Roll Call -

[Guest guest]

Hi All

I'm , mom to . I have finally had time to read all the

posts lately and the roll call updates. I usually read them daily

but my oldest daughter's high school has been pulling my energies

away from my favorite eGroup. They just started one to encourage

communication but I tell you, those folks are not the most supportive

group. I miss my PMG family. There's a lot of love here... sorry,

I'm a bit sappy lately. This high school needs so much help and the

parents are fighting with eachother. It's not a pretty place to be.

is almost 22 months and was diagnosed with PMG diffuse at 10

months. She is non-verbal and clueless about sign language but we

still try - maybe someday? She can sit unassisted if we get her into

that position and play with toys. She loves the Barney Mother Goose

tape and will smile, laugh and pay attention through the entire

tape. Great break for me. She has PT 2x a week, OT 1x a week and an

EIS teacher 1x a week. I hate to admit this but I'm getting sick of

her therapy but that's another subject I'll bring up in another

email. I never thought I would say that.

has 2 older sisters. One sister is 14 and lives in her own

teenage world, the other is 4 and adores . She is the best

therapist has. can eat orally but it needs to be

mushy and dissolve easily. She makes a terrible mess when eating but

that's all part of her learning process, right? I carumba... She is

tight fisted with the right hand, keeping her thumb tucked under. We

use a splint but she's nimble enough with her left hand to remove it

from the right.

She has had some mild starring spells and has an exagerated startle

reflex - lots of eye blinking and funny faces when she's over

stimulated. She has not had any seizures that we are aware of. I

sometimes think the startle reflex and starring spells are seizures

but its hard to tell. I figure sinces its borderline, I really

shouldn't worry yet. Therefore, she's on no medication at this

time.

She is beautiful and loveable and the more I get to know her the less

sadness I have about her disability. It's been over 10 months now

since the devastation set in and I can say that it has gotten easier

to deal with. She is really a blessing to us just the way she is.

Take care, ('s Mom)