybe ask some personal questions about

> > Ardis,you told me that she wasnt recomended for a transplant from

the

> > team,because if I can recall they said she needed a better support

> > system? hmm... maybe I'm wrong,but it has had me thinking

overtime if

> > thats possible.I havent been to the Cleveland Clinic yet,they are

> > dragging there feet,Abijann told me to light a fire under there

ass's

> > not in those particular words,but I figure i would rather wait

till

> > after the holidays anyways there is a story in A.A. about a

> > transplant patient,she said she had to see a psychiatrist first

> > also,O.K.Now here is where the big bad story started..... Had a

shrink,

> > (depressed alcoholic),was presribed anti-depressents (never worked

> > and have tried them all)had some blood work done ,found out i had

> > HepC,my infectious disease dr. told me i couldnt take the

interfuron

> > because it could cause me to committ suicide-long story short,I

quit

> > taking anti-depressents, and started drinking again on and off

until

> > last May when I almost died.So now I'm going to my meetings,I have

> > found me another psychiatrist, and i am doing everything in my

power

> > to be accepted but,now I'm worried about support,I have it but

will

> > they agree???I am the busy body caregiver in this family.I have

been

> > taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> > oxygen (at her house)my dad has diabetes,my sister is 37 and still

> > with us with down syndrom,a baby sister 31 whom still suffers

from a

> > crack addiction and just lost her baby 2 days ago,did I mention

the

> > partrich in a pear tree LOL!Ive got to much here going on to be

able

> > to do that too.As far as the transplant team I want to be as

honest

> > with them as possible and i know everyone will survive if i do

get a

> > transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> > was in I.C.u. in May and it took close to 4 months before I was of

> > any help to anyone,hey! and noone died:)Oh and last but not

least,I

> > too have genotype 1a HepC I didnt know that it was the hardest to

> > treat,wich leads me to a new slew of questions... .would they try

> > treatment first? I heard it can ruin my new liver quicker than

this

> > one.I'm so glad to have all of you,have no fear wendy will

> > appear,with new questions. Love all of you! HI ELSIE:) god

> > bless,

> >

> >

[Guest guest]

Remember I haven't gone as far yet

Lyncia

 

In life family and friends take us on all kinds of adventures, God helps us

choose our path....Enjoy your journey!

Subject: Re: wendy

To: livercirrhosissupport

Date: Wednesday, December 10, 2008, 8:10 PM

Hi ,

I know you addressed this to Lyncia, but I thought I would put my two

cents in since I had a transplant.

When you have the transplant evaluation, it would be good for your

husband and any other family members go with you for support. The

transplant team just wants to know that you will be cared for after

the transplant because you won't do anything but heal up, do some

walking, showering, eating, etc. My husband had to help me get up

off the toilet at times for a little while after the transplant, and

help me up the couple of steps to get into our house. He also had to

drive me to labs three times a week. You are not supposed to drive

yourself for quite a while after having a transplant.. .not until you

get off of the pain medicine anyway. If my husband couldn't drive

me, my dad or my brother would. You need someone to cook and clean

for you since you won't be able to do it, and you can't lift more

than 5 pounds for a while too. My husband helped me put lotion on,

helped me do leg excercises that I was supposed to do daily, put

those socks on that help squeeze the excess water out of the legs (I

can't remember what they are called), and whatever I needed to have

done. My parents came over to clean the house once a week since my

husband was working and taking care of me at night. I spent the days

while my husband was at work at my parent's house for a few weeks too.

It sounds like your husband will do a fine job sincee he has helped

you before. That's all they need to know that you will be cared for

at home.

I hope that helps to ease your mind a bit.

Penny

>

> From: italybell69 <italybell69@ yahoo.com>

> Subject: wendy

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Wednesday, December 10, 2008, 4:52 PM

>

> Hello everyone my step children took over my p.c,so I havent posted

> for a minute.As I lay awake with my everynight insomnia,I think of

> all sorts of things to ask certain people and then I get mixed up

on

> who has dealt with " this & that " and then forget details of " who is

> who " ...first off the list,Bobby,somehow I had the impresion you to

> were waiting on a transplant.I was reading your posts on pain

meds.I

> have been wanting to maybe ask some personal questions about

> Ardis,you told me that she wasnt recomended for a transplant from

the

> team,because if I can recall they said she needed a better support

> system? hmm... maybe I'm wrong,but it has had me thinking overtime

if

> thats possible.I havent been to the Cleveland Clinic yet,they are

> dragging there feet,Abijann told me to light a fire under there

ass's

> not in those particular words,but I figure i would rather wait till

> after the holidays anyways there is a story in A.A. about a

> transplant patient,she said she had to see a psychiatrist first

> also,O.K.Now here is where the big bad story started..... Had a

shrink,

> (depressed alcoholic),was presribed anti-depressents (never worked

> and have tried them all)had some blood work done ,found out i had

> HepC,my infectious disease dr. told me i couldnt take the

interfuron

> because it could cause me to committ suicide-long story short,I

quit

> taking anti-depressents, and started drinking again on and off

until

> last May when I almost died.So now I'm going to my meetings,I have

> found me another psychiatrist, and i am doing everything in my

power

> to be accepted but,now I'm worried about support,I have it but will

> they agree???I am the busy body caregiver in this family.I have

been

> taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> oxygen (at her house)my dad has diabetes,my sister is 37 and still

> with us with down syndrom,a baby sister 31 whom still suffers from

a

> crack addiction and just lost her baby 2 days ago,did I mention the

> partrich in a pear tree LOL!Ive got to much here going on to be

able

> to do that too.As far as the transplant team I want to be as honest

> with them as possible and i know everyone will survive if i do get

a

> transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> was in I.C.u. in May and it took close to 4 months before I was of

> any help to anyone,hey! and noone died:)Oh and last but not least,I

> too have genotype 1a HepC I didnt know that it was the hardest to

> treat,wich leads me to a new slew of questions... .would they try

> treatment first? I heard it can ruin my new liver quicker than this

> one.I'm so glad to have all of you,have no fear wendy will

> appear,with new questions. Love all of you! HI ELSIE:) god

> bless,

>

>

[Guest guest]

you know i really don't understand as to why my husband did not get treatment

....all i understood was it would have been too much on him...but given the

circumstance he has really done well in comparison...sandra

________________________________

To: livercirrhosissupport

Sent: Wednesday, December 10, 2008 9:59:32 PM

Subject: Re: wendy

Hi ,

Yes, I have Hepatitis C. I did not do treatment before the

transplant. I never wanted to because I was afraid of the side

effects of treatment, and I thought my liver would last forever. I

was wrong, and so far the side effects of the treatment are almost

non existant. I'm doing treatment now. They wanted me to start

treatment before the transplant, but by that time, I was too sick to

handle treatment. They like you to do the treatment before the

transplant, but you still have to do the treatment after the

transplant because it comes back quickly after transplant.

The treatment for Hep C should be done long before you have cirrhosis

unless, of course, you don't know you have Hep C until you have

cirrhosis already. I knew I had Hep C for many years before I had

cirrhosis, but I never did the treatment. I will tell everyone now

that they really should do the treatment before the liver gets to the

point of cirrhosis.

Your doctor should refer you for a transplant as soon as you start

having cirrhosis.

Penny

> >

> > From: italybell69 <italybell69@ yahoo.com>

> > Subject: wendy

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Date: Wednesday, December 10, 2008, 4:52 PM

> >

> > Hello everyone my step children took over my p.c,so I havent

posted

> > for a minute.As I lay awake with my everynight insomnia,I think

of

> > all sorts of things to ask certain people and then I get mixed up

> on

> > who has dealt with " this & that " and then forget details of " who

is

> > who " ...first off the list,Bobby,somehow I had the impresion you

to

> > were waiting on a transplant.I was reading your posts on pain

> meds.I

> > have been wanting to maybe ask some personal questions about

> > Ardis,you told me that she wasnt recomended for a transplant from

> the

> > team,because if I can recall they said she needed a better

support

> > system? hmm... maybe I'm wrong,but it has had me thinking

overtime

> if

> > thats possible.I havent been to the Cleveland Clinic yet,they are

> > dragging there feet,Abijann told me to light a fire under there

> ass's

> > not in those particular words,but I figure i would rather wait

till

> > after the holidays anyways there is a story in A.A. about a

> > transplant patient,she said she had to see a psychiatrist first

> > also,O.K.Now here is where the big bad story started..... Had a

> shrink,

> > (depressed alcoholic),was presribed anti-depressents (never

worked

> > and have tried them all)had some blood work done ,found out i had

> > HepC,my infectious disease dr. told me i couldnt take the

> interfuron

> > because it could cause me to committ suicide-long story short,I

> quit

> > taking anti-depressents, and started drinking again on and off

> until

> > last May when I almost died.So now I'm going to my meetings,I

have

> > found me another psychiatrist, and i am doing everything in my

> power

> > to be accepted but,now I'm worried about support,I have it but

will

> > they agree???I am the busy body caregiver in this family.I have

> been

> > taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> > oxygen (at her house)my dad has diabetes,my sister is 37 and

still

> > with us with down syndrom,a baby sister 31 whom still suffers

from

> a

> > crack addiction and just lost her baby 2 days ago,did I mention

the

> > partrich in a pear tree LOL!Ive got to much here going on to be

> able

> > to do that too.As far as the transplant team I want to be as

honest

> > with them as possible and i know everyone will survive if i do

get

> a

> > transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when

i

> > was in I.C.u. in May and it took close to 4 months before I was

of

> > any help to anyone,hey! and noone died:)Oh and last but not

least,I

> > too have genotype 1a HepC I didnt know that it was the hardest to

> > treat,wich leads me to a new slew of questions... .would they try

> > treatment first? I heard it can ruin my new liver quicker than

this

> > one.I'm so glad to have all of you,have no fear wendy will

> > appear,with new questions. Love all of you! HI ELSIE:) god

> > bless,

> >

> >

[Guest guest]

Bobby - I can undertstand why they wouldn't send a transplant patient to a

nursing home. I spent two weeks in one after my triple bypass because the

doctors said I wasn't making progress in walking fast enough. It was

supposed to be one of the best in Phoenix, and it was more like a holding

tank and a waiting line. You needed the holding tank if you ate the food

they sent around to the rooms, and the waiting line was for getting help to

go to the bathroom and to get your pain meds. Other meds they woke you up

in the middle of the night to give you, but pain pills you had to wait for.

And physical therapy was only once a day, couldn't split it in two sessions

if one was too much at a time. And a good part of that physical therapy

which I refused to do was to sit in a wheel chair for increasingly long

periods of time with nothing to do until you could do it for an hour. That

was their criteria for letting you go home.

I made my comment because I knew you had done so much for her, hadn't put

together Sharon's and your problems being about the same time. Insurance

should really cover some help for that first period when you get home, it is

as related to the medical problem as much as the hospitalizations and

doctor's visits before. Years ago when my grandmother was in her 60s,

(remember, I am 65, so that was a long time ago) she broke her leg in a car

accident. She was in a hospital bed at home for months with a personal

nurse and the insurance paid for it. After some discussion, they even let

my cousin be her nurse as she was a qualified RN. And she had to give up a

job where she was being paid to take care of our grandmother. Now, you go

in the hospital, they send you out in a shape worse than you might have gone

in, and the insurance doesn't cover home care. Crazy Jan H

On Wed, Dec 10, 2008 at 7:42 PM, Bob Aragon wrote:

> It was the nursing home. They consider it way to dirty and the care not

> specific enough. If we could have took her in again, it might have worked

> out, but she was so allergic to my cats, she could only really be in here

> for less than 30 minutes at a time. We even discussed doing a

> decontamination of the house, but would have to have gotten rid of our cats.

> It just wasnt to be. I wished her real family would have been more

> reasonable.

>

> long life, old age, everything good-Apache prayer

>

> ________________________________

> From: Jan Holman <janholman@... <janholman%40gmail.com>>

> To:

livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> Sent: Wednesday, December 10, 2008 5:33:59 PM

> Subject: Re: wendy

>

> It doesn't make sense they would use that reason for Ardis with all the

> support she got for Bobby and Sharon. How much more can you give? Jan H

> On Wed, Dec 10, 2008 at 5:30 PM, Lyncia <lmlangdonyahoo (DOT) com> wrote:

>

> > FYI I was told that I could not have a transplant without a caregiver

> > and the promise of help from my family...... .I so luckly that I heve

> them.

> >

> > Lyncia

> >

> > In life family and friends take us on all kinds of adventures, God helps

> us

> > choose our path....Enjoy your journey!

> >

> >

> >

> > From: italybell69 <italybell69@ yahoo.com <italybell69% 40yahoo.com> >

> > Subject: wendy

> > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp

> ort%40yahoogroup s.com>

>

> > Date: Wednesday, December 10, 2008, 4:52 PM

> >

> >

> > Hello everyone my step children took over my p.c,so I havent posted

> > for a minute.As I lay awake with my everynight insomnia,I think of

> > all sorts of things to ask certain people and then I get mixed up on

> > who has dealt with " this & that " and then forget details of " who is

> > who " ...first off the list,Bobby,somehow I had the impresion you to

> > were waiting on a transplant.I was reading your posts on pain meds.I

> > have been wanting to maybe ask some personal questions about

> > Ardis,you told me that she wasnt recomended for a transplant from the

> > team,because if I can recall they said she needed a better support

> > system? hmm... maybe I'm wrong,but it has had me thinking overtime if

> > thats possible.I havent been to the Cleveland Clinic yet,they are

> > dragging there feet,Abijann told me to light a fire under there ass's

> > not in those particular words,but I figure i would rather wait till

> > after the holidays anyways there is a story in A.A. about a

> > transplant patient,she said she had to see a psychiatrist first

> > also,O.K.Now here is where the big bad story started..... Had a shrink,

> > (depressed alcoholic),was presribed anti-depressents (never worked

> > and have tried them all)had some blood work done ,found out i had

> > HepC,my infectious disease dr. told me i couldnt take the interfuron

> > because it could cause me to committ suicide-long story short,I quit

> > taking anti-depressents, and started drinking again on and off until

> > last May when I almost died.So now I'm going to my meetings,I have

> > found me another psychiatrist, and i am doing everything in my power

> > to be accepted but,now I'm worried about support,I have it but will

> > they agree???I am the busy body caregiver in this family.I have been

> > taking care of his fateher for 10 yrs of Alzheimers,my mom is on

> > oxygen (at her house)my dad has diabetes,my sister is 37 and still

> > with us with down syndrom,a baby sister 31 whom still suffers from a

> > crack addiction and just lost her baby 2 days ago,did I mention the

> > partrich in a pear tree LOL!Ive got to much here going on to be able

> > to do that too.As far as the transplant team I want to be as honest

> > with them as possible and i know everyone will survive if i do get a

> > transplant,my boyfriend Bob (of 12 yrs)handled things so,so,when i

> > was in I.C.u. in May and it took close to 4 months before I was of

> > any help to anyone,hey! and noone died:)Oh and last but not least,I

> > too have genotype 1a HepC I didnt know that it was the hardest to

> > treat,wich leads me to a new slew of questions... .would they try

> > treatment first? I heard it can ruin my new liver quicker than this

> > one.I'm so glad to have all of you,have no fear wendy will

> > appear,with new questions. Love all of you! HI ELSIE:) god

> > bless,

> >

> >