I could use your help

[Guest guest]

I am getting so frustrated with this. I posted the letter that many

of us have received from the NIH over at the Hyperacusis Network site

so that anyone there with 4S could see the e-mail address and know

where to seek help. I found that place first when I initially

searched for sound sensitivity on the web. There are still so many

people with this who end up there too. Of course I always direct them

here.

I expected everyone there to be excited but as usual.... it started

an argument as to what 4S really is. They won't even let you

say " 4S " or " selective soft sound sensitivity " on that site because

it's not a " recognized " medical term. So, you have to use the

term " Misophonia " . I've got people telling me it's " My Problem " and

the " No one can help you " being thrown at me. That is the whole

reason I tell everyone I see there to come here. This place is non-

judgmental and supportive in every way. Here people listen, there

people argue. This is of course with exception to a few people who

are really trying to understand this conditon and offer their advice

and help (Lynn McLaren and Debbie are two great folks there).

Anyhow, what I'm getting at is if any of you have time to pop over to

that site and offer your two cents worth I'd appreciate it. Even Dr.

added to the convo which I was happy to see. Here's the

place...

http://www.hyperacusis.net/ On the left side, click on " join the

message board " Then click on " New Messages " and then on " NIH study

for those with Misophonia " . I go by the name Gizmookie there.

Thanks.