Re: Shwachman syndrome testing

[Guest guest]

Helen

North West Regional Genetics Reference Laboratory, St. 's

Hospital, Hathersage Road, Manchester M13 0JH, Tel: 0 /

6605, contact Dr Schwarz, Consultant Clinical Molecular

Geneticist.

From Contact a Family web site Thankfully not too far away from

you.

Zoe x

> > >

> > > >>Helen I agree with eberything Zoe has said, hang in there

and

> > dont't be excepting a Dx without that genetic testing. Have they

> > tested already? Seems bizzare if they haven't, why don't they

just

> do

> > the test?

> > >

> > > Mandi x

> > >

> > > Helen it looks like it can be confirmed or ruled out by

genetic

> > > testing (according to Wikipedia), so at least you can find out

> for

> > > definite.

> > >

> > > If it is Shwachman syndrome then it does look like there is

> > treatment

> > > and I'm sure will find out more for you about alternative

> > > treatments through her connections with DAN! doctors.

> > >

> > > Alternative treatments can probably do far more than the

> > conventional

> > > treatments, as we know from biomed.

> > >

> > > Am really feeling for you and sending cyber hugs.

> > >

> > >

> > >

> > >

> >

>

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