Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 Hi everyone! I called the number Kathy led us to at the National Institute for Health: 1-. This is the direct line to the UNDIAGNOSED DISEASES PROGRAM. She collected my info, asked questions. Kathy is right… no matter how full your plate is, we need to call or we'll never get a cure. We all must call (or at least those of us who are not minors need to call). It took just a few minutes to give her my info. They do ask for a medical referral but here me out…. Give her the info of a doctor you have. If they do not refer you, SO WHAT! You don't have to actually go anywhere or participate in any studies. Just the fact that they get a bunch of people calling with the same problem might catch their eye. PLEASE CALL! I told her about Dr. 's website and our group. CALL NOW!! 1- - Thanks Kathy!! Kim Quote Link to comment Share on other sites More sharing options...
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