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  • 10 years later...

It's been fixed by our web guru--yay for him!

For those who haven't seen it, here's the address:

http://www.soundsensitive.org/

> >

> > Hi ,

> >

> > Relief..yes, and somewhat excited that some claims to these

vitamin

> treatments are beneficial. I picked up the p5p B6 today, and

> wondered how many mgs of that, as well as zinc you take daily? I

> take synthroid for my thyroid condition (condition being I had

cancer

> and no longer have a thyroid). You are 100% correct when you say

you

> wouldn't wish this on your worst enemy. My current work condition

is

> at times unbearable because of the low sustained machinery

> hum/repetitive idling. I want to tolerate it, and I am hoping

these

> supplements can help.

> >

> > I tried find the website you mentioned below and could not find

> it. Is it www.soundsensitive. org?

> >

> > Have a great night.

> > Jacqui

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: <smharde@ >

> > To: Soundsensitivity@ yahoogroups. com

> > Sent: Wednesday, December 10, 2008 10:55:52 AM

> > Subject: Re:Holding my breath

> >

> >

> > Hi Jacqui,

> >

> > It's such a relief finding this group, isn't it? Not that you'd

> wish this condition on your worst enemy, but it's great to know

> you're not alone. There are a lot of interesting things going on

in

> the group right now. Some of us have been in contact with the NIH,

> and we have drummed up some interest in a possible research study.

> We have a website--www. soundsensitive. org--that site and the

files

> section of this group site have a lot of good info. People are

> always sharing things they've tried that have been helpful, but so

> far no one has found a " cure " or even a treatment that consistently

> works. I've been trying the vitamin experiment andra

mentioned.

> I suspect I have something called " pyroluria " , which is related to

> depression, anxiety, and other mental conditions, and the symptoms

> include sound sensitivity. I'm taking zinc and the p5p form of

> vitamin b-6, and I've seen some improvement in my overall

> sensitivity to sound. Email me if

> > you'd like more info, or google " pyroluria " or " pyrroluria " .

> Omega-3 supplements have been helpful for some too.

> >

> > Welcome to the group, and I hope you find something here that

helps

> you!

> >

> >

>

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