Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Oh, Bobby, this is good news! I'm so glad they approved her. She deserves it so much! Penny > > Thank you all for your many prayers. Sharon has received the answer from her long term disability insurance company. The answer is yes, approved. For those of you who are new here, my wife has Chiari malformation, and Ehlers Danlos syndrome. EDS is the underlying cause of the Chiari, but Chiari is a condition where part of the brain herniates into the spinal canal. The hole in your head is called the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum had to be enlarged in June of 2007. She had a surgery to disconnect her spinal cord from it's ligament in May, 2008. There was a total of 3 surgeries in 3 years. They did not have the desired effect. The posterior fossa decompression, as the 2006 surgery was called was made into a movie. The movie is here- > > part one- http://www.youtube.com/watch?v=6xZXEjliyYY > > part two- http://www.youtube.com/watch?v=AK- VJDlGyto & feature=related > > > part three- http://www.youtube.com/watch? v=KELl6FevEbo & feature=related > > She says that when your husband has end stage liver disease , and that is a minor problem, your life is pretty screwed up. > We had already started packing our house. She was supposed to get this in June. > We can breath a temporary sigh of relief. Thank you all for your prayers and support. Love, Bobby > > > > long life, old age, everything good-Apache prayer > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Bobby, I have just filed from mine.....Would it be okay to ask how long it took it to come through? lml Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Subject: Re: Sharon's disability claim-approved To: livercirrhosissupport Date: Sunday, December 14, 2008, 3:31 PM Oh, Bobby, this is good news! I'm so glad they approved her. She deserves it so much! Penny > > Thank you all for your many prayers. Sharon has received the answer from her long term disability insurance company. The answer is yes, approved. For those of you who are new here, my wife has Chiari malformation, and Ehlers Danlos syndrome. EDS is the underlying cause of the Chiari, but Chiari is a condition where part of the brain herniates into the spinal canal. The hole in your head is called the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum had to be enlarged in June of 2007. She had a surgery to disconnect her spinal cord from it's ligament in May, 2008. There was a total of 3 surgeries in 3 years. They did not have the desired effect. The posterior fossa decompression, as the 2006 surgery was called was made into a movie. The movie is here- > > part one- http://www.youtube. com/watch? v=6xZXEjliyYY > > part two- http://www.youtube. com/watch? v=AK- VJDlGyto & feature= related > > > part three- http://www.youtube. com/watch? v=KELl6FevEbo & feature=related > > She says that when your husband has end stage liver disease , and that is a minor problem, your life is pretty screwed up. > We had already started packing our house. She was supposed to get this in June. > We can breath a temporary sigh of relief. Thank you all for your prayers and support. Love, Bobby > > > > long life, old age, everything good-Apache prayer > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 I am so thankful! I know this is a huge relief for the both of you! I pray you can both relax a little bit now and maybe that will help you both to feel a little bit better. I just don't have words to say how happy this makes me! If any two people in this world deserve a break, it is the two of you! Love and hugs.......... Diane ________________________________ To: Cirrhosis Support group <livercirrhosissupport > Sent: Sunday, December 14, 2008 2:49:40 PM Subject: Sharon's disability claim-approved Thank you all for your many prayers. Sharon has received the answer from her long term disability insurance company. The answer is yes, approved. For those of you who are new here, my wife has Chiari malformation, and Ehlers Danlos syndrome. EDS is the underlying cause of the Chiari, but Chiari is a condition where part of the brain herniates into the spinal canal. The hole in your head is called the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum had to be enlarged in June of 2007. She had a surgery to disconnect her spinal cord from it's ligament in May, 2008. There was a total of 3 surgeries in 3 years. They did not have the desired effect. The posterior fossa decompression, as the 2006 surgery was called was made into a movie. The movie is here- part one- http://www.youtube. com/watch? v=6xZXEjliyYY part two- http://www.youtube. com/watch? v=AK-VJDlGyto & feature=related part three- http://www.youtube. com/watch? v=KELl6FevEbo & feature=related She says that when your husband has end stage liver disease , and that is a minor problem, your life is pretty screwed up. We had already started packing our house. She was supposed to get this in June. We can breath a temporary sigh of relief. Thank you all for your prayers and support. Love, Bobby long life, old age, everything good-Apache prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Christmas blessings come in a variety of ways! Congratulations to you and Sharon. That's one monkey you can throw off your back! Now unpack and enjoy the holidays. Much love, MaC _____________________ To: Cirrhosis Support group <livercirrhosissupport > Sent: Sunday, December 14, 2008 2:49:40 PM Subject: Sharon's disability claim-approved Thank you all for your many prayers. Sharon has received the answer from her long term disability insurance company. The answer is yes, approved. For those of you who are new here, my wife has Chiari malformation, and Ehlers Danlos syndrome. EDS is the underlying cause of the Chiari, but Chiari is a condition where part of the brain herniates into the spinal canal. The hole in your head is called the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum had to be enlarged in June of 2007. She had a surgery to disconnect her spinal cord from it's ligament in May, 2008. There was a total of 3 surgeries in 3 years. They did not have the desired effect. The posterior fossa decompression, as the 2006 surgery was called was made into a movie. The movie is here- part one- http://www.youtube. com/watch? v=6xZXEjliyYY part two- http://www.youtube. com/watch? v=AK-VJDlGyto & feature=related part three- http://www.youtube. com/watch? v=KELl6FevEbo & feature=related She says that when your husband has end stage liver disease , and that is a minor problem, your life is pretty screwed up. We had already started packing our house. She was supposed to get this in June. We can breath a temporary sigh of relief. Thank you all for your prayers and support. Love, Bobby long life, old age, everything good-Apache prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 6 months. But this was just her LTD policy from the city of Denver Public works, where she worked. She applied for SSDI, and when she is approved for that, she will be eligible for work related retirement. But our lawyer had warned us that hers could take up to three years. Mine was expedited because cirrhosis is considered a terminal illness. love, Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Sunday, December 14, 2008 2:43:26 PM Subject: Re: Re: Sharon's disability claim-approved Bobby, I have just filed from mine.....Would it be okay to ask how long it took it to come through? lml Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: preciouspenny3 <preciouspenny3@ yahoo.com> Subject: Re: Sharon's disability claim-approved To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Sunday, December 14, 2008, 3:31 PM Oh, Bobby, this is good news! I'm so glad they approved her. She deserves it so much! Penny > > Thank you all for your many prayers. Sharon has received the answer from her long term disability insurance company. The answer is yes, approved. For those of you who are new here, my wife has Chiari malformation, and Ehlers Danlos syndrome. EDS is the underlying cause of the Chiari, but Chiari is a condition where part of the brain herniates into the spinal canal. The hole in your head is called the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum had to be enlarged in June of 2007. She had a surgery to disconnect her spinal cord from it's ligament in May, 2008. There was a total of 3 surgeries in 3 years. They did not have the desired effect. The posterior fossa decompression, as the 2006 surgery was called was made into a movie. The movie is here- > > part one- http://www.youtube. com/watch? v=6xZXEjliyYY > > part two- http://www.youtube. com/watch? v=AK- VJDlGyto & feature= related > > > part three- http://www.youtube. com/watch? v=KELl6FevEbo & feature=related > > She says that when your husband has end stage liver disease , and that is a minor problem, your life is pretty screwed up. > We had already started packing our house. She was supposed to get this in June. > We can breath a temporary sigh of relief. Thank you all for your prayers and support. Love, Bobby > > > > long life, old age, everything good-Apache prayer > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Thanks, hun. long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Sunday, December 14, 2008 3:28:31 PM Subject: Re: Sharon's disability claim-approved I am so thankful! I know this is a huge relief for the both of you! I pray you can both relax a little bit now and maybe that will help you both to feel a little bit better. I just don't have words to say how happy this makes me! If any two people in this world deserve a break, it is the two of you! Love and hugs........ .. Diane ____________ _________ _________ __ From: Bob Aragon <robwalkingeagle@ yahoo.com> To: Cirrhosis Support group <livercirrhosissuppo rtyahoogroups (DOT) com> Sent: Sunday, December 14, 2008 2:49:40 PM Subject: Sharon's disability claim-approved Thank you all for your many prayers. Sharon has received the answer from her long term disability insurance company. The answer is yes, approved. For those of you who are new here, my wife has Chiari malformation, and Ehlers Danlos syndrome. EDS is the underlying cause of the Chiari, but Chiari is a condition where part of the brain herniates into the spinal canal. The hole in your head is called the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum had to be enlarged in June of 2007. She had a surgery to disconnect her spinal cord from it's ligament in May, 2008. There was a total of 3 surgeries in 3 years. They did not have the desired effect. The posterior fossa decompression, as the 2006 surgery was called was made into a movie. The movie is here- part one- http://www.youtube. com/watch? v=6xZXEjliyYY part two- http://www.youtube. com/watch? v=AK-VJDlGyto & feature=related part three- http://www.youtube. com/watch? v=KELl6FevEbo & feature=related She says that when your husband has end stage liver disease , and that is a minor problem, your life is pretty screwed up. We had already started packing our house. She was supposed to get this in June. We can breath a temporary sigh of relief. Thank you all for your prayers and support. Love, Bobby long life, old age, everything good-Apache prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 bobby and sharon i am so thrilled the ins. came thru, even though they took their sweet time.i hate how the system gives to the people {well some people} who are good liars and cut the throats of honest hard working all their lives people who really need help.but i am glad you wont lose your house:) what a great christmas gift huh.i know it stressed you all but take a deep breath and blow it out ,there now i feel better teehee, much love barby > > Thank you all for your many prayers. Sharon has received the answer from her long term disability insurance company. The answer is yes, approved. For those of you who are new here, my wife has Chiari malformation, and Ehlers Danlos syndrome. EDS is the underlying cause of the Chiari, but Chiari is a condition where part of the brain herniates into the spinal canal. The hole in your head is called the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum had to be enlarged in June of 2007. She had a surgery to disconnect her spinal cord from it's ligament in May, 2008. There was a total of 3 surgeries in 3 years. They did not have the desired effect. The posterior fossa decompression, as the 2006 surgery was called was made into a movie. The movie is here- > > part one- http://www.youtube.com/watch?v=6xZXEjliyYY > > part two- http://www.youtube.com/watch?v=AK- VJDlGyto & feature=related > > > part three- http://www.youtube.com/watch? v=KELl6FevEbo & feature=related > > She says that when your husband has end stage liver disease , and that is a minor problem, your life is pretty screwed up. > We had already started packing our house. She was supposed to get this in June. > We can breath a temporary sigh of relief. Thank you all for your prayers and support. Love, Bobby > > > > long life, old age, everything good-Apache prayer > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 hey bobby this caught my eye, what do you mean ?you got your disability faster because of the cirrhosis or because you had a laywer? bobby glenn really wants to get his started but we are not sure how to live while we wait, plus i went to the site and i dont think his #s are bad enough yet to sign up.he goes to the dr. for the hep. today to see about treatment again ,were as hes been off the meds. hopefully he can get started but i am here to tell you the poor guy suffers alot some days more than others.hes been laid off till after the first of the yr. when work picks back up so he thinks now is the time while he has umeployment coming in. hopefully the dr. can help advise us today too, but truthfully i trust you more than him lol.much love barby > > > > Thank you all for your many prayers. Sharon has received the answer > from her long term disability insurance company. The answer is yes, > approved. For those of you who are new here, my wife has Chiari > malformation, and Ehlers Danlos syndrome. EDS is the underlying cause > of the Chiari, but Chiari is a condition where part of the brain > herniates into the spinal canal. The hole in your head is called > the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum > had to be enlarged in June of 2007. She had a surgery to disconnect > her spinal cord from it's ligament in May, 2008. There was a total of > 3 surgeries in 3 years. They did not have the desired effect. The > posterior fossa decompression, as the 2006 surgery was called was > made into a movie. The movie is here- > > > > part one- http://www.youtube. com/watch? v=6xZXEjliyYY > > > > part two- http://www.youtube. com/watch? v=AK- > VJDlGyto & feature= related > > > > > > part three- http://www.youtube. com/watch? > v=KELl6FevEbo & feature=related > > > > She says that when your husband has end stage liver disease , and > that is a minor problem, your life is pretty screwed up. > > We had already started packing our house. She was supposed to get > this in June. > > We can breath a temporary sigh of relief. Thank you all for your > prayers and support. Love, Bobby > > > > > > > > long life, old age, everything good-Apache prayer > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.