Reply from Dr. Brewer from NIH

[Guest guest]

Fantatic news!! I can see why that cheered you up, thank you for

sharing that, one more step closer

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of Randall

Sent: Thursday, 27 November 2008 10:14 AM

To: Soundsensitivity

Subject: Reply from Dr. Brewer from NIH

I just received this e-mail and it greatly cheered me up! I wanted to

share it with the group:

Dear Randall,

Thank you for your inquiry regarding soft sound sensitivity syndrome.

Several researchers at the NIH are very interested in soft sound

sensitivity and we are currently considering investigation of this

problem. As with any scientific investigation, careful and extensive

planning must occur prior to implementation of a research study. We

anticipate being able to provide you with more information about our

plans in approximately six (6) months.

We acknowledge your interest and will contact you when we are able to

provide specifics about the possibility of an NIH study.

Future inquiries can be directed to me at this email address:

soundsensitivity@....

Regards,

Carmen C Brewer, Ph.D.

National Institute on Deafness and other Communication Disorders

National Institutes of Health

[Guest guest]

Hyperacusis yes, but maybe not hit too hard to fast yet, at this

stage they are only mentioning they are interested and not actually setting up

a study, Wouldnt want to spread false hopes, but then again, false hope is

better then none. I think it would be a good idea if NIH had access to the group

but that is just IMO.

Keeps fingers crossed

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of ingrid.spielman

Sent: Thursday, 27 November 2008 12:28 PM

To: Soundsensitivity

Subject: Re: Reply from Dr. Brewer from NIH

Does anyone else think it would be a good idea

to let the people in the Hyperacusis

Network know that Dr. Carmen Brewer is considering setting up a study. I'm sure

some

more interest in this study wouldn't hurt?

Should we let the SPD, OCD and any other groups know about this as well?

I don't spend time in any other groups, does anyone else have ways of spreading

the

word?

Ingrid.

> > >

> > > I just received this e-mail and it greatly cheered me up! I

wanted to

> > > share it with the group:

> > >

> > > Dear Randall,

> > >

> > > Thank you for your inquiry regarding soft sound sensitivity

syndrome.

> > > Several researchers at the NIH are very interested in soft sound

> > > sensitivity and we are currently considering investigation of

this

> > > problem. As with any scientific investigation, careful and

extensive

> > > planning must occur prior to implementation of a research study.

We

> > > anticipate being able to provide you with more information about

our

> > > plans in approximately six (6) months.

> > >

> > > We acknowledge your interest and will contact you when we are

able to

> > > provide specifics about the possibility of an NIH study.

> > >

> > > Future inquiries can be directed to me at this email address:

> > > soundsensitivity@

> > >

> > > Regards,

> > >

> > > Carmen C Brewer, Ph.D.

> > > National Institute on Deafness and other Communication Disorders

> > > National Institutes of Health

> > >

> >

>

[Guest guest]

I got the same reply Randall did (see below if u haven’t seen

it).. WE ARE FINALLY BEING HEARD!!!!!!!!!!!!!!!

p.s. Hang in there Randall

From:

Soundsensitivity [mailto:Soundsensitivity ] On

Behalf Of Randall

Sent: Wednesday, November 26, 2008 3:14 PM

To: Soundsensitivity

Subject: Reply from Dr. Brewer from NIH

I just received this e-mail and it greatly cheered me up! I wanted to

share it with the group:

Dear Randall,

Thank you for your inquiry regarding soft sound sensitivity syndrome.

Several researchers at the NIH are very interested in soft sound

sensitivity and we are currently considering investigation of this

problem. As with any scientific investigation, careful and extensive

planning must occur prior to implementation of a research study. We

anticipate being able to provide you with more information about our

plans in approximately six (6) months.

We acknowledge your interest and will contact you when we are able to

provide specifics about the possibility of an NIH study.

Future inquiries can be directed to me at this email address:

soundsensitivity@....

Regards,

Carmen C Brewer, Ph.D.

National Institute on Deafness and other Communication Disorders

National Institutes of Health