NIH - IMPORTANT REMINDER

[Guest guest]

That was me! As a reminder, the NIH UNDIAGNOSED/RARE DISEASES department

did reject me BUT there is another NIH department that IS looking into us and

even has an e-mail address confitrming this: soundsensitivity@....

To directly contact Dr. Carmen Brewer, she is at brewerc@...

..

Below is her letter to me from 11/26/08….

Thank

you for your inquiry regarding soft sound sensitivity syndrome. Several

researchers at the NIH are very interested in soft sound sensitivity and we are

currently considering investigation of this problem. As with any

scientific investigation, careful and extensive planning must occur prior to

implementation of a research study. We anticipate being able to provide you

with more information about our plans in approximately six (6) months.

We acknowledge your interest and will contact you when we are able to provide

specifics about the possibility of an NIH study.

Future inquiries can be directed to me at this email address: soundsensitivity@....

Regards,

Carmen C Brewer, Ph.D.

National Institute on Deafness and other Communication Disorders

From:

Soundsensitivity [mailto:Soundsensitivity ] On

Behalf Of Ingrid Spielman

Sent: Wednesday, December 17, 2008 7:00 AM

To: Soundsensitivity

Subject: Re: NIH

Hi ,

Initially we applied to the Undiagnosed Diseases Unit, which

was a real palaver involving letters of referral etc etc.

One member of our group was rejected, and we figure we will

all be rejected for that particular study, although we don't know yet.

But in the rejection letter from the Undiagnosed Diaseases

Unit, they suggested we contact Dr. Carmen Brewer at the Hearing something or

other department at the NIH.

There is a thread in this forum with a link to her email

address, it also contains some of the letters/emails that other in this group

sent to her which might help you kick start your own email.

Hope this helps, I think the thread is the best place to go,

you'll find all you need there.

Ingrid.

How do we apply for the NIH study? I

don't know where the application

is or do we have to call them??