Re: Bob

[Guest guest]

Bob,

I am 54 and was diagnosed with Polio after I was born. In those days they

didn't know much about spina bifida and many abnormalities including

spina bifida were diagnosed as Polio. My current Drs. are almost certain

that I never had Polio. Hope this gives you some insight.

Ardie

fdoyle@... wrote:

> Hi. My name is Bob. I am 62 years old and was born with spina

> bifida. My sister just turned 60 and was diagnosed with SB occulta.

> She is having lots of back pain and doing everything she can to avoid

> surgery including looking at alternative medicine and pain control.

>

> I wear a back brace for the last seven years to avoid surgery. There

> was some question as to whether I had polio as a child and I wonder if

> some of my current problems are not post polio syndrome.

>

>

[Guest guest]

Abijann, I did get mine in April of this last year. At the hearing in front of a

federal judge, he ruled me to have equaled the government's own listing. It is

not very commen. Usually , according to my lawyer, you have to argue your case,

and then they overrule the ssa's assessment. But in my case, because I had

complained to my family doctor fatigue as a symptom, I equaled because of my

sleep apnea, in combination with an organic finding of encephalopathy, and

hepatopulmonary syndrome. Do you want to know the kicker? My hepatopulmonary

syndrome would have gone undiagnosed, with out the knowledge that YOU gave me,

Abijann. You told me to report EVERYTHING, and omit NOTHING. and to keep

records, and organize yourself, and call the doctor on it when he goofs up in my

record. I did all of that. No one told me that my chest xray was abnormal, and

that the ER doc recommended a clinical correlation for unknown opacities on my

xray. I called and fought for a

referral to get my lungs checked out based on that xray. You taught me to be

thorough in this. The tests confirmed mild hepatopulmonary syndrome. But mild

when you add my weight loss, pain, sleep apnea, encephalopathy, and soreness,

and exaustion, and

the biggie, the NAUSEA, ITCHINg, low platelets, you get the picture. Thank you

, Abijann. Love, Bobby

long life, old age, everything good-Apache prayer

________________________________

From: abijann <no_reply >

To: livercirrhosissupport

Sent: Sunday, December 14, 2008 5:57:17 PM

Subject: Bob

Thank is so great that she has her disabiliy income now. I sure

hope you were able to get yours also.

Wish you both the best of everything.