*Re: SCD& Changing Minds Statement

[Guest guest]

Carol,

I'm glad that you're sharing with us and I think that the things you

are doing with are wonderful! But, if I may quote

Buckley, your daughter's accomplishments fall within the range of

capabilities that children with Down Syndrome have. I know that your

daughter was sick and of course, this will not allow a child to

learn. Once was on the road to recovery and started

learning, is it possible that she is high-functioning or if you will,

less affected cognitively by DS? I know that the GB was helped her a

lot. You and you alone (and family) know what factors have made a

big difference to make the person she is today.

We all know people with DS who are doing as well or better than

and are not on GB or prozac or vitamins at all. Some of

them may be involved in a lot of activities, some may not. The

question is: are higher functioning people with DS that way because

they are in good schools, exercise, etc or do they fit into that type

of lifestyle moreso because they are higher functioning in the first

place? I don't think there is a black and white answer. I think

that 's son Neal is a classic case where exposure to the " good

things " didn't help him a lot. He needed treatment.

Having said all this, again I think that the things you are doing for

are great and will enhance the life of any person with DS.

Marsha

>

> From: Carol in IL <ps1272000yahoo (DOT) com>

> Subject: Re: *Re: [DownSyndromeInfoEx change] SCD & Changing Minds

Statement

> To: DownSyndromeInfoExc hange@yahoogroup s.com

> Date: Wednesday, November 12, 2008, 9:09 AM

>

>

> I could make the same claims about functionaly increase in

with regards to SCD, exercise, replacing all bad fats with

Omega 3's and lots of new experiences. .....

>

> and it's all drug free and natural. :-)

>

> She has achieved through diet and life style, what you all are

calling success with the CM protocol.

>

> What's my point? No one knows for sure without some type of study.

>

>

> Carol in IL

> Mom to , 8 DS

>

> My problem is not how I look. It's how you see me.

>

>

> Join our Down Syndrome information group -

> http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/

> http://downsyndrome infoexchange. blogspot. com/

>

> Listen to oldest dd's music http://www.myspace. com/vennamusic

>

[Guest guest]

I totally agree Marsha!And all the same goes for the TNI, the CM protocol, ginkgo, priacetam etc etc etc...So many factors- so little research. We can't say ANY of it works for sure.And that was my whole point.But at least 'my' protocol does not run the risk of side effects. Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/ http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace.com/vennamusicFrom: Marsha Scheitlin To: DownSyndromeInfoExchange Sent: Thursday, November 13, 2008 1:55:32 PMSubject: *Re: [DownSyndromeInfoExchange] SCD & Changing Minds Statement

Carol,

I'm glad that you're sharing with us and I think that the things you

are doing with are wonderful! But, if I may quote

Buckley, your daughter's accomplishments fall within the range of

capabilities that children with Down Syndrome have. I know that your

daughter was sick and of course, this will not allow a child to

learn. Once was on the road to recovery and started

learning, is it possible that she is high-functioning or if you will,

less affected cognitively by DS? I know that the GB was helped her a

lot. You and you alone (and family) know what factors have made a

big difference to make the person she is today.

We all know people with DS who are doing as well or better than

and are not on GB or prozac or vitamins at all. Some of

them may be involved in a lot of activities, some may not. The

question is: are higher functioning people with DS that way because

they are in good schools, exercise, etc or do they fit into that type

of lifestyle moreso because they are higher functioning in the first

place? I don't think there is a black and white answer. I think

that 's son Neal is a classic case where exposure to the "good

things" didn't help him a lot. He needed treatment.

Having said all this, again I think that the things you are doing for

are great and will enhance the life of any person with DS.

Marsha

>

> From: Carol in IL <ps1272000yahoo (DOT) com>

> Subject: Re: *Re: [DownSyndromeInfoEx change] SCD & Changing Minds

Statement

> To: DownSyndromeInfoExc hange@yahoogroup s.com

> Date: Wednesday, November 12, 2008, 9:09 AM

>

>

> I could make the same claims about functionaly increase in

with regards to SCD, exercise, replacing all bad fats with

Omega 3's and lots of new experiences. .....

>

> and it's all drug free and natural. :-)

>

> She has achieved through diet and life style, what you all are

calling success with the CM protocol.

>

> What's my point? No one knows for sure without some type of study.

>

>

> Carol in IL

> Mom to , 8 DS

>

> My problem is not how I look. It's how you see me.

>

>

> Join our Down Syndrome information group -

> http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/

> http://downsyndrome infoexchange. blogspot. com/

>

> Listen to oldest dd's music http://www.myspace. com/vennamusic

>

[Guest guest]

Carol,

You said:

"And all the same goes for the TNI, the CM protocol, ginkgo, priacetam etc etc etc...So many factors- so little research. We can't say ANY of it works for sure."

Yes, we can say what and how it works. There is fantastic research already. Why are you discounting the research that has been done?

The GABA antagonist piece is earth shattering information. We can't get the right dose w/ GB but the next GABA antagonist is very promising. The information already available is very useful and practical. We know more today than ever before.

Subject: Re: *Re: [DownSyndromeInfoExchange] SCD & Changing Minds StatementTo: DownSyndromeInfoExchange Date: Thursday, November 13, 2008, 9:30 PM

I totally agree Marsha!And all the same goes for the TNI, the CM protocol, ginkgo, priacetam etc etc etc...So many factors- so little research. We can't say ANY of it works for sure.And that was my whole point.But at least 'my' protocol does not run the risk of side effects.

Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/http://downsyndrome infoexchange. blogspot. com/Listen to oldest dd's music http://www.myspace. com/vennamusic

From: Marsha Scheitlin <mscheitlinverizon (DOT) net>To: DownSyndromeInfoExc hange@yahoogroup s.comSent: Thursday, November 13, 2008 1:55:32 PMSubject: *Re: [DownSyndromeInfoEx change] SCD & Changing Minds Statement

Carol,I'm glad that you're sharing with us and I think that the things you are doing with are wonderful! But, if I may quote Buckley, your daughter's accomplishments fall within the range of capabilities that children with Down Syndrome have. I know that your daughter was sick and of course, this will not allow a child to learn. Once was on the road to recovery and started learning, is it possible that she is high-functioning or if you will, less affected cognitively by DS? I know that the GB was helped her a lot. You and you alone (and family) know what factors have made a big difference to make the person she is today.We all know people with DS who are doing as well or better than and are not on GB or prozac or vitamins at all. Some of them may be involved in a lot of activities, some may not. The question is: are higher functioning people

with DS that way because they are in good schools, exercise, etc or do they fit into that type of lifestyle moreso because they are higher functioning in the first place? I don't think there is a black and white answer. I think that 's son Neal is a classic case where exposure to the "good things" didn't help him a lot. He needed treatment. Having said all this, again I think that the things you are doing for are great and will enhance the life of any person with DS. Marsha> > From: Carol in IL <ps1272000yahoo (DOT) com>> Subject: Re: *Re: [DownSyndromeInfoEx change] SCD & Changing Minds Statement> To: DownSyndromeInfoExc hange@yahoogroup s.com> Date: Wednesday, November 12, 2008, 9:09 AM> > > I could make the same claims about functionaly increase in with regards to SCD, exercise, replacing all bad fats with Omega 3's and lots of new experiences. .....> > and it's all drug free and natural. :-)> > She has achieved through diet and life style, what you all are calling success with the CM protocol. > > What's my point? No one knows for sure without some type of study.> > > Carol in IL> Mom to , 8 DS > > My problem is not how I look. It's how you see me.> > > Join our Down Syndrome information group - > http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/> http://downsyndrome infoexchange. blogspot. com/> > Listen to oldest dd's music http://www.myspace. com/vennamusic>