Re: Rich Rich Rich

[Guest guest]

Hi, Tony.

Thanks for sharing your thoughts. I'm sorry that I'm such a burr in

your side.

I realize that you may not agree with me, but I really do think

there are quite a few subsets under the banner of CFS. If you are

tracking the Experimental group, you may be seeing posts from some

who are trying the DAN! autism treatments to lift the blocks in

their sulfur metabolism and get their glutathione back up, and are

experiencing benefit. This approach really does seem to be helping

a subset.

Concerning your own case, I have to confess that I don't know the

details of it. I don't think I've read a post in which you

described your own situation. I am interested, however.

Rich

>

> I read with ENTHUSIASM the post from erikmold warrior to your

> continued line of thinking. OUR DOCTORS TELL US EVERYTHING " S OK so

> along you come and reinforce this line and expand on what the

> literature claims our disease is and then you add your

interpretation

> of it and we end up with the glutathione story again.Can you

please

> shift where your coming from by getting a better understanding of

the

> patient so that I can read something more appropriate for what my

> disease really is. I mainly enjoy what you do, but it's coming out

of

> the wrong ball park.

> Sorry I posted this here- I have been thrown of experimental.

> tony

>

[Guest guest]

Tony,

Right on. Some of the best research on the etiology has come from docs

with disease. Unless you have lived it, it's hard to understand.

ps. sorry to hear about experimental.

>

> I read with ENTHUSIASM the post from erikmold warrior to your

> continued line of thinking. OUR DOCTORS TELL US EVERYTHING " S OK so

> along you come and reinforce this line and expand on what the

> literature claims our disease is and then you add your interpretation

> of it and we end up with the glutathione story again.Can you please

> shift where your coming from by getting a better understanding of the

> patient so that I can read something more appropriate for what my

> disease really is. I mainly enjoy what you do, but it's coming out of

> the wrong ball park.

> Sorry I posted this here- I have been thrown of experimental.

> tony

>

[Guest guest]

Don't worry about experimental- I got turfed having fun with a

friend that got viewed as bullying by everyone.

That is my frustration with rich, he believes that we are actually

on the same page as healthy folk-TONY BELIEVES THAT WHEN YOU SEND

BLOOD OFF TO THE LAB THE LAB IS ONLY INTERPRETING A VERY SMALL PART

OF THE EQUATION, THE SEWER THAT MAKES UP YOUR BLOOD IS COMPLETELY

IGNORED.I needed to understand why this send it off to the lab was

failing me so I started getting my ass involved in understanding why

this was so.To cut a long story short I befriended a female highly

qualified senior microbiologist that was part owner of a path lab

that enabled me to ask questions from the haemotologists,

scientists, and anyone on staff(what a buzz)..The end result is our

blood is like shit yet we just get whats on the menu and keeps the

buck rolling along not REAL INTERPRETATIONS.

> >

> > I read with ENTHUSIASM the post from erikmold warrior to your

> > continued line of thinking. OUR DOCTORS TELL US EVERYTHING " S OK

so

> > along you come and reinforce this line and expand on what the

> > literature claims our disease is and then you add your

interpretation

> > of it and we end up with the glutathione story again.Can you

please

> > shift where your coming from by getting a better understanding

of the

> > patient so that I can read something more appropriate for what

my

> > disease really is. I mainly enjoy what you do, but it's coming

out of

> > the wrong ball park.

> > Sorry I posted this here- I have been thrown of experimental.

> > tony

> >

>