Re: Re: Anyone in Sydney, Australia with this?

[Guest guest]

I have a few other suggestions but I'd be breaking the group code of conduct, speaking of Harry Potter I'm at the end of book 4 and have sneak peaked the D.V.D and the character who plays Cedric is so annoying with his mouth movements in D.V.D extras "Meet the champions" that I'm contemplating not bothering to watch it

Subject: Re: Anyone in Sydney, Australia with this?To: Soundsensitivity Date: Monday, November 3, 2008, 3:26 AM

Adults who make get noisier when you complain of their noise definitely have problems of their own, I agree. I have a neighbor who refuses to take responsibility for his behavior and acts like any problem I have with him is really my problem only. I imagine he was probably a bully when he was younger, and his parents didn't require much of him. He's like Dudley from Harry Potter, the spoiled bratty cousin. It's a personality that's all too common, but I don't know if there's a clinical name for it. I have some suggestions:

SBD: Spoiled Brat Disorder

IJD: Insensitive Jerk Disorder

POPD: Pervasive Obnoxious Personality Disorder

SIOD: Social Impact Obliviousness Disorder

Any other suggestions? --it's kind of fun...

[Guest guest]

Hi Ingrid

I could have cried when I read your email. To find out that there are people out there like me (I live in the UK) is incredible. I am 42 and have been suffering with 4S (which I wasn't even aware of until this year) since I was about 12. It is hideous. I am so sick of it. I went to my Moms today, even though I love her she is a trigger for me unfortunately. There are certain sounds she makes when she talks, she gets out of breath and I know she can't help it. I still think they don't understand even though I have tried to talk to them. I put some cotton wool in my ears today and it was fab because I didn't get that screaming anger in my head, but I got some stuck right in my ear and had to get a hair grip to remove it (dangerous I know). I can laugh now, but I do get very depressed.

I agree with everything you say and only wish I could actually meet someone to talk to face to face. I talk to my husband but he goes really quiet. He is fantastic about it most of the time, but sometimes I wonder if he has been listening to me at all.

I put cotton wool in my ears when I am eating with the family. I don't care anymore because it makes life much easier for me and I am not constantly nagging everyone. I feel so sorry for people who suffer at work, because I only really get affected by people who are close to me, my family.

I don't understand this condition at all but it makes it more bearable to know that I am not completely bonkers.

If you get this email, could you please reply, because I don't seem to get any responses to my notices.

Many thanks.

Kindest regards

(In a very cold, dark and chilly UK!!)

To: Soundsensitivity Sent: Monday, November 3, 2008 11:33:43 AMSubject: Re: Anyone in Sydney, Australia with this?

Hi all,It has been a huge 9 days for me, starting with finding this group,learning that I'm not alone with this condition (after 36 years) andthen learning about the NIH interest in 4S.Last week I phoned the NIH all the way from Australia and left a voicemessage.I never expected they would return my call, but they calledback at at 1:00am (my time), it so didn't matter that I was asleepwhen they called.Today I saw my Psychiatrist who was happy that I had found this greatsupport network, and she agreed to write a referral letter to the NIH!So I'll be sending my submission hopefully by the end of this week! Ifeel great about getting that done. I also want to share this: the process of writing the submission mademe realise just how hard I have tried to mimimise the impact of 4S onthe people around me, my partner and my kids, and extended family.They don't really know the full

extent of it, and I feel that if theydid know the full details, they'd... well, I don't really know whatthey'd do. But I feel scared about that right now.I do think it is important that I own this condition and not blameothers, especially loved ones very close to me. But I think I've alsobeen trying to deal with 4S partly by denying it to myself. It was actually quite confronting writing about my 4S: I realised howso much of my daily routine is about avoiding trigger situations. I'mfeeling a bit freaked out about this right now. Exhausted at theprospect of having to keep moving away from this person or thatperson, and the constant stress involved.BUT nothing will take away the enormous relief I get from knowing I'mno longer alone in this, and the joy of shedding so much of the shameI have carried for feeling that this was a psychological condition ofmy own creating. I'm now quite

convinced there is some underlyingphysical cause for this. I'm not sure whether I need to take a break from this group or whetheris was just writing the submission that has taken a toll on me.So thanks again for being here, I'll definitely be back sooner or later.Ingrid.

[Guest guest]

Hi ,

I'm also in a very cold, dark and chilly UK! I found this site a few months ago and was amazed to find that I was not alone in suffering from these symptoms, which I've had since I was about 10 (I'm 39 now). I'd be happy to talk to you sometime. I'm in London, how about you?

With best wishes,

Re: Anyone in Sydney, Australia with this?

Hi all,

It has been a huge 9 days for me, starting with finding this group,

learning that I'm not alone with this condition (after 36 years) and

then learning about the NIH interest in 4S.

Last week I phoned the NIH all the way from Australia and left a voice

message.I never expected they would return my call, but they called

back at at 1:00am (my time), it so didn't matter that I was asleep

when they called.

Today I saw my Psychiatrist who was happy that I had found this great

support network, and she agreed to write a referral letter to the NIH!

So I'll be sending my submission hopefully by the end of this week! I

feel great about getting that done.

I also want to share this: the process of writing the submission made

me realise just how hard I have tried to mimimise the impact of 4S on

the people around me, my partner and my kids, and extended family.

They don't really know the full extent of it, and I feel that if they

did know the full details, they'd... well, I don't really know what

they'd do. But I feel scared about that right now.

I do think it is important that I own this condition and not blame

others, especially loved ones very close to me. But I think I've also

been trying to deal with 4S partly by denying it to myself.

It was actually quite confronting writing about my 4S: I realised how

so much of my daily routine is about avoiding trigger situations. I'm

feeling a bit freaked out about this right now. Exhausted at the

prospect of having to keep moving away from this person or that

person, and the constant stress involved.

BUT nothing will take away the enormous relief I get from knowing I'm

no longer alone in this, and the joy of shedding so much of the shame

I have carried for feeling that this was a psychological condition of

my own creating. I'm now quite convinced there is some underlying

physical cause for this.

I'm not sure whether I need to take a break from this group or whether

is was just writing the submission that has taken a toll on me.

So thanks again for being here, I'll definitely be back sooner or later.

Ingrid.

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[Guest guest]

,

I'm sorry you have suffered with this for 30 years. I really hope that some day soon, we will all have answers and there will be some sort of viable treatment or even a cure. That is what I pray for everyday!

I don't have 4s, but my daughter does, and I have been in that big hole of depression. It can really swallow you up! But please try to feel hope. We have all found each other (thanks to Marsha ) and now it looks like someone finally wants to study it.

I know the dark coldness of the UK doesn't help the depression. I live in Virginia and it can get very cold and dreary out, and then I just feel like staying in bed.

I know that good things are on the horizon! Keep hoping (and praying).

Take care--

Kathy

Re: Anyone in Sydney, Australia with this?

Hi all,It has been a huge 9 days for me, starting with finding this group,learning that I'm not alone with this condition (after 36 years) andthen learning about the NIH interest in 4S.Last week I phoned the NIH all the way from Australia and left a voicemessage.I never expected they would return my call, but they calledback at at 1:00am (my time), it so didn't matter that I was asleepwhen they called.Today I saw my Psychiatrist who was happy that I had found this greatsupport network, and she agreed to write a referral letter to the NIH!So I'll be sending my submission hopefully by the end of this week! Ifeel great about getting that done. I also want to share this: the process of writing the submission mademe realise just how hard I have tried to mimimise the impact of 4S onthe people around me, my partner and my kids, and extended family.They don't really know the full extent of it, and I feel that if theydid know the full details, they'd... well, I don't really know whatthey'd do. But I feel scared about that right now.I do think it is important that I own this condition and not blameothers, especially loved ones very close to me. But I think I've alsobeen trying to deal with 4S partly by denying it to myself. It was actually quite confronting writing about my 4S: I realised howso much of my daily routine is about avoiding trigger situations. I'mfeeling a bit freaked out about this right now. Exhausted at theprospect of having to keep moving away from this person or thatperson, and the constant stress involved.BUT nothing will take away the enormous relief I get from knowing I'mno longer alone in this, and the joy of shedding so much of the shameI have carried for feeling that this was a psychological condition ofmy own creating. I'm now quite convinced there is some underlyingphysical cause for this. I'm not sure whether I need to take a break from this group or whetheris was just writing the submission that has taken a toll on me.So thanks again for being here, I'll definitely be back sooner or later.Ingrid.

[Guest guest]

Hi Beccy,

Great to hear from you too. Its so nice to know we are in the same country. Have you sought professional help here? I too have felt very much alone with this, until discovering the 4S site. I haven't ever discussed this problem with a doctor. My son (with the same symptoms) saw a psychologist but it was put down to his ASD (autism spectrum disorder). I am thinking of getting in touch with the NIH but haven't mustered up the courage to see a doctor 'out of the blue' with this. How about you?

It is so hard for others to understand this. I'm fortunate in that my husband has sensitivity to eating noises too, though to a much lesser extent. But it does help him to be more understanding.

It's good to be in touch with you and likewise, please feel free to chat anytime.

With best wishes,

Re: Anyone in Sydney, Australia with this?

Hi all,

It has been a huge 9 days for me, starting with finding this group,

learning that I'm not alone with this condition (after 36 years) and

then learning about the NIH interest in 4S.

Last week I phoned the NIH all the way from Australia and left a voice

message.I never expected they would return my call, but they called

back at at 1:00am (my time), it so didn't matter that I was asleep

when they called.

Today I saw my Psychiatrist who was happy that I had found this great

support network, and she agreed to write a referral letter to the NIH!

So I'll be sending my submission hopefully by the end of this week! I

feel great about getting that done.

I also want to share this: the process of writing the submission made

me realise just how hard I have tried to mimimise the impact of 4S on

the people around me, my partner and my kids, and extended family.

They don't really know the full extent of it, and I feel that if they

did know the full details, they'd... well, I don't really know what

they'd do. But I feel scared about that right now.

I do think it is important that I own this condition and not blame

others, especially loved ones very close to me. But I think I've also

been trying to deal with 4S partly by denying it to myself.

It was actually quite confronting writing about my 4S: I realised how

so much of my daily routine is about avoiding trigger situations. I'm

feeling a bit freaked out about this right now. Exhausted at the

prospect of having to keep moving away from this person or that

person, and the constant stress involved.

BUT nothing will take away the enormous relief I get from knowing I'm

no longer alone in this, and the joy of shedding so much of the shame

I have carried for feeling that this was a psychological condition of

my own creating. I'm now quite convinced there is some underlying

physical cause for this.

I'm not sure whether I need to take a break from this group or whether

is was just writing the submission that has taken a toll on me.

So thanks again for being here, I'll definitely be back sooner or later.

Ingrid.

AOL Email goes Mobile! You can now read your AOL Emails whilst on the move. Sign up for a free AOL Email account with unlimited storage today.

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