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Randall, I still can't believe that you have all 3 conditions to deal with...that must be so painful and my heart goes out to you.This makes perfect sense and you were not "stupid" as a child, you were just a kid and not supposed to realize that maybe you had a problem. Can I ask you if you first noticed the triggers with your parents? Can I also ask you if you feel some resentment towards them for not realizing that you needed to go to a doctor sooner? I know I have a lot of resentment stored against my parents about many things and it only serves me to aggravate the condition. Though it seems like a difficult thing to just get over.Thanks for sharing your story :o)andraTo: Soundsensitivity Sent: Wednesday, December 10, 2008 2:05:00 AMSubject: andra's question about finely tuned ears

andra posted this question:"Do you guys think that maybe we're so used to listening to any noises that we've so finely tuned our ears so that we can hear things louder than most people? I guess that would make sense if the ear drum was a muscle, right!?!?!"I have an answer to it but to get to it, here is a little background on my situation. Maybe someone else from this group can relate. Here goes...I should have worn glasses when I was in grade school because I couldn't see what the teacher was writing on the the chalk board, even from the first row. For some reason I thought I saw like everyone else but I was just stupid. And for other reasons I won't go into here, I was not taken to see an eye doctor.So, I didn't wear glasses until my grades started failing in High School. At that point my brain went "click!" and I realized my vision must not be up to par with everyone

else's. After some convincing with my parents I was taken to an eye doctor.I found out that indeed I needed to wear glasses because I had Astigmatism, where I can see close up like a foot away, but anything beyond that is blurry.So... here is my answer to andra's question:The five human senses are Sight, Hearing, Taste, Smell & Touch.I believe that my Hearing compensated for having had bad eye Sight for so long in my life. And most likely the other senses too to some degree.I can remember being to places, like a museum for example, and not being able to see where my parents were at and having to listen for the sound of their voices. It wouldn't be until I was a few feet from them that I could tell they were my parents.This and other things in my life, plus I think a predisposed genetic factor caused the onslaught of 4S, Hyperacusis and Tinnitus to occur. I

believe all three of those have similar roots to them, mainly to do with a problem in my brain------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

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Hi andra,

I do feel resentment towards my parents. But I also feel love and

compassion towards them. Because at the core I am a loving and caring

person. I just can't put myself out there for others like I felt I was

supposed to growing up, because I'll end up hurting myself because of

the 4S and Hyperacusis.

My parents have done things for me to make up for the mistakes the made

with me. My mother has told me with what she knows now, if she could go

back she would have done things differently. I feel compassion towards

her for that, but it doesn't change that fact that what has been done

has been done and I still am dealing with the affects from it.

I was a late bed wetter as a kid and in trying to help me my parents

bought into a bell system that was suppose to train me to wake up when I

wet. Mind you I was a deep sleeper as a child. When I wet the bed a LOUD

bell would go off in my ear to wake me up. It was such a traumatizing

experience for me that my parents eventually stopped using it.

I CAN NOT STRESS ENOUGH TO PARENTS NOT TO DO THE BELL SYSTEM IF YOUR

CHILD WETS THE BED!!! There are other non-invasive ways to help your kid.

That is when my sensitivity to sounds, especially high pitched noises

like bells, became difficult for me to handle. Still at this point in my

life no one understood that I felt pain in my ears all the time.

My experience growing up is so hard for people to understand. Most

people just can't relate. I'm 31 now and am still working on trying to

undo the damage that has been done. Not easy.

Thanks for writing back.

-Randall

andra Ruiz wrote:

>

>

> Randall, I still can't believe that you have all 3 conditions to deal

> with...that must be so painful and my heart goes out to you.

>

> This makes perfect sense and you were not " stupid " as a child, you were

> just a kid and not supposed to realize that maybe you had a problem.

> Can I ask you if you first noticed the triggers with your parents? Can

> I also ask you if you feel some resentment towards them for not

> realizing that you needed to go to a doctor sooner? I know I have a lot

> of resentment stored against my parents about many things and it only

> serves me to aggravate the condition. Though it seems like a difficult

> thing to just get over.

>

> Thanks for sharing your story :o)

>

> andra

>

> ------------------------------------------------------------------------

> *From:* Randall

> *To:* Soundsensitivity

> *Sent:* Wednesday, December 10, 2008 2:05:00 AM

> *Subject:* andra's question about finely tuned ears

>

> andra posted this question:

>

> " Do you guys think that maybe we're so used to listening to any noises

> that we've so finely tuned our ears so that we can hear things louder

> than most people? I guess that would make sense if the ear drum was a

> muscle, right!?!?! "

>

> I have an answer to it but to get to it, here is a little background on

> my situation. Maybe someone else from this group can relate. Here goes...

>

> I should have worn glasses when I was in grade school because I couldn't

> see what the teacher was writing on the the chalk board, even from the

> first row. For some reason I thought I saw like everyone else but I was

> just stupid. And for other reasons I won't go into here, I was not taken

> to see an eye doctor.

>

> So, I didn't wear glasses until my grades started failing in High

> School. At that point my brain went " click! " and I realized my vision

> must not be up to par with everyone else's. After some convincing with

> my parents I was taken to an eye doctor.

>

> I found out that indeed I needed to wear glasses because I had

> Astigmatism, where I can see close up like a foot away, but anything

> beyond that is blurry.

>

> So... here is my answer to andra's question:

>

> The five human senses are Sight, Hearing, Taste, Smell & Touch.

>

> I believe that my Hearing compensated for having had bad eye Sight for

> so long in my life. And most likely the other senses too to some degree.

>

> I can remember being to places, like a museum for example, and not being

> able to see where my parents were at and having to listen for the sound

> of their voices. It wouldn't be until I was a few feet from them that I

> could tell they were my parents.

>

> This and other things in my life, plus I think a predisposed genetic

> factor caused the onslaught of 4S, Hyperacusis and Tinnitus to occur. I

> believe all three of those have similar roots to them, mainly to do with

> a problem in my brain

>

> ------------------------------------

>

> PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES

> ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP

> SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

>

> ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

> Thank you. MJ

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Randall,Thanks for the bed wetting thing. My one 7 year old is having problems....I don't think I could ever use the bell thing though. I wake up twice a night and get her up myself. Seems to be working. Gosh I still am trying to imagine the nightmare of that BELL. I'd probably be the only one that it woke up...lol.VickiTo: Soundsensitivity Sent: Wednesday, December 10, 2008 4:00:56 AMSubject: Re: andra's question about finely tuned ears

Hi andra,

I do feel resentment towards my parents. But I also feel love and

compassion towards them. Because at the core I am a loving and caring

person. I just can't put myself out there for others like I felt I was

supposed to growing up, because I'll end up hurting myself because of

the 4S and Hyperacusis.

My parents have done things for me to make up for the mistakes the made

with me. My mother has told me with what she knows now, if she could go

back she would have done things differently. I feel compassion towards

her for that, but it doesn't change that fact that what has been done

has been done and I still am dealing with the affects from it.

I was a late bed wetter as a kid and in trying to help me my parents

bought into a bell system that was suppose to train me to wake up when I

wet. Mind you I was a deep sleeper as a child. When I wet the bed a LOUD

bell would go off in my ear to wake me up. It was such a traumatizing

experience for me that my parents eventually stopped using it.

I CAN NOT STRESS ENOUGH TO PARENTS NOT TO DO THE BELL SYSTEM IF YOUR

CHILD WETS THE BED!!! There are other non-invasive ways to help your kid.

That is when my sensitivity to sounds, especially high pitched noises

like bells, became difficult for me to handle. Still at this point in my

life no one understood that I felt pain in my ears all the time.

My experience growing up is so hard for people to understand. Most

people just can't relate. I'm 31 now and am still working on trying to

undo the damage that has been done. Not easy.

Thanks for writing back.

-Randall

andra Ruiz wrote:

>

>

> Randall, I still can't believe that you have all 3 conditions to deal

> with...that must be so painful and my heart goes out to you.

>

> This makes perfect sense and you were not "stupid" as a child, you were

> just a kid and not supposed to realize that maybe you had a problem.

> Can I ask you if you first noticed the triggers with your parents? Can

> I also ask you if you feel some resentment towards them for not

> realizing that you needed to go to a doctor sooner? I know I have a lot

> of resentment stored against my parents about many things and it only

> serves me to aggravate the condition. Though it seems like a difficult

> thing to just get over.

>

> Thanks for sharing your story :o)

>

> andra

>

> ------------ --------- --------- --------- --------- --------- -

> *From:* Randall <coderandgmail (DOT) com>

> *To:* Soundsensitivity@ yahoogroups. com

> *Sent:* Wednesday, December 10, 2008 2:05:00 AM

> *Subject:* andra's question about finely tuned ears

>

> andra posted this question:

>

> "Do you guys think that maybe we're so used to listening to any noises

> that we've so finely tuned our ears so that we can hear things louder

> than most people? I guess that would make sense if the ear drum was a

> muscle, right!?!?!"

>

> I have an answer to it but to get to it, here is a little background on

> my situation. Maybe someone else from this group can relate. Here goes...

>

> I should have worn glasses when I was in grade school because I couldn't

> see what the teacher was writing on the the chalk board, even from the

> first row. For some reason I thought I saw like everyone else but I was

> just stupid. And for other reasons I won't go into here, I was not taken

> to see an eye doctor.

>

> So, I didn't wear glasses until my grades started failing in High

> School. At that point my brain went "click!" and I realized my vision

> must not be up to par with everyone else's. After some convincing with

> my parents I was taken to an eye doctor.

>

> I found out that indeed I needed to wear glasses because I had

> Astigmatism, where I can see close up like a foot away, but anything

> beyond that is blurry.

>

> So... here is my answer to andra's question:

>

> The five human senses are Sight, Hearing, Taste, Smell & Touch.

>

> I believe that my Hearing compensated for having had bad eye Sight for

> so long in my life. And most likely the other senses too to some degree.

>

> I can remember being to places, like a museum for example, and not being

> able to see where my parents were at and having to listen for the sound

> of their voices. It wouldn't be until I was a few feet from them that I

> could tell they were my parents.

>

> This and other things in my life, plus I think a predisposed genetic

> factor caused the onslaught of 4S, Hyperacusis and Tinnitus to occur. I

> believe all three of those have similar roots to them, mainly to do with

> a problem in my brain

>

> ------------ --------- --------- ------

>

> PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES

> ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP

> SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

>

> ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

> Thank you. MJ

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Share on other sites

Hi Randall,So do you think that the bell system that your parents used caused noise injury and is the reason for your hyperacusis? It's so wonderful that you have an open relationship with your parents to discuss your feelings and work through any feelings of resentment you may have had. It really does show that you are loving and caring, and very humble and forgiving.I'm sure you have already tried this but have you done sound desensitization with pink noise? Also, have you tried acupuncture? I read that hyperacusis can sometimes be successfully treated with high doses of aspirin due to the salicylate effect, does taking aspirin cause any decrease in pain

for you?All the best,andraTo: Soundsensitivity Sent: Wednesday, December 10, 2008 7:00:56 PMSubject: Re: andra's question about finely tuned ears

Hi andra,I do feel resentment towards my parents. But I also feel love and compassion towards them. Because at the core I am a loving and caring person. I just can't put myself out there for others like I felt I was supposed to growing up, because I'll end up hurting myself because of the 4S and Hyperacusis.My parents have done things for me to make up for the mistakes the made with me. My mother has told me with what she knows now, if she could go back she would have done things differently. I feel compassion towards her for that, but it doesn't change that fact that what has been done has been done and I still am dealing with the affects from it.I was a late bed wetter as a kid and in trying to help me my parents bought into a bell system that was suppose to train me to wake up when I wet. Mind you I was a deep sleeper as a child. When I wet the bed a LOUD bell would go off in my

ear to wake me up. It was such a traumatizing experience for me that my parents eventually stopped using it.I CAN NOT STRESS ENOUGH TO PARENTS NOT TO DO THE BELL SYSTEM IF YOUR CHILD WETS THE BED!!! There are other non-invasive ways to help your kid.That is when my sensitivity to sounds, especially high pitched noises like bells, became difficult for me to handle. Still at this point in my life no one understood that I felt pain in my ears all the time.My experience growing up is so hard for people to understand. Most people just can't relate. I'm 31 now and am still working on trying to undo the damage that has been done. Not easy.Thanks for writing back.-Randallandra Ruiz wrote:> > > Randall, I still can't believe that you have all 3 conditions to deal > with...that must be so painful and my heart goes out to you.> > This makes

perfect sense and you were not "stupid" as a child, you were > just a kid and not supposed to realize that maybe you had a problem. > Can I ask you if you first noticed the triggers with your parents? Can > I also ask you if you feel some resentment towards them for not > realizing that you needed to go to a doctor sooner? I know I have a lot > of resentment stored against my parents about many things and it only > serves me to aggravate the condition. Though it seems like a difficult > thing to just get over.> > Thanks for sharing your story :o)> > andra> > ------------------------------------------------------------------------> *From:* Randall > *To:* Soundsensitivity > *Sent:* Wednesday, December 10, 2008 2:05:00 AM> *Subject:* andra's question about finely tuned ears> > andra posted this question:> > "Do you guys think that maybe we're so used to listening to any noises> that we've so finely tuned our ears so that we can hear things louder> than most people? I guess that would make sense if the ear drum was a> muscle, right!?!?!"> > I have an answer to it but to get to it, here is a little background on> my situation. Maybe someone else from this group can relate. Here goes...> > I should have worn glasses when I was in grade school because I couldn't> see what the teacher was writing on the the chalk board, even from the> first row. For some reason I thought I saw like everyone else but I

was> just stupid. And for other reasons I won't go into here, I was not taken> to see an eye doctor.> > So, I didn't wear glasses until my grades started failing in High> School. At that point my brain went "click!" and I realized my vision> must not be up to par with everyone else's. After some convincing with> my parents I was taken to an eye doctor.> > I found out that indeed I needed to wear glasses because I had> Astigmatism, where I can see close up like a foot away, but anything> beyond that is blurry.> > So... here is my answer to andra's question:> > The five human senses are Sight, Hearing, Taste, Smell & Touch.> > I believe that my Hearing compensated for having had bad eye Sight for> so long in my life. And most likely the other senses too to some degree.> > I can remember being to places, like a

museum for example, and not being> able to see where my parents were at and having to listen for the sound> of their voices. It wouldn't be until I was a few feet from them that I> could tell they were my parents.> > This and other things in my life, plus I think a predisposed genetic> factor caused the onslaught of 4S, Hyperacusis and Tinnitus to occur. I> believe all three of those have similar roots to them, mainly to do with> a problem in my brain> > ------------------------------------> > PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES > ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP > SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. > > ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.> Thank you. MJ

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Hi andra,

I do think the bell system triggered the onset of Hyperacusis. It really

isn't until after that experience that I remember having a problem. I

don't take aspirin because unfortunately it makes my tinnitus worse.

I've been wearing sound generators almost 24/7 for the last couple of

years and they haven't desensitized me. I've tried off and on taking a

day to not wear them and I still find I have sound sensitvity problems.

Yes I am forgiving, I think I've been too forgiving in my life though.

To the point where I get walked over and trampled. Right now I'm trying

to take a step back and do what I need to do to take care of myself

while dealing with 4S/Hyperacusis. That is a form of forgiving and

kindness on myself I suppose. The therapist I was seeing helped me

realize that.

I haven't really found anything to make the pain go away. Right now I'm

using Ibuprofen and it helps sometimes. The best way for me to deal with

the pain is to be like a Hermit. Ha ha, but seriously.

-Randall

andra Ruiz wrote:

>

>

> Hi Randall,

>

> So do you think that the bell system that your parents used caused noise

> injury and is the reason for your hyperacusis?

>

> It's so wonderful that you have an open relationship with your parents

> to discuss your feelings and work through any feelings of resentment you

> may have had. It really does show that you are loving and caring, and

> very humble and forgiving.

>

> I'm sure you have already tried this but have you done sound

> desensitization with pink noise? Also, have you tried acupuncture? I

> read that hyperacusis can sometimes be successfully treated with high

> doses of aspirin due to the salicylate effect, does taking aspirin cause

> any decrease in pain for you?

>

> All the best,

>

> andra

> ------------------------------------------------------------------------

> *From:* Randall

> *To:* Soundsensitivity

> *Sent:* Wednesday, December 10, 2008 7:00:56 PM

> *Subject:* Re: andra's question about finely

> tuned ears

>

> Hi andra,

>

> I do feel resentment towards my parents. But I also feel love and

> compassion towards them. Because at the core I am a loving and caring

> person. I just can't put myself out there for others like I felt I was

> supposed to growing up, because I'll end up hurting myself because of

> the 4S and Hyperacusis.

>

> My parents have done things for me to make up for the mistakes the made

> with me. My mother has told me with what she knows now, if she could go

> back she would have done things differently. I feel compassion towards

> her for that, but it doesn't change that fact that what has been done

> has been done and I still am dealing with the affects from it.

>

> I was a late bed wetter as a kid and in trying to help me my parents

> bought into a bell system that was suppose to train me to wake up when I

> wet. Mind you I was a deep sleeper as a child. When I wet the bed a LOUD

> bell would go off in my ear to wake me up. It was such a traumatizing

> experience for me that my parents eventually stopped using it.

>

> I CAN NOT STRESS ENOUGH TO PARENTS NOT TO DO THE BELL SYSTEM IF YOUR

> CHILD WETS THE BED!!! There are other non-invasive ways to help your kid.

>

> That is when my sensitivity to sounds, especially high pitched noises

> like bells, became difficult for me to handle. Still at this point in my

> life no one understood that I felt pain in my ears all the time.

>

> My experience growing up is so hard for people to understand. Most

> people just can't relate. I'm 31 now and am still working on trying to

> undo the damage that has been done. Not easy.

>

> Thanks for writing back.

>

> -Randall

>

>

>

> andra Ruiz wrote:

> >

> >

> > Randall, I still can't believe that you have all 3 conditions to deal

> > with...that must be so painful and my heart goes out to you.

> >

> > This makes perfect sense and you were not " stupid " as a child, you were

> > just a kid and not supposed to realize that maybe you had a problem.

> > Can I ask you if you first noticed the triggers with your parents? Can

> > I also ask you if you feel some resentment towards them for not

> > realizing that you needed to go to a doctor sooner? I know I have a lot

> > of resentment stored against my parents about many things and it only

> > serves me to aggravate the condition. Though it seems like a difficult

> > thing to just get over.

> >

> > Thanks for sharing your story :o)

> >

> > andra

> >

> > ------------------------------------------------------------------------

> > *From:* Randall >

> > *To:* Soundsensitivity

> <mailto:Soundsensitivity >

> > *Sent:* Wednesday, December 10, 2008 2:05:00 AM

> > *Subject:* andra's question about finely tuned

> ears

> >

> > andra posted this question:

> >

> > " Do you guys think that maybe we're so used to listening to any noises

> > that we've so finely tuned our ears so that we can hear things louder

> > than most people? I guess that would make sense if the ear drum was a

> > muscle, right!?!?! "

> >

> > I have an answer to it but to get to it, here is a little background on

> > my situation. Maybe someone else from this group can relate. Here goes...

> >

> > I should have worn glasses when I was in grade school because I couldn't

> > see what the teacher was writing on the the chalk board, even from the

> > first row. For some reason I thought I saw like everyone else but I was

> > just stupid. And for other reasons I won't go into here, I was not taken

> > to see an eye doctor.

> >

> > So, I didn't wear glasses until my grades started failing in High

> > School. At that point my brain went " click! " and I realized my vision

> > must not be up to par with everyone else's. After some convincing with

> > my parents I was taken to an eye doctor.

> >

> > I found out that indeed I needed to wear glasses because I had

> > Astigmatism, where I can see close up like a foot away, but anything

> > beyond that is blurry.

> >

> > So... here is my answer to andra's question:

> >

> > The five human senses are Sight, Hearing, Taste, Smell & Touch.

> >

> > I believe that my Hearing compensated for having had bad eye Sight for

> > so long in my life. And most likely the other senses too to some degree.

> >

> > I can remember being to places, like a museum for example, and not being

> > able to see where my parents were at and having to listen for the sound

> > of their voices. It wouldn't be until I was a few feet from them that I

> > could tell they were my parents.

> >

> > This and other things in my life, plus I think a predisposed genetic

> > factor caused the onslaught of 4S, Hyperacusis and Tinnitus to occur. I

> > believe all three of those have similar roots to them, mainly to do with

> > a problem in my brain

> >

> > ------------------------------------

> >

> > PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES

> > ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP

> > SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

> >

> > ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

> > Thank you. MJ

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