I'd like to clarify

[Guest guest]

Hi Penny and anyone reading this topic:

This is Amy Proal. I have been alerted to the fact that somebody took

two paragraphs from a post in my progress report in a private forum

and put it on this board. For starters, I wish this hadn't been sent

anonymously as it would have been nice about my words are ending up in

a place where they're not supposed to be.

It scares and saddens me that someone has gone to great lengths to

take my words out of context and put them here to cast in a negative

light the very treatment that is giving me my health back.

That paragraph about the wheelchair. I was coming from New York with

a very heavy carry on bag (a backpack). My gate was farthest away

from the check in. I had to walk forever and when I got to the gate

in New York my back was killing me from the heavy load. O'Hare

Airport in Chicago is huge. Again the gate was very far from the

baggage claim. My flight was already late in the evening and delayed

for 2 hrs. We got in past one in the morning. There was a person

with a wheelchair at the gate. I asked for a ride. Why not? I could

have walked if I had to. The entire travel experience took me over

six hours. Who wouldn't have been tired? I got home after four in

the morning...which is part of why I felt so crappy the day after.

I have always made it clear that I suffer from bad head pain because

of the herxheimer reaction. Whenever I fly I get a terrible pressure

headache THE DAY AFTER I fly. On top of that I only slept 3 hours

after the flight. My headache got better in a day or two. The pain I

referred to was in my head...not my body. This is certainly not a

TYPICAL reaction for me.

Every time I talk about the MP I make it clear that I still have pain

from the herxheimer rxn. Do you know that before I started the MP I

was unable fly at all for two entire years because of the effects on

my head? If you were to read other parts of my progress report you

would learn that the fact that I am able to fly in the first place

shows great progress. These days I don't hesitate to fly...but I do

get a headache.

It's sad indeed that I have had to defend myself on this site. I have

no reason to lie about the way I am feeling on the MP. You cannot

understand my symptoms by looking at two paragraphs taken completely

out of context.

I want people to understand the MP. If you have a question about my

progress...ask me directly. My email address is amy.proal at gmail

dot com. I PROMISE to answer you completely honestly about every

issue and symptom. Just please don't paste my words in a place where

I cannot defend myself if needed.

Thank you and I wish everyone the best health possible,

Amy