Blue hands

[Guest guest]

Hello Meg,

Are you on the Liss loop too? Because I'd send this over to them regarding

the blue hands and trembling, there are lot more people over there and one

of them might know what this is about.

Kim & Teddy Bear Raub

Now, one negative note and a question to those of you whose kids have

seizures. Teddy has started doing something strange, and I'm wondering if

it may be seizures or some kind of pre-seizure activity. Three times now,

immediately after waking up from his nap, Teddy's right leg has trembled

(not stiffened) and one or both of his hands have turned blue. It has

lasted from a few seconds to a minute or so. He otherwise seems totally

normal at these times; his eyes focus on whatever we're playing with and

his lips are completely pink. I'm going to ask his neurologist about it,

but I know sometimes you all have more knowledge than the docs.

Meg, mom of Teddy, 1 yr old, bilateral perisylvian PMG, non-oral feeder,

g/j-tube feeds, partial vocal cord paralysis, creeps on belly, starting to

sit unassisted.

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