My son is eight yrs old with BPP

[Guest guest]

Patty,

My son was diagnosed with BPP a couple of years ago. Up until then it was

just " non-specific white matter changes " . He was diagnosed with a seizure

disorder at about 1 yr. old; he has been on Tegretol since then and has had

no seizure activity in a long time. It's hard to know, though, all we ever

saw in seizure activity was a twitching of his eye. Had Wes had seizures

before? I hope you find a medication soon that will work for him.

When Sam was about 3 yrs old, after his testing at school, I, too, was told

that he was mild to moderately impaired cognitively, which I disagreed with.

Last year he was re-evaluated, and the school psychologist gave him a

non-verbal intelligence test and he scored in the low-normal range.

Wishing you well,

Christie, mom to Sam (8 yrs old, BPP)

> Seth's Birthday

> >Date: Sat, 26 Feb 2000 12:15:13 -0600

> >

> >

> >

> >Happy Birthday Seth! Have a great day!

> >

> >Christie & Sam (8 yrs old, BPP)

> >

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[Guest guest]

Christie - way to go Sam !! I know I'm heading down the exact same path.

They're already having problems scoring her accurately because of her being

non-verbal. I'm sure as she gets older, the testing will become more

accurate...

Thanks for the info. Us parents with younger kids with BPP really appreciate

it !!!!

Take care all,

- mommy of Crystal Aquielle - 23 mos. old - BPP & adorable...

[Guest guest]

Thanks for your message. As I said before he'll be tested next

month or May.

I'll mention this to the psychologist.

I also work with her as a professional.

Need to run, write later.

Patty

>

>Reply-To: polymicrogyriaonelist

>To: <polymicrogyriaonelist>

>Subject: RE: My son is eight yrs old with BPP

>Date: Tue, 29 Feb 2000 22:32:30 -0600

>

>

>

>Patty,

>

>My son was diagnosed with BPP a couple of years ago. Up until then it was

>just " non-specific white matter changes " . He was diagnosed with a seizure

>disorder at about 1 yr. old; he has been on Tegretol since then and has had

>no seizure activity in a long time. It's hard to know, though, all we ever

>saw in seizure activity was a twitching of his eye. Had Wes had seizures

>before? I hope you find a medication soon that will work for him.

>

>When Sam was about 3 yrs old, after his testing at school, I, too, was told

>that he was mild to moderately impaired cognitively, which I disagreed

>with.

>Last year he was re-evaluated, and the school psychologist gave him a

>non-verbal intelligence test and he scored in the low-normal range.

>

>Wishing you well,

>

>Christie, mom to Sam (8 yrs old, BPP)

>

> > Seth's Birthday

> > >Date: Sat, 26 Feb 2000 12:15:13 -0600

> > >

> > >

> > >

> > >Happy Birthday Seth! Have a great day!

> > >

> > >Christie & Sam (8 yrs old, BPP)

> > >

> >

> >------------------------------------------------------------------------

> > >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9%

> > >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

> > >http://click./1/915/2/_/594487/_/951588720/

> >

> >------------------------------------------------------------------------

> > >

> > >

> >

> > ______________________________________________________

> > Get Your Private, Free Email at http://www.hotmail.com

> >

> >

> > ------------------------------------------------------------------------

> > Why wait for a credit decision? Get one instantly! Apply for

> > the Capital One 9.9% Fixed APR Visa Platinum!

> > http://click./1/1896/2/_/594487/_/951661742/

> > ------------------------------------------------------------------------

> >

>

>

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[Guest guest]

Christie,

When they diagnosed him as low to normal did you find it changed your

benefits any. Teddy is currently getting respite care (someone comes to the

house to give me a break for a couple of hours) but if he ends up with to

high an IQ (I think above 70) we'd lose that. Funny how one the one hand I

want him to be as smart as his twin and on the other it's amazing to have

daycare I don't have to pay for!

Kim Raub (mother of Teddy - 2 1/2 w/diffuse PMG)

He uses sign language, runs around, rides a big wheel,

has trouble chewing & swallowing solid foods,

has 1 identical twin (without PMG), 2 big brothers

and a busy Daddy. We live in CT.

Seth's Birthday

> >Date: Sat, 26 Feb 2000 12:15:13 -0600

> >

> >

> >

> >Happy Birthday Seth! Have a great day!

> >

> >Christie & Sam (8 yrs old, BPP)

> >

> >------------------------------------------------------------------------

> >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9%

> >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

> >http://click./1/915/2/_/594487/_/951588720/

> >------------------------------------------------------------------------

> >

> >

>

> ______________________________________________________

> Get Your Private, Free Email at http://www.hotmail.com

>

>

> ------------------------------------------------------------------------

> Why wait for a credit decision? Get one instantly! Apply for

> the Capital One 9.9% Fixed APR Visa Platinum!

> http://click./1/1896/2/_/594487/_/951661742/

> ------------------------------------------------------------------------

>

------------------------------------------------------------------------

Show your style! Choose from 6 great card designs when you

apply for Capital One's 9.9% Fixed APR Visa Platinum.

http://click./1/1894/2/_/594487/_/951884934/

------------------------------------------------------------------------

[Guest guest]

Kim,

None of our benefits changed with the test results, but we aren't getting

respite care, so I don't really know about that.

Christie, mom to Sam (8yrs old, BPP)

> -----Original Message-----

> From: Raub Family

> Sent: Wednesday, March 01, 2000 10:45 PM

> When they diagnosed him as low to normal did you find it changed your

> benefits any.