Re: *RE: New Member!

[Guest guest]

Welcome . Good to have you here.

      Jules Romero

haveyouhadyourhugstoday <haveyouhadyourhugstoday> escreveu:

Hello! My name is & my Husbands name is . We live in Southern Calif. We have a 11 yr old that has High Functioning Autism () and we have a baby boy that is 18mo and has Down Syndrome (Elijah).We are learning so much about Down. We registered with the Regional Center for early intervention when Elijah was born. We Have not had any heart problems or major health problems as of yet. Elijah is doing quite well so far. He can sign (ASL) 7 words and say 7-10 words fairly clear. However, he does have a stigmatism and does not see well and it is a constant battle to keep his glasses on! We had In-Home OT & play therapist for a year. He was crawling normally and is pulling himself up and cruising the couch and tables. We requested to go to a center based OT and play therapy. We now have a wonderful OT with ALOT of equipment, hope he will walk soon! The play therapy, "Mommy & ME" did not go so well, when they handed my (then) 14 mo old glue and glitter, I said, "Hold up!" "I don't think that is a good idea!". I tried to stay a couple of months later just to see, but quickly realized that it was strictly a pre school setting and Elijah was not ready for that...he was just trying to eat and teeth on everything for heavens sake! We brought the play therapist back in our home and when they sent me a 20 year old girl with little experience with children and NO experience with Down I had requested the director come to our home! Now she comes twice a week. However, as nice as she is, everything she does with him, we already do, so I continued my search for a center based program for infants and toddlers! Three months later after MANY calls (the Regional Center did not know of any others!) and talking to MANY people I finally found one that I am going to tour this coming week. The other good news is that our local community college is starting the exact same kind of program we need in Jan, they described it as Gymboree meets therapy with OT, PT, oral stimulation, speech, signing, socialization and fun & songs...can't wait...I'm on the list! Also, we just changed Pediatricians, I had to provide the DS growth chart to the last Dr who said there wasn't one! Speaking of the Dr, Elijah is still spitting up regularly and often seems to choke or gag briefly for no apparent reason, I thought he was to old to do that (could be teething & saliva?), spoke to his OT & she said to request a GI Dr to see if he has reflux or?? So we did, hopefully we will get an appointment soon. Well, that's where we are so far with our little snuggle bug. As you can see we stay busy as the rest of you trying to figure this all out & don't even get me started on the HF Autism issues...that's a different group! Will be so glad to have others to talk to who have been there, done that! We look forward to reading your questions and answers and will certainly have some of our own as we learn more!

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