Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 I've been out of town for over a week and haven't yet read all of these posts, but based on what I've read so far, I'm going to say this bluntly. I'm tired of being told my immune system needs fixing. It feels condescending and belittling. Are TB patients told they need to fix their immune systems? AIDS patients? Or is the focus on the pathogen? Now, if people would just admit that I'm battling a tough, almost unbeatable foe, then any help in making my immune system work more effectively would be appreciated, but I'm tired of not having my illness taken seriously and being told that some missing nutrient is the "cause" of my problem. I take it about as seriously as TB or AIDS patients would probably take it. Not with much more than a glimmer of hope. Until I see some real and full and lasting recoveries, that's as much as I can afford to give it. penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Penny, your immune system might very well be fine. Some of us suspect our immune systems might be a little screwy though. Recently I posted an article showing that in a study of Lyme patients in Germany, the ones that had their immune systems boosted at the same time they took abx got better, whereas the ones who just took abx didn't get better. This is of concern to me. Necrosis might be totally different though because maybe those bugs aren't suppressing the immune system. - Kate On Jan 5, 2007, at 2:35 PM, Penny Houle wrote: > > I've been out of town for over a week and haven't yet read all of > these posts, but based on what I've read so far, I'm going to say > this bluntly. > > I'm tired of being told my immune system needs fixing. It feels > condescending and belittling. Are TB patients told they need to fix > their immune systems? AIDS patients? Or is the focus on the pathogen? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Penny/Kate The pathogens make pollysacharide slime or biofilm and this distributes to every inch of your anatomy via your gut absorbed thru your mucus membranes and, it just virtually, at it's creation point impacts you internally and externally.There's a whole other group of people that actually control the amount of slime being produced to regulate the way they feel. They avoid eating anything and taking anything that allows the accumulation of ingredients that are needed to manufacture this slime. They are functioning at an acceptable rate by doing this. You can actually regulate this same phenomena and call it getting the immune system firing by taking this or doing that..YET IT " S A SMOKE AND MIRRORS THING. It's also infuriating that you suffer from hot/cold sweats, fevers, so called stomach viruses and a whole host of other semi to very serious complaints and your told you need glutathione or some other whacky explanation.The do gooders ain't doing anyone any good if there interpretation of our disease is we are suffereing CFS some form of FATIGUE. This is why you hear me screaming and yelling because if you avoid the fact that we often have ME (encephalitis) throw in the sweats, joint aches and the rest and your giving me some hi filluting wanker explanation, your getting me stuck for life. tony > > > > > I've been out of town for over a week and haven't yet read all of > > these posts, but based on what I've read so far, I'm going to say > > this bluntly. > > > > I'm tired of being told my immune system needs fixing. It feels > > condescending and belittling. Are TB patients told they need to fix > > their immune systems? AIDS patients? Or is the focus on the pathogen? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Kate.. how were the Immune SYstems boosted? With what? I'm not exactly sure what 'immune boosting' means when people use it on these internet lists. WHat it means in medicine is usually an injection of interferon which can cause fever and other side effects - or an infusion of gamma gobulin for people who truly have immune deficiency (genetic usually). In AIDS the immune system is dperessed BECAUSE of the pathogen - as is the case in Malaria and Lyme... then it becomes 'sensitized' and react in ways that are similar to allergies (chemical sensitivities etc). So yes.. the immune system can be screwy (I agree with Kate)when diseased. And yes, I agree with Penny - that unless someone has a genetic defect (can't make any anti-bodies- or your the bubble boy) it's a disease state (or pathogen load) that's putting the burden on the immune sysytem - or the infection is where the immune system can't get the pathogen. > > > > > I've been out of town for over a week and haven't yet read all of > > these posts, but based on what I've read so far, I'm going to say > > this bluntly. > > > > I'm tired of being told my immune system needs fixing. It feels > > condescending and belittling. Are TB patients told they need to fix > > their immune systems? AIDS patients? Or is the focus on the pathogen? > Quote Link to comment Share on other sites More sharing options...
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