help

[Guest guest]

has a son Zachery, born 9/27/99, with Warburg Syndrome (WWS) or

Muscle-Eye-Brain (MEB) Disease and is on the walkerwarburg list. said

I could forward this note to see if anyone can help or knows how to go about

helping her friend Pam. Pam does NOT have any internet access (no

computer). lives in Wisconsin, but I'm not sure where her friend

lives, but I assume it's Wisconsin, since they met in NICU. So, if anyone

has any info to help, please forward it directly to at tnzk@...

Thanks for helping.

help

Hi ! I wanted to say hi and see how all of you were doing-

including kitty. I also have a question to ask. You just seem to be the

right person to ask. We made friends with another couple from the NICU when

Zachery was born. Their son had a really tough start to life as well. I

think Tommy may have told you a little about them. Their son ny was born

dead and was revived 32 minutes after birth. His organs had shut down, had

a bleed in his lung, a small bleed in his brain and the doctors said some of

his brain liquified. But through all of this he came thru strong. At one

point the doctors met with Pam and Mike and wanted them to pull johnny off

the respirator, a week later ny was taken off the respirator because he

no longer needed the assistance. ny has some problems and the doctors

can't tell them what his outcome will be. He also needed a feeding tube .

All of this aside after weeks of being in the hospital-longer than Zach was,

he came home. Pam has kind of gone looney. She sleeps in the same room as

JOhnny because she is afraid he will stop breathing although he isn't on a

monitor. She is in some kind of depression. We talk and she still has a

hard time accepting that they didn't have the " perfect " baby. It doesn't

help when family members have told her that she can't take care of a special

needs child. And that other family members told her she shouldn't go back

to work. Pam never seems to go out of the house. She seems to resent what

has happened to them. Seeing pregnant women and women with babies makes her

depressed. She has even asked me " how do you have a normal baby " . Iknow

she needs professional help. Her doctor prescribed an antidepressant, pam

had it filled but won't take them. She has even mentioned she would be

better off if she killed herself. What I thought might help her to get help

is to find another mom for her to talk to who has felt this way. My

question is how do I find someone like this who would be able to call and

talk to her? Any kind of help would be greatly appreciated. I want to find

her some help before she does something horrible. Thank you for lending an

ear. Will talk to you soon.