Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Thank you all for your many prayers. Sharon has received the answer from her long term disability insurance company. The answer is yes, approved. For those of you who are new here, my wife has Chiari malformation, and Ehlers Danlos syndrome. EDS is the underlying cause of the Chiari, but Chiari is a condition where part of the brain herniates into the spinal canal. The hole in your head is called the " foramen magnum " , (Latin for " big hole " ) and her foramen magnum had to be enlarged in June of 2007. She had a surgery to disconnect her spinal cord from it's ligament in May, 2008. There was a total of 3 surgeries in 3 years. They did not have the desired effect. The posterior fossa decompression, as the 2006 surgery was called was made into a movie. The movie is here- part one- http://www.youtube.com/watch?v=6xZXEjliyYY part two- http://www.youtube.com/watch?v=AK-VJDlGyto & feature=related part three- http://www.youtube.com/watch?v=KELl6FevEbo & feature=related She says that when your husband has end stage liver disease , and that is a minor problem, your life is pretty screwed up. We had already started packing our house. She was supposed to get this in June. We can breath a temporary sigh of relief. Thank you all for your prayers and support. Love, Bobby long life, old age, everything good-Apache prayer Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.