Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I spoke with someone at the House Ear Institute in Los Angeles today. I asked her if she had ever heard of this condition or seen anyone who suffered from similar symptoms. She said she hadn't. I then told her about our group and how it started only 2 years ago and now there are over 800 members and growing quickly. I also told her we are starting a non profit foundation and a website. They do a variety of research at the House Ear Institute (go to there website and read--it's fascinating). I asked her how we would possibly get funding and research done. She said that the doctors/scientists there would have to be interested in researching it, and then they would fill out a proposal and send it to NIH (Nationaly Institute of Health) who would then be the ones to provide the funding through a grant. I then went on the website and emailed a Dr. Friedman who deals with hereditary ear issues. I don't know why I chose him other than he looked like he might take it seriously, and also I believe 4s is definitely genetic. I have heard amazing things about the House Ear Institute. Marsha-- I'm sure you probably know about them--is this the right avenue to pursue? I figure might as well try. Kathy Howe Quote Link to comment Share on other sites More sharing options...
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