Re: Adding Misophonia to our web-tags.....here is why...

[Guest guest]

Dr , you are a good person!! I think it's a smart move

although it's not going to change my views at all that you're name it

better and that this is more than just " misophonia " . That is the

main reason I get so irritated over on the other site because they

just argue over the name and it gets us nowhere. I never knew that

your son has this too. He's lucky to have you as his mother...

someone who understands and will fight for him to be well.

Darlene

>

> The recent discussion really opened my eyes to the fact that

people,

> i.e., patients, are being distracted and disrupted by the perhaps

> philosophical and somewhat academic discussions of what is

> misophonia, what is the 'other'.

>

>

>

> I am amending my websites for now to include my own term (and

Dan's,

> yes) along with an aka misophonia addition.

>

>

>

> I feel that this is only fair to people seeking answers and help.

If

> the professionals who are fully immersed in this situation cannot

yet

> agree on the differences and distinctions, how can the people who

> HAVE the problems? (i.e. my own son).

>

>

>

> This does not imply that the discussion is 'over'. But it really

> needs to have its own format and not in this setting, which is a

site

> for people with hyperacusis, which is definitely not misophonia or

> the 'other'. : )

>

>

>

> BTW Can enlighten us as to exactly when the first use of

the

> word misophonia was?

>

>

>

> My heart goes out to everyone who has this problem, which causes so

> much anguish this time of year, with family dinners and social

> events. Hang in there, surely help will surface through research

and

> awareness.

>

>

>

> Marsha , AuD

>

[Guest guest]

Dr johnson, good move. Now, please get back on to publishing you research report. Season greetings and Best regards.IngridSent from my iPhone

The recent discussion really opened my eyes to the fact that people,

i.e., patients, are being distracted and disrupted by the perhaps

philosophical and somewhat academic discussions of what is

misophonia, what is the 'other'.

I am amending my websites for now to include my own term (and Dan's,

yes) along with an aka misophonia addition.

I feel that this is only fair to people seeking answers and help. If

the professionals who are fully immersed in this situation cannot yet

agree on the differences and distinctions, how can the people who

HAVE the problems? (i.e. my own son).

This does not imply that the discussion is 'over'. But it really

needs to have its own format and not in this setting, which is a site

for people with hyperacusis, which is definitely not misophonia or

the 'other'. : )

BTW Can enlighten us as to exactly when the first use of the

word misophonia was?

My heart goes out to everyone who has this problem, which causes so

much anguish this time of year, with family dinners and social

events. Hang in there, surely help will surface through research and

awareness.

Marsha , AuD

[Guest guest]

It's a good idea, all arguments of semantics aside, because it will

certainly increase our traffic and help to get the word out to people

who may have heard the term 'misophonia' before hearing about 4s. It

should be a big help to people trying to find more info and more

people to relate to if they have our kind of sensitivities.