Re: disability claim-how to

December 15, 2008

Hi, Barby. This is what I know about Social Security Disability. You can get

this even if you are not retirement age. In order to qualify, you have to

demonstrate that your liver disease is causing a day to day inability to work.

The government's own criteria is so strict, that to qualify by your lab tests,

you would be dead. here are those numbers-

http://www.thedisabilityexpert.com/Liver%20Disease%20and%20Applications%20for%20\

Social%20Security%20and%20Supplemental%20Security%20Income%20Disability%20Benefi\

ts.htm

The

Social Security Administration evaluates all chronic liver disease the

same way whether it is caused by cirrhosis, hepatitis, or some other

cause. Liver disease including hepatitis and cirrhosis is a common

reason for applying for Social Security and/or Supplemental Security

Income disability benefits. Many of these cases are denied. The

people who are found disabled due to liver disease, including hepatitis

and cirrhosis, are very, very ill. There are a number of ways that a

person with chronic liver disease including hepatitis and cirrhosis can

be found disabled.

liver, liver, liver, liver, liver, liver, liver, liver, liver, liver, liver

If a person with chronic liver disease, including hepatitis or cirrhosis,

has a history of a massive hemorrhage due to esophageal varices, then the

person will be considered disabled for 3 years after the last massive

hemorrhage. After the 3 years are over, the person's Social Security and/or

Supplemental Security Income disability case will be reviewed to see if the

person is still disabled.

liver, liver, liver, liver, liver, liver, liver, liver, liver, liver, liver

A person with chronic liver disease, including hepatitis and

cirrhosis, will considered disabled for 3 years after a shunt operation

for esophageal varices. After the 3 years are over, the person's

Social Security and/or Supplemental Security Income disability case

will be reviewed to see if the person is still disabled.

liver, liver, liver, liver, liver, liver, liver, liver, liver, liver, liver,

liver

A person with chronic liver disease, including hepatitis and

cirrhosis, will be found disabled if he or she has a serum bilirubin of

2.5 mg. per deciliter or greater persisting for at least 5 months upon

repeated examination.

liver, liver, liver, liver, liver, liver, liver, liver, liver, liver, liver

A person with chronic liver disease, including hepatitis and cirrhosis,

will be found disabled if he or she has ascites, not attributable to other

causes, demonstrated by abdominal paracentesis or associated with persistent

hypoablbuminemia of 3.0 gm per deciliter or less.

liver, liver, liver, liver, liver, liver liver, liver, liver, liver, liver,

liver

If a person with chronic liver disease, including hepatitis and cirrhosis,

has hepatic encephalopathy; then the resulting mental limitations are evaluated

under the Social Security Administration¢s regulations for evaluating mental

conditions.

liver, hepatitis, cirrhosis, liver, hepatitis, hepatitis, cirrhosis

A person with chronic liver disease, including hepatitis and cirrrhosis,

will be found disabled if his or her chronic liver disease is confirmed by

liver biopsy and the person has at least one of the following:

· Ascites not attributable to other causes, recurrent or persisting for

at least 3 months, demonstrated by abdominal paracentesis or associated with

persistent hypoalbuminemia of 3.0 gm. per deciliter (100 ml.) or less

· Serum bilirubin of 2.5 mg. per deciliter (100 ml.) or greater on

repeated examinations for at least 3 months

· Hepatic cell necrosis or inflammation, persisting for at least 3

months, documented by repeated abnormalities of prothrombin time and enzymes

indicative of hepatic dysfunction BUT- You can be found to EQUAL these

criteria, or even be found disabaled without any of them, if you have a needle

biopsy, and SYMPTOMS. Symptoms are hard to prove. For instance- pain. My

lawyer went to the judge and told him, " you honor, my client has terrible

significant chronic pain. Now , I know this court sees this complaint often, but

not often does it see the same patient being treated by a pain doctor, and with

opioid medications, which are not freely given out, I argue that his symptom of

pain is more credible than someone who would report pain as a symptom, but yet

receive no treatment for it. "

In a case like Sharon's, she has a provable condition, and three surgeries to

try to fix it, but on her application we were focused on HOW it affects her. HOW

it makes her not able to work. HOW she is dizzy all the time. Her application

can be summed up like this-

1-I've got one continuous HEADACHE since 2002, which has not gone away,

2-I'm nauseated

3-I'm dizzy

4-my joints hurt

5-I can't stay awake in the daytime,

6-I can't sleep at night.

7-I can't remember words and even things, times, people, and places,

8-I my hands hurt

period.

it does mention her medical condition, but does not focus on it. He condition

looks like this-

Ehlers Danlose syndrome, Chiari malformation, Basilar impression, platybasia,

retroflexed odontoid, scolioisis, tethered cord syndrome

[postural-orthostatic-tachycardia-syndrome(not complete diagnosis yet)]

The SSA will not know what all that means, and will not care. They want to know

what is causing this woman to not be able to work.

--------------------------------------------------------------------------------\

-----------

My case looked like this=

I have liver disease which causes me chronic pain, nausea, shortness of breath,

mental confusion, day-night reversal,

fatigue, exhaustion.

And to aswer your specific question, yes , cirrhosis is a terminal illness as

defined by the SSA and will expedite your case, says my attorney.

Good luck. Love, Bobby

life, old age, everything good-Apache prayer

________________________________

To: livercirrhosissupport

Sent: Monday, December 15, 2008 7:37:29 AM

Subject: Re: Sharon's disability claim-approved

hey bobby this caught my eye, what do you mean ?you got your

disability faster because of the cirrhosis or because you had a

laywer? bobby glenn really wants to get his started but we are not

sure how to live while we wait, plus i went to the site and i dont

think his #s are bad enough yet to sign up.he goes to the dr. for the

hep. today to see about treatment again ,were as hes been off the

meds. hopefully he can get started but i am here to tell you the poor

guy suffers alot some days more than others.hes been laid off till

after the first of the yr. when work picks back up so he thinks now

is the time while he has umeployment coming in. hopefully the dr. can

help advise us today too, but truthfully i trust you more than him

lol.much love barby

> >

> > Thank you all for your many prayers. Sharon has received the

answer

> from her long term disability insurance company. The answer is yes,

> approved. For those of you who are new here, my wife has Chiari

> malformation, and Ehlers Danlos syndrome. EDS is the underlying

cause

> of the Chiari, but Chiari is a condition where part of the brain

> herniates into the spinal canal. The hole in your head is called

> the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum

> had to be enlarged in June of 2007. She had a surgery to disconnect

> her spinal cord from it's ligament in May, 2008. There was a total

of

> 3 surgeries in 3 years. They did not have the desired effect. The

> posterior fossa decompression, as the 2006 surgery was called was

> made into a movie. The movie is here-

> >

> > part one- http://www.youtube. com/watch? v=6xZXEjliyYY

> >

> > part two- http://www.youtube. com/watch? v=AK-

> VJDlGyto & feature= related

> >

> > part three- http://www.youtube. com/watch?

> v=KELl6FevEbo & feature=related

> >

> > She says that when your husband has end stage liver disease , and

> that is a minor problem, your life is pretty screwed up.

> > We had already started packing our house. She was supposed to get

> this in June.

> > We can breath a temporary sigh of relief. Thank you all for your

> prayers and support. Love, Bobby

> >

> > long life, old age, everything good-Apache prayer

> >

December 15, 2008

thank you bobby yes it helps,we went to the hep dr. today bobby glen

goes to a nuerologist as soon as they call us with an appt. hes

concerned with his dizzy spells and what his job consists of working

of ladders, he said we will need this to apply for disability which

he suggests, he is contacting the dr. at vandy to see how to proceed

with treatment ,he too doesnt understand the illect drug crap, we

need to find a pain dr. in our area also he will be referring us i

guess, bobby glenn will have a scope for bleeds and an ultra sound on

friday, he was concerned with b.g. waiting so long to come back to

him but understood the going back and forth with doing anything as

aposed to doing nothing.he says b.g will need a new liver no

questions asked, he also said the hep. treatment could decompensate

him so there for hes consulting with the vandy dr. as to that also.

its all so hard to understand. but at leasdt we are moving forward

again ,till b.g changes his mind again. he was explaining to the dr.

how the med. bills are piling up and hes laid off right now, so

hopefully he will help us with the disability ins. phew its alot to

remember so tonight i start my book,i am not sure how to make one

except to right everything down every dr. says. again thank you so

much ,much love barby

> > >

> > > Thank you all for your many prayers. Sharon has received the

> answer

> > from her long term disability insurance company. The answer is

yes,

> > approved. For those of you who are new here, my wife has Chiari

> > malformation, and Ehlers Danlos syndrome. EDS is the underlying

> cause

> > of the Chiari, but Chiari is a condition where part of the brain

> > herniates into the spinal canal. The hole in your head is called

> > the " foramen magnum " , (Latin for " big hole " ) and her foramen

magnum

> > had to be enlarged in June of 2007. She had a surgery to

disconnect

> > her spinal cord from it's ligament in May, 2008. There was a

total

> of

> > 3 surgeries in 3 years. They did not have the desired effect. The

> > posterior fossa decompression, as the 2006 surgery was called was

> > made into a movie. The movie is here-

> > >

> > > part one- http://www.youtube. com/watch? v=6xZXEjliyYY

> > >

> > > part two- http://www.youtube. com/watch? v=AK-

> > VJDlGyto & feature= related

> > >

> > > part three- http://www.youtube. com/watch?

> > v=KELl6FevEbo & feature=related

> > >

> > > She says that when your husband has end stage liver disease ,

and

> > that is a minor problem, your life is pretty screwed up.

> > > We had already started packing our house. She was supposed to

get

> > this in June.

> > > We can breath a temporary sigh of relief. Thank you all for

your

> > prayers and support. Love, Bobby

> > >

> > > long life, old age, everything good-Apache prayer

> > >

December 16, 2008

thank you girl your words always linger in me when i need them:)i

know things are gonna get tough but thankfully we have weathered many

storms and the good Lord will see us thru this one too.i will love

this man till the day they cover me up and even in your heavenly

life.drastic times are gonna call for drastic measures for sure, i

will do what ever i have to to keep us going believe that, bobby glen

has worked hard all his life ,hes sick ,he desires a break and good

med. care that wont bankrupt us.i cant worry anymore i just have to

do it, bite the bullet and move forward on this, so theres no turning

back now, we cant .i love you girl thanks for being such a great

friend whom i love and respect, one that never judges ,just lifts us

up ,thank you ,all my love barby

> > > >

> > > > Thank you all for your many prayers. Sharon has received the

> > answer

> > > from her long term disability insurance company. The answer is

> yes,

> > > approved. For those of you who are new here, my wife has Chiari

> > > malformation, and Ehlers Danlos syndrome. EDS is the underlying

> > cause

> > > of the Chiari, but Chiari is a condition where part of the

brain

> > > herniates into the spinal canal. The hole in your head is

called

> > > the " foramen magnum " , (Latin for " big hole " ) and her foramen

> magnum

> > > had to be enlarged in June of 2007. She had a surgery to

> disconnect

> > > her spinal cord from it's ligament in May, 2008. There was a

> total

> > of

> > > 3 surgeries in 3 years. They did not have the desired effect.

The

> > > posterior fossa decompression, as the 2006 surgery was called

was

> > > made into a movie. The movie is here-

> > > >

> > > > part one- http://www.youtube. com/watch? v=6xZXEjliyYY

> > > >

> > > > part two- http://www.youtube. com/watch? v=AK-

> > > VJDlGyto & feature= related

> > > >

> > > > part three- http://www.youtube. com/watch?

> > > v=KELl6FevEbo & feature=related

> > > >

> > > > She says that when your husband has end stage liver disease ,

> and

> > > that is a minor problem, your life is pretty screwed up.

> > > > We had already started packing our house. She was supposed to

> get

> > > this in June.

> > > > We can breath a temporary sigh of relief. Thank you all for

> your

> > > prayers and support. Love, Bobby

> > > >

> > > > long life, old age, everything good-Apache prayer

> > > >

December 16, 2008

will do bobby, i know it seems like we tell the dr. something and the

next appt. he acts like its the first he heard of it, thats why i

taped the vandy dr. but the hep. dr wont let me so i am gonna have to

write down eveything we say in the appts? so thats why bobby glens

side is hurting ,his spleen?i think the ultra sound is for that, ok i

am just gonna say it, I DO NOT KNOW WHAT THE HELL I AM DOING, OR HOW

TO DO IT, i need help with how to keep records i remember someone

saying the kept a book diane sandi i cant remember. i know to take

all his tests to every appt. but i know bobby glenn felt odd

yesterday reading his list of aches pains complications off to the

dr. ,the dr. had a strange look on his face but every time i would

try and explain it he would just look back at b.g and ask him another

question.his memory has gotten bad so we wrote it all down but it

came of as rehearsed and cry babish once we was in there. ok i am

fretting for no reason ,the appt. went better than the others and i

cant wait to see about the bleeds and the ultra sound, he will go to

the urologist on jan 22, unless they have a cancelation ,then we can

go earlier.he will get vaccinated next week for hep a and b were as

he has markers for both.after all that we will do what ever they do

to check for liver cancer ,he will have to do this every 6 months

huh.ok rambling any advise will be appreciated as it always is.

phewwwww what would i do without my peeps!!!much love babry

> > > >

> > > > Thank you all for your many prayers. Sharon has received the

> > answer

> > > from her long term disability insurance company. The answer is

> yes,

> > > approved. For those of you who are new here, my wife has Chiari

> > > malformation, and Ehlers Danlos syndrome. EDS is the underlying

> > cause

> > > of the Chiari, but Chiari is a condition where part of the

brain

> > > herniates into the spinal canal. The hole in your head is

called

> > > the " foramen magnum " , (Latin for " big hole " ) and her foramen

> magnum

> > > had to be enlarged in June of 2007. She had a surgery to

> disconnect

> > > her spinal cord from it's ligament in May, 2008. There was a

> total

> > of

> > > 3 surgeries in 3 years. They did not have the desired effect.

The

> > > posterior fossa decompression, as the 2006 surgery was called

was

> > > made into a movie. The movie is here-

> > > >

> > > > part one- http://www.youtube. com/watch? v=6xZXEjliyYY

> > > >

> > > > part two- http://www.youtube. com/watch? v=AK-

> > > VJDlGyto & feature= related

> > > >

> > > > part three- http://www.youtube. com/watch?

> > > v=KELl6FevEbo & feature=related

> > > >

> > > > She says that when your husband has end stage liver disease ,

> and

> > > that is a minor problem, your life is pretty screwed up.

> > > > We had already started packing our house. She was supposed to

> get

> > > this in June.

> > > > We can breath a temporary sigh of relief. Thank you all for

> your

> > > prayers and support. Love, Bobby

> > > >

> > > > long life, old age, everything good-Apache prayer

> > > >

December 16, 2008

ok gotcha girl ,why do the drs. think we are lying, isnt it our right

to recieve ssd when we have earned it paid it in and need it??? crazy

system just crazy

> > > >

> > > > Thank you all for your many prayers. Sharon has received the

> > answer

> > > from her long term disability insurance company. The answer is

> yes,

> > > approved. For those of you who are new here, my wife has Chiari

> > > malformation, and Ehlers Danlos syndrome. EDS is the underlying

> > cause

> > > of the Chiari, but Chiari is a condition where part of the

brain

> > > herniates into the spinal canal. The hole in your head is

called

> > > the " foramen magnum " , (Latin for " big hole " ) and her foramen

> magnum

> > > had to be enlarged in June of 2007. She had a surgery to

> disconnect

> > > her spinal cord from it's ligament in May, 2008. There was a

> total

> > of

> > > 3 surgeries in 3 years. They did not have the desired effect.

The

> > > posterior fossa decompression, as the 2006 surgery was called

was

> > > made into a movie. The movie is here-

> > > >

> > > > part one- http://www.youtube. com/watch? v=6xZXEjliyYY

> > > >

> > > > part two- http://www.youtube. com/watch? v=AK-

> > > VJDlGyto & feature= related

> > > >

> > > > part three- http://www.youtube. com/watch?

> > > v=KELl6FevEbo & feature=related

> > > >

> > > > She says that when your husband has end stage liver disease ,

> and

> > > that is a minor problem, your life is pretty screwed up.

> > > > We had already started packing our house. She was supposed to

> get

> > > this in June.

> > > > We can breath a temporary sigh of relief. Thank you all for

> your

> > > prayers and support. Love, Bobby

> > > >

> > > > long life, old age, everything good-Apache prayer

> > > >

December 16, 2008

whats that fools address diane i want to bi*** slap him for you!!!!!!

all the nerve he had!!!

> > > >

> > > > Thank you all for your many prayers. Sharon has received the

> > answer

> > > from her long term disability insurance company. The answer is

> yes,

> > > approved. For those of you who are new here, my wife has Chiari

> > > malformation, and Ehlers Danlos syndrome. EDS is the underlying

> > cause

> > > of the Chiari, but Chiari is a condition where part of the

brain

> > > herniates into the spinal canal. The hole in your head is

called

> > > the " foramen magnum " , (Latin for " big hole " ) and her foramen

> magnum

> > > had to be enlarged in June of 2007. She had a surgery to

> disconnect

> > > her spinal cord from it's ligament in May, 2008. There was a

> total

> > of

> > > 3 surgeries in 3 years. They did not have the desired effect.

The

> > > posterior fossa decompression, as the 2006 surgery was called

was

> > > made into a movie. The movie is here-

> > > >

> > > > part one- http://www.youtube. com/watch? v=6xZXEjliyYY

> > > >

> > > > part two- http://www.youtube. com/watch? v=AK-

> > > VJDlGyto & feature= related

> > > >

> > > > part three- http://www.youtube. com/watch?

> > > v=KELl6FevEbo & feature=related

> > > >

> > > > She says that when your husband has end stage liver disease ,

> and

> > > that is a minor problem, your life is pretty screwed up.

> > > > We had already started packing our house. She was supposed to

> get

> > > this in June.

> > > > We can breath a temporary sigh of relief. Thank you all for

> your

> > > prayers and support. Love, Bobby

> > > >

> > > > long life, old age, everything good-Apache prayer

> > > >

December 16, 2008

You, my dear, are going to be just fine! Nothing motivates a woman like going

to battle for her man or her family. You hang in there girl, life may knock us

down every now and again, but it can't keep us down! I love you and I'm always

here for you. Praying that you will never lose that awsome spirit and drive to

survive!

Love and hugs..........

Diane

________________________________

To: livercirrhosissupport

Sent: Tuesday, December 16, 2008 10:12:21 AM

Subject: Re: disability claim-how to