Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 > > WE need to get some functional MRIs done with the hyperacusic patient > with sound presented via an audiologist........ > > This would not be hard to set up just expensive. > > Marsha > You're the doctor ... so I ask respectfully, would it not help to also have a non 4s person listen to the same sounds, have an MRI and compare the MRI's ? People keep saying their MRI's and eeg's showed nothing, however, differences could be slight and only noticeable if the MRI's and eegs's of 4s and non 4s persons were rigourously compared. It seems to me a study should be done like this: Have a group of maybe 10 people with 4s, similiar symptoms, probably best to use people who are triggered by everyones eating. Have a control group of 5 people without 4s. Have the entire group listen to someone eat. Compare the MRI's and eegs (done while the eating noises were going on) and see if there are any differences that seem to orient themselves to one group or another. At a minium, at least a strong emotional reponse could be demonstrated. However, I suspect the hearing centers of the brain would show some differences also. Just an idea. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 How much is expensive? >> >> WE need to get some functional MRIs done with the hyperacusic patient >> with sound presented via an audiologist........ >> >> This would not be hard to set up just expensive. >> >> Marsha >> > > You're the doctor ... so I ask respectfully, would it not help to also > have a non 4s person listen to the same sounds, have an MRI and compare > the MRI's ? > > People keep saying their MRI's and eeg's showed nothing, however, > differences could be slight and only noticeable if the MRI's and eegs's > of 4s and non 4s persons were rigourously compared. > > It seems to me a study should be done like this: > > Have a group of maybe 10 people with 4s, similiar symptoms, probably > best to use people who are triggered by everyones eating. > > Have a control group of 5 people without 4s. > > Have the entire group listen to someone eat. > > Compare the MRI's and eegs (done while the eating noises were going on) > and see if there are any differences that seem to orient themselves to > one group or another. > > At a minium, at least a strong emotional reponse could be demonstrated. > However, I suspect the hearing centers of the brain would show some > differences also. > > Just an idea. > > > > > > > !DSPAM:47856105421961678060823! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 > Just an idea. I would be interested in partcipating in a study. How much would such a study cost? Could we fundraise? I Am TOTALLY up for it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 We need someone wealthy who suffers from 4s to join the group! There has to be rich sufferers! It can't just affect us poor people! -----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of tinnitusdoctorSent: Wednesday, January 09, 2008 12:06 AMTo: Soundsensitivity Subject: Functional MRIs WE need to get some functional MRIs done with the hyperacusic patient with sound presented via an audiologist........This would not be hard to set up just expensive.Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 My daughter had an MRI and it was about $4800. Thank goodness for insurance. However, I don't think insurance would pay for one like we need done unless a doctor called for it. -----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of Matt JuszczakSent: Wednesday, January 09, 2008 7:10 PMTo: Soundsensitivity Subject: Re: Re: Functional MRIs How much is expensive?>>>> WE need to get some functional MRIs done with the hyperacusic patient>> with sound presented via an audiologist........>>>> This would not be hard to set up just expensive.>>>> Marsha >>>> You're the doctor ... so I ask respectfully, would it not help to also> have a non 4s person listen to the same sounds, have an MRI and compare> the MRI's ?>> People keep saying their MRI's and eeg's showed nothing, however,> differences could be slight and only noticeable if the MRI's and eegs's> of 4s and non 4s persons were rigourously compared.>> It seems to me a study should be done like this:>> Have a group of maybe 10 people with 4s, similiar symptoms, probably> best to use people who are triggered by everyones eating.>> Have a control group of 5 people without 4s.>> Have the entire group listen to someone eat.>> Compare the MRI's and eegs (done while the eating noises were going on)> and see if there are any differences that seem to orient themselves to> one group or another.>> At a minium, at least a strong emotional reponse could be demonstrated.> However, I suspect the hearing centers of the brain would show some> differences also.>> Just an idea.>>>>>>> !DSPAM:47856105421961678060823!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 I totally agree with you! I am dying to see a study like this. My daughter had her MRI when no offending noises were present, plus she was put under so that she would stay still. We need to see how 4s sufferer's brains work compared to non sufferer's. There has to be a huge difference when trigger sounds are present. -----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of v_m_fenSent: Wednesday, January 09, 2008 7:04 PMTo: Soundsensitivity Subject: Re: Functional MRIs >> WE need to get some functional MRIs done with the hyperacusic patient > with sound presented via an audiologist........> > This would not be hard to set up just expensive.> > Marsha >You're the doctor ... so I ask respectfully, would it not help to also have a non 4s person listen to the same sounds, have an MRI and compare the MRI's ? People keep saying their MRI's and eeg's showed nothing, however, differences could be slight and only noticeable if the MRI's and eegs's of 4s and non 4s persons were rigourously compared.It seems to me a study should be done like this:Have a group of maybe 10 people with 4s, similiar symptoms, probably best to use people who are triggered by everyones eating.Have a control group of 5 people without 4s.Have the entire group listen to someone eat. Compare the MRI's and eegs (done while the eating noises were going on) and see if there are any differences that seem to orient themselves to one group or another.At a minium, at least a strong emotional reponse could be demonstrated. However, I suspect the hearing centers of the brain would show some differences also.Just an idea. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 So if there was a difference in our brains- Then what? I'm going to go to a neurologist to have them look at my brain. I just want to make sure I cover as many bases as I can. My problem is getting worse and worse all the time. I'm triggered anymore by the mere sound of my wife talking. Not just the 'S' and sharp vocals sounds like it had been. I swear this is the most ridiculous thing ever thrown at a human being. > > I totally agree with you! I am dying to see a study like this. My daughter > had her MRI when no offending noises were present, plus she was put under so > that she would stay still. We need to see how 4s sufferer's brains work > compared to non sufferer's. There has to be a huge difference when trigger > sounds are present. > > Re: Functional MRIs > > > > > > WE need to get some functional MRIs done with the hyperacusic patient > > with sound presented via an audiologist........ > > > > This would not be hard to set up just expensive. > > > > Marsha > > > > You're the doctor ... so I ask respectfully, would it not help to also > have a non 4s person listen to the same sounds, have an MRI and compare > the MRI's ? > > People keep saying their MRI's and eeg's showed nothing, however, > differences could be slight and only noticeable if the MRI's and eegs's > of 4s and non 4s persons were rigourously compared. > > It seems to me a study should be done like this: > > Have a group of maybe 10 people with 4s, similiar symptoms, probably > best to use people who are triggered by everyones eating. > > Have a control group of 5 people without 4s. > > Have the entire group listen to someone eat. > > Compare the MRI's and eegs (done while the eating noises were going on) > and see if there are any differences that seem to orient themselves to > one group or another. > > At a minium, at least a strong emotional reponse could be demonstrated. > However, I suspect the hearing centers of the brain would show some > differences also. > > Just an idea. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 BTW, I'm not rich, but there's no amount of money that can compensate for the destruction of a wonderful marrige. Or what once was a wonderful marrige. Not to mention my screwed up childhood. > > > > I totally agree with you! I am dying to see a study like this. My > daughter > > had her MRI when no offending noises were present, plus she was put > under so > > that she would stay still. We need to see how 4s sufferer's brains > work > > compared to non sufferer's. There has to be a huge difference when > trigger > > sounds are present. > > > > Re: Functional MRIs > > > > > > > > > > WE need to get some functional MRIs done with the hyperacusic > patient > > > with sound presented via an audiologist........ > > > > > > This would not be hard to set up just expensive. > > > > > > Marsha > > > > > > > You're the doctor ... so I ask respectfully, would it not help to > also > > have a non 4s person listen to the same sounds, have an MRI and > compare > > the MRI's ? > > > > People keep saying their MRI's and eeg's showed nothing, however, > > differences could be slight and only noticeable if the MRI's and > eegs's > > of 4s and non 4s persons were rigourously compared. > > > > It seems to me a study should be done like this: > > > > Have a group of maybe 10 people with 4s, similiar symptoms, > probably > > best to use people who are triggered by everyones eating. > > > > Have a control group of 5 people without 4s. > > > > Have the entire group listen to someone eat. > > > > Compare the MRI's and eegs (done while the eating noises were > going on) > > and see if there are any differences that seem to orient > themselves to > > one group or another. > > > > At a minium, at least a strong emotional reponse could be > demonstrated. > > However, I suspect the hearing centers of the brain would show > some > > differences also. > > > > Just an idea. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Not only do I have 4s but I think all my other senses are also out of whack. Does anyone else have these other problems? (and I wonder if an MRI would show affects of all senses?) Smell - I can smell things very strongly, get migraines from perfumes etc... Touch - I can't wear certain fabrics (itchy-feel weird) and anything with a tag HAS to be cut off Sight - I am really affected by bright lights (e.g. sunlight & car lights in my rear view mirrors at night) and any motions caught out of the corner of my eye really bother me Taste - I love hot sauce on anything (not sure if that is extreme but that's the only taste thing I could think of). Sound - definitely have 4s!!!!!!! I almost went insane today at work when someone in the cube next to me was eating something super crunchy! i assume it was grape nuts or something because it was 9 am!!!!!!!!! what a great way to start my day!Kathy Howe wrote: I totally agree with you! I am dying to see a study like this. My daughter had her MRI when no offending noises were present, plus she was put under so that she would stay still. We need to see how 4s sufferer's brains work compared to non sufferer's. There has to be a huge difference when trigger sounds are present. -----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of v_m_fenSent: Wednesday, January 09, 2008 7:04 PMTo: Soundsensitivity Subject: Re: Functional MRIs >> WE need to get some functional MRIs done with the hyperacusic patient > with sound presented via an audiologist........> > This would not be hard to set up just expensive.> > Marsha >You're the doctor ... so I ask respectfully, would it not help to also have a non 4s person listen to the same sounds, have an MRI and compare the MRI's ? People keep saying their MRI's and eeg's showed nothing, however, differences could be slight and only noticeable if the MRI's and eegs's of 4s and non 4s persons were rigourously compared.It seems to me a study should be done like this:Have a group of maybe 10 people with 4s, similiar symptoms, probably best to use people who are triggered by everyones eating.Have a control group of 5 people without 4s.Have the entire group listen to someone eat. Compare the MRI's and eegs (done while the eating noises were going on) and see if there are any differences that seem to orient themselves to one group or another.At a minium, at least a strong emotional reponse could be demonstrated. However, I suspect the hearing centers of the brain would show some differences also.Just an idea. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 > Not only do I have 4s but I think all my other senses are also out > of whack. There have been many posts on this group about other sensitivities and I do think we're a sensitive bunch in general. > Smell - I can smell things very strongly, get migraines from > perfumes etc... I get migraines from perfume too. Love the stuff but can't wear it. > Touch - I can't wear certain fabrics (itchy-feel weird) and > anything with a tag HAS to be cut off I do ok with this > Sight - I am really affected by bright lights (e.g. sunlight & car > lights in my rear view mirrors at night) and any motions caught out > of the corner of my eye really bother me I spend the entire summer in the pool with my kids and I'm the only one there who always has sunglasses on in the water. I don't know how people can stand the glare. Also I wear the kind that cut the light out from the top bottom and sides. > Taste - I love hot sauce on anything (not sure if that is extreme > but that's the only taste thing I could think of). Love spicy but also love mild. > Sound - definitely have 4s!!!!!!! Thats why we are here ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 > BTW, I'm not rich, but there's no amount of money that can compensate > for the destruction of a wonderful marrige. Or what once was a > wonderful marrige. > > Not to mention my screwed up childhood. > We have a serious life altering problem that is unheard of by the general public, unproven and unrecognized by medicine in general. Everyday we suffer and struggle and if we dare to ask for relief we're the bad guys. You couldn't pay me for this either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 For those of us with multiple sensitivities, I recommend the book "Too Loud, Too Bright, Too Fast, Too Tight: What to Do If You Are Sensory Defensive in an Overstimulating World " by Sharon Heller. Very enlightening. I have a lot of tactile and smell issues as well as hearing sensitivites. I like hot sauce too--didn't think of that before...you'd think a sensitive person would avoid strong flavors, but who knows? Posted by: "J W" imoksept07@... imoksept07 Wed Jan 9, 2008 8:12 pm (PST) Not only do I have 4s but I think all my other senses are also out of whack. Does anyone else have these other problems? (and I wonder if an MRI would show affects of all senses?)Smell - I can smell things very strongly, get migraines from perfumes etc...Touch - I can't wear certain fabrics (itchy-feel weird) and anything with a tag HAS to be cut offSight - I am really affected by bright lights (e.g. sunlight & car lights in my rear view mirrors at night) and any motions caught out of the corner of my eye really bother meTaste - I love hot sauce on anything (not sure if that is extreme but that's the only taste thing I could think of).Sound - definitely have 4s!!!!!!! I almost went insane today at work when someone in the cube next to me was eating something super crunchy! i assume it was grape nuts or something because it was 9 am!!!!!!!!! what a great way to start my day! Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 I wouldn't say all of my other senses are out of whack but I do have other weird sensitivities. My eyes are also affected by sunlight. Even on overcast days I will be wearing sunglasses or squinting...I was told that is because the pigmentation in my eyes or so light that I am almost an albino...(I have bright blue eyes or so I thought)...smell and touch ar also affected but not an extreme really....mainly my hearing, sight and OCD!!!! --- J W wrote: > Not only do I have 4s but I think all my other > senses are also out of whack. Does anyone else have > these other problems? (and I wonder if an MRI would > show affects of all senses?) > Smell - I can smell things very strongly, get > migraines from perfumes etc... > Touch - I can't wear certain fabrics (itchy-feel > weird) and anything with a tag HAS to be cut off > Sight - I am really affected by bright lights > (e.g. sunlight & car lights in my rear view mirrors > at night) and any motions caught out of the corner > of my eye really bother me > Taste - I love hot sauce on anything (not sure if > that is extreme but that's the only taste thing I > could think of). > Sound - definitely have 4s!!!!!!! I almost went > insane today at work when someone in the cube next > to me was eating something super crunchy! i assume > it was grape nuts or something because it was 9 > am!!!!!!!!! what a great way to start my day! > > Kathy Howe wrote: > I totally agree with you! I am dying to > see a study like this. My daughter had her MRI when > no offending noises were present, plus she was put > under so that she would stay still. We need to see > how 4s sufferer's brains work compared to non > sufferer's. There has to be a huge difference when > trigger sounds are present. > > Re: Functional MRIs > > > > > > WE need to get some functional MRIs done with the > hyperacusic patient > > with sound presented via an audiologist........ > > > > This would not be hard to set up just expensive. > > > > Marsha > > > > You're the doctor ... so I ask respectfully, would > it not help to also > have a non 4s person listen to the same sounds, have > an MRI and compare > the MRI's ? > > People keep saying their MRI's and eeg's showed > nothing, however, > differences could be slight and only noticeable if > the MRI's and eegs's > of 4s and non 4s persons were rigourously compared. > > It seems to me a study should be done like this: > > Have a group of maybe 10 people with 4s, similiar > symptoms, probably > best to use people who are triggered by everyones > eating. > > Have a control group of 5 people without 4s. > > Have the entire group listen to someone eat. > > Compare the MRI's and eegs (done while the eating > noises were going on) > and see if there are any differences that seem to > orient themselves to > one group or another. > > At a minium, at least a strong emotional reponse > could be demonstrated. > However, I suspect the hearing centers of the brain > would show some > differences also. > > Just an idea. > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them > fast with Yahoo! Search. ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
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