Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 A question to parents of kids with absent seizures or not if they have the same as my boy. Just before 3yrs old my son started to ...go into a catertonic freeze for a few seconds. I was told by Paed this is more than likely 'zoning out' but he never saw them. He will be doing anything and then freeze, his face goes into a blank stare and looks more serious usually mouth open...pupils are wide (but not sure this is from not blinking) then returns to normal size after 30seconds-1 minute after episode. He does not drop what he has in his hand but his hand will go down to 'resting' level. This last from 3 seconds to 8 seconds. I did start recording them and he started CFGF diet which they dramatically reduced to 1-4 a week. I think the casein is a factor as he has had occassional slpi and these episodes? return within 10 days....usually 7-10 days after casein. He does not respond to his name and then on thrid attempt of calling him he has a high pitch scream and comes out of them....their is no time factor involved but I think something to do with 1-1.5 hrs after a meal has ?????something to do with it also. These come in clusters was few times a day for few days then 2-5 days with no episodes. Now 1 a day then 5-7 days without any. It could be anywhere they happen! Any thoughts/experiences similar that you could share....will be presenting Paed with 3 months worth of 'episodes' recorded on behaviour charts. I am hoping (praying) he just daydreams. I will hopefully get eeg for him at some point. Sorry so long but wanted to explain them in as much detail for feedback....thanks. Quote Link to comment Share on other sites More sharing options...
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