Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 , I am a speech pathologist and I work with kiddos 3-5 years. I have only had one boy with DS who was verbal when he transitioned into my program. He is now six and still nonverbal. He will use signs but not often. I have a two (25 months)year old girl with DS that we got when she was nine months old. She still has not said any words. She will use some signs but only when she really feels like it! So keep encouraging speech at home, that is the most important thing you can do! Cammie Heflin check out our blog! www.theheflinfamily.blogspot.com [DownSyndromeInfoExchange] when did your child start talking??? Hello all I vowed never to look at any developmental milestone charts anymore, but I did anyway and as expected, I'm left with the nagging question when the he** is going to start talking??? I had a look at DS authority Pueschels chart where it says that children with DS start talking in short sentences around 24 months on average, ranging from 18 to 46 months (children without DS: 21 on average/ranging from 14 to 32 months). (turning four next Thursday) is nowhere near that; he uses a few single words and some signs and that's just about it. Ok, so he might just be one of the very slow ones and a boy on top of it, but what perplexes me is the fact that of all kids with DS we have gotten to know during the last 4 years - which amounts to quite a big bunch - there is only ONE (a boy!) who started to speak 2-3 word sentences before he turned three which is why we call him the little profesor :-) So that makes me question the accuracy of Pueschels time frame. How old was your child with DS when he or she started to talk? /Switzerland ------------------------------------ 1. Anything suggested on this site or opinions offered are not intended to be medical or pharmaceutical advice or otherwise take the place of your physicians orders, nor to diagnose or treat your specific health problems. Please discuss all methods of treatment with your practitioner. 2 *****WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated. 3. Our HOME page is http://groups.yahoo.com/group/DownSyndromeInfoExchange where all archived posts as well as photos,links, files, articles etc. are found. You " MUST " have a Yahoo ID and pass word to enter it. To contact Carol, owner & moderator doihavtasay@... To contact Kathy, owner & moderator kathy_r@... To contact , owner & moderator noliptoday@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 is 4, has a large vocabulary in Portuguese and is starting words in English. but she rarely puts two or 3 words together. Her first word was at 2. I know a boy with DS who is eight and speaks less than her, is very active and smart. He learned how to read and write and It brought tears to my eyes to see some of his written work. I have tried to get his mum to teach him signs or use some assistive language device. I truly believe the goal is to communicate and the older the child the more frustrated they become when they cannot express what they mean.PatCammie Heflin escreveu: , I am a speech pathologist and I work with kiddos 3-5 years. I have only had one boy with DS who was verbal when he transitioned into my program. He is now six and still nonverbal. He will use signs but not often. I have a two (25 months)year old girl with DS that we got when she was nine months old. She still has not said any words. She will use some signs but only when she really feels like it! So keep encouraging speech at home, that is the most important thing you can do! Cammie Heflin check out our blog! www.theheflinfamily.blogspot.com [DownSyndromeInfoExchange] when did your child start talking??? Hello all I vowed never to look at any developmental milestone charts anymore, but I did anyway and as expected, I'm left with the nagging question when the he** is going to start talking??? I had a look at DS authority Pueschels chart where it says that children with DS start talking in short sentences around 24 months on average, ranging from 18 to 46 months (children without DS: 21 on average/ranging from 14 to 32 months). (turning four next Thursday) is nowhere near that; he uses a few single words and some signs and that's just about it. Ok, so he might just be one of the very slow ones and a boy on top of it, but what perplexes me is the fact that of all kids with DS we have gotten to know during the last 4 years - which amounts to quite a big bunch - there is only ONE (a boy!) who started to speak 2-3 word sentences before he turned three which is why we call him the little profesor :-) So that makes me question the accuracy of Pueschels time frame. How old was your child with DS when he or she started to talk? /Switzerland ------------------------------------ 1. Anything suggested on this site or opinions offered are not intended to be medical or pharmaceutical advice or otherwise take the place of your physicians orders, nor to diagnose or treat your specific health problems. Please discuss all methods of treatment with your practitioner. 2 *****WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated. 3. Our HOME page is http://groups.yahoo.com/group/DownSyndromeInfoExchange where all archived posts as well as photos,links, files, articles etc. are found. You "MUST" have a Yahoo ID and pass word to enter it. To contact Carol, owner & moderator doihavtasaycomcast (DOT) net To contact Kathy, owner & moderator kathy_rCOMCAST (DOT) NET To contact , owner & moderator noliptodaybellsouth (DOT) net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 started actually " talking " at about age 15 months. She learned the word and the sign for MORE. No kidding.. I was just trying to get her to do the sign and she shouted MO while she signed it. I got her really mad. I was holding out a snack just out of her reach. She did squeal a bit and babble a bit at 12 months... When she wanted to nurse she said / cried " Mim mim " We called nursing Ninny and it was a combo of Momma and Ninny. She is three now and has a good vocab of signs. Even her alphabet. However her OT is delayed alot and while " WE " know her sign variations not everyone would. SHe can say 3-4 word sentences if coached. Like a repeat after me... I - Want- cookie - Please. She sings quite well. She likes the Singing times songs alot. She also likes alleluia. Lot of one words and phrases. " wash " - luv you- kisses- All done- Here ya go mom- Get off that- That mine- OFF me- NO NAP ! and MEAN Ta ME ( yeah.. she is the youngest of six can't you tell ) None of our friends with Down S talk like does. Most are only children or only one or two kids in the family. Some know more signs.. but our friends range in age from 2-3 and they are all just working on 2-3 word sentences. is Homeschooled but for her IEP evaluations 2-3 word sentences were a goal. They told me it was cause the " phrases " she speaks don't count. < shrug> I say they do. Most of her stuff has just started between Sept.. when she turned three and now. Steph [DownSyndromeInfoExchange] when did your child start talking??? > Hello all > > I vowed never to look at any developmental milestone charts anymore, but > I did anyway and as expected, I'm left with the nagging question when > the he** is going to start talking??? > I had a look at DS authority Pueschels chart where it says that children > with DS start talking in short sentences around 24 months on average, > ranging from 18 to 46 months (children without DS: 21 on average/ranging > from 14 to 32 months). (turning four next Thursday) is nowhere > near that; he uses a few single words and some signs and that's just > about it. Ok, so he might just be one of the very slow ones and a boy > on top of it, but what perplexes me is the fact that of all kids with DS > we have gotten to know during the last 4 years - which amounts to quite > a big bunch - there is only ONE (a boy!) who started to speak 2-3 word > sentences before he turned three which is why we call him the little > profesor :-) So that makes me question the accuracy of Pueschels time > frame. > How old was your child with DS when he or she started to talk? > > /Switzerland > > ------------------------------------ > > 1. Anything suggested on this site or opinions offered are not intended to > be medical or pharmaceutical advice or otherwise take the place of your > physicians orders, nor to diagnose or treat your specific health problems. > Please discuss all methods of treatment with your practitioner. > > 2 *****WARNING: Flames and inappropriate treatment of other members on > this list will NOT be tolerated. > > 3. Our HOME page is http://groups.yahoo.com/group/DownSyndromeInfoExchange > where all archived posts as well as photos,links, files, articles etc. are > found. You " MUST " have a Yahoo ID and pass word to enter it. > > To contact Carol, owner & moderator > doihavtasay@... > > To contact Kathy, owner & moderator > kathy_r@... > > To contact , owner & moderator > noliptoday@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 had 50 words by age 3, I don't believe that he spoke any before 2 1/2 years. By age 4 1/2, he spoke several 4 word sentences remembered by his attitude " I don't like it " and " I don't have to " . This was a rarity. He gradually progressed. We did the ICAN neurodevelopment approach for one year, cranio osteopathic treatments to 2 years and just let normal life do the rest. The ND program may have helped and the osteopathic treatments definately helped synergize speech, but we feel that was advantaged in speech and would have done OK without the extra efforts. We cannot make any claims as to how much the cranio treatments helped because when you choose one path, you forgo the alternative path. In the end, we are very pleased. As far as DS and talking go, has done very well. We just have a talker and I'm not sure that all children with DS who have had cranio treatments talk as well or as much as . I feel that we made some good decisions but cannot claim that others would have the same results. , have you tried teaching to read? For some children, reading (sight words) before talking has helped. I think you are aware of the Mc approach. Marsha > > is 4, has a large vocabulary in Portuguese and is starting words in English. but she rarely puts two or 3 words together. Her first word was at 2. I know a boy with DS who is eight and speaks less than her, is very active and smart. He learned how to read and write and It brought tears to my eyes to see some of his written work. I have tried to get his mum to teach him signs or use some assistive language device. I truly believe the goal is to communicate and the older the child the more frustrated they become when they cannot express what they mean. > > Pat > > Cammie Heflin escreveu: , > I am a speech pathologist and I work with kiddos 3-5 years. I have only had > one boy with DS who was verbal when he transitioned into my program. He is > now six and still nonverbal. He will use signs but not often. I have a two > (25 months)year old girl with DS that we got when she was nine months old. > She still has not said any words. She will use some signs but only when she > really feels like it! So keep encouraging speech at home, that is the most > important thing you can do! > > Cammie Heflin > check out our blog! > www.theheflinfamily.blogspot.com > > [DownSyndromeInfoExchange] when did your child start talking??? > > Hello all > > I vowed never to look at any developmental milestone charts anymore, but > I did anyway and as expected, I'm left with the nagging question when > the he** is going to start talking??? > I had a look at DS authority Pueschels chart where it says that children > with DS start talking in short sentences around 24 months on average, > ranging from 18 to 46 months (children without DS: 21 on average/ranging > from 14 to 32 months). (turning four next Thursday) is nowhere > near that; he uses a few single words and some signs and that's just > about it. Ok, so he might just be one of the very slow ones and a boy > on top of it, but what perplexes me is the fact that of all kids with DS > we have gotten to know during the last 4 years - which amounts to quite > a big bunch - there is only ONE (a boy!) who started to speak 2-3 word > sentences before he turned three which is why we call him the little > profesor :-) So that makes me question the accuracy of Pueschels time frame. > How old was your child with DS when he or she started to talk? > > /Switzerland > > ------------------------------------ > > 1. Anything suggested on this site or opinions offered are not intended to > be medical or pharmaceutical advice or otherwise take the place of your > physicians orders, nor to diagnose or treat your specific health problems. > Please discuss all methods of treatment with your practitioner. > > 2 *****WARNING: Flames and inappropriate treatment of other members on this > list will NOT be tolerated. > > 3. Our HOME page is http://groups.yahoo.com/group/DownSyndromeInfoExchange > where all archived posts as well as photos,links, files, articles etc. are > found. You " MUST " have a Yahoo ID and pass word to enter it. > > To contact Carol, owner & moderator > doihavtasay@... > > To contact Kathy, owner & moderator > kathy_r@... > > To contact , owner & moderator > noliptoday@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 Danny started to say one or two words when he was around 3, but it ‘stuck’ at that level for a very long time. His speech has improved dramatically in the last couple of years (‘coincidentally’ ;-) within a couple of weeks after starting him on Gingko. He still has a lot of trouble with articulation, but that is improving…but he can say longer phrases now (10-13 words) Reading (sight words) and signing really helped…the signing was especially important because I could tell that he really knew what a word was, even if I couldn’t understand what he was saying.) Danny has ALWAYS had speech therapy…started when he was just a couple of months old because he had a lot of feeding problems…but in all honesty, that really didn’t help much until a couple of years ago..then it just seemed like something clicked for him, and his therapies started to actually show results . The good news is that he is steadily improving. I think that the problem was that he was always getting traditional speech therapy, and he just wasn’t able to do what they were asking him to do.. Kaufman’s method of breaking words down into ‘do able’ approximations, then building on what the kid *can* do, has been helpful for him.(example……..if the child can only make vowel sounds, then his approximation for the word ‘apple’ might be ‘aaa’….so you accept that as his version of the word, but model the ‘correct’ pronunciation…and then work on helping him say ‘ahp’ next…and so on until he  can say the whole word. gave a workshop here a few months ago…I have the files for her talk… I would be glad to send them to you privately if you like. Also, I went to a workshop by Libby Kumin at the NDSC convention this summer, and she commented that people w/Ds can improve in their speech ability throughout their lives…that it is never to late to work on speech, and that parents should not give up hope if their kids aren’t talking by age 6 or so, because she has seen many, many kids whose speech has improved as they get older. (she and Dr. Sue Buckley both say that reading helps kids w/Ds learn to talk, and they can learn to sight read around age 2) KathyR(Danny is 10 ½ yrs old now) From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Cammie Heflin Sent: Sunday, November 30, 2008 9:24 AM To: DownSyndromeInfoExchange Subject: RE: [DownSyndromeInfoExchange] when did your child start talking??? , I am a speech pathologist and I work with kiddos 3-5 years. I have only had one boy with DS who was verbal when he transitioned into my program. He is now six and still nonverbal. He will use signs but not often. I have a two (25 months)year old girl with DS that we got when she was nine months old. She still has not said any words. She will use some signs but only when she really feels like it! So keep encouraging speech at home, that is the most important thing you can do! Cammie Heflin check out our blog! www.theheflinfamily.blogspot.com [DownSyndromeInfoExchange] when did your child start talking??? Hello all I vowed never to look at any developmental milestone charts anymore, but I did anyway and as expected, I'm left with the nagging question when the he** is going to start talking??? I had a look at DS authority Pueschels chart where it says that children with DS start talking in short sentences around 24 months on average, ranging from 18 to 46 months (children without DS: 21 on average/ranging from 14 to 32 months). (turning four next Thursday) is nowhere near that; he uses a few single words and some signs and that's just about it. Ok, so he might just be one of the very slow ones and a boy on top of it, but what perplexes me is the fact that of all kids with DS we have gotten to know during the last 4 years - which amounts to quite a big bunch - there is only ONE (a boy!) who started to speak 2-3 word sentences before he turned three which is why we call him the little profesor :-) So that makes me question the accuracy of Pueschels time frame. How old was your child with DS when he or she started to talk? /Switzerland ------------------------------------ 1. Anything suggested on this site or opinions offered are not intended to be medical or pharmaceutical advice or otherwise take the place of your physicians orders, nor to diagnose or treat your specific health problems. Please discuss all methods of treatment with your practitioner. 2 *****WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated. 3. Our HOME page is http://groups.yahoo.com/group/DownSyndromeInfoExchange where all archived posts as well as photos,links, files, articles etc. are found. You " MUST " have a Yahoo ID and pass word to enter it. To contact Carol, owner & moderator doihavtasay@... To contact Kathy, owner & moderator kathy_r@... To contact , owner & moderator noliptoday@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 At the workshop that I mentioned earlier, Dr. Libby Kumin said that in her experience, there is absolutely no evidence that using sign language slows language development in people with Ds (that is the reason some parents don’t want to use it for their kids) Dr. Kumin says that sign is a very useful bridge to spoken language, and she highly recommends it. KathyR From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Almeida Sent: Sunday, November 30, 2008 10:01 AM To: DownSyndromeInfoExchange Subject: RE: [DownSyndromeInfoExchange] when did your child start talking??? is 4, has a large vocabulary in Portuguese and is starting words in English. but she rarely puts two or 3 words together. Her first word was at 2. I know a boy with DS who is eight and speaks less than her, is very active and smart. He learned how to read and write and It brought tears to my eyes to see some of his written work. I have tried to get his mum to teach him signs or use some assistive language device. I truly believe the goal is to communicate and the older the child the more frustrated they become when they cannot express what they mean. Pat Cammie Heflin escreveu: , I am a speech pathologist and I work with kiddos 3-5 years. I have only had one boy with DS who was verbal when he transitioned into my program. He is now six and still nonverbal. He will use signs but not often. I have a two (25 months)year old girl with DS that we got when she was nine months old. She still has not said any words. She will use some signs but only when she really feels like it! So keep encouraging speech at home, that is the most important thing you can do! Cammie Heflin check out our blog! www.theheflinfamily.blogspot.com [DownSyndromeInfoExchange] when did your child start talking??? Hello all I vowed never to look at any developmental milestone charts anymore, but I did anyway and as expected, I'm left with the nagging question when the he** is going to start talking??? I had a look at DS authority Pueschels chart where it says that children with DS start talking in short sentences around 24 months on average, ranging from 18 to 46 months (children without DS: 21 on average/ranging from 14 to 32 months). (turning four next Thursday) is nowhere near that; he uses a few single words and some signs and that's just about it. Ok, so he might just be one of the very slow ones and a boy on top of it, but what perplexes me is the fact that of all kids with DS we have gotten to know during the last 4 years - which amounts to quite a big bunch - there is only ONE (a boy!) who started to speak 2-3 word sentences before he turned three which is why we call him the little profesor :-) So that makes me question the accuracy of Pueschels time frame. How old was your child with DS when he or she started to talk? /Switzerland ------------------------------------ 1. Anything suggested on this site or opinions offered are not intended to be medical or pharmaceutical advice or otherwise take the place of your physicians orders, nor to diagnose or treat your specific health problems. Please discuss all methods of treatment with your practitioner. 2 *****WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated. 3. Our HOME page is http://groups.yahoo.com/group/DownSyndromeInfoExchange where all archived posts as well as photos,links, files, articles etc. are found. You " MUST " have a Yahoo ID and pass word to enter it. To contact Carol, owner & moderator doihavtasay@... To contact Kathy, owner & moderator kathy_r@... To contact , owner & moderator noliptoday@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 turned 3 mid-Aug, and he has very little clear speech. Most people can understand that "buhbuh" as "bye bye" within its context of someone leaving and waving, and, once in a while, he comes out with a fairly clear "hi!" He's just recently discovered the usefulness of "Mama" to get my attention (especially in the middle of the night!). I do reinforce that by responding, as it's so much better than crying or yelling "Aaaaaah!" Oddly, his older siblings taught him to say "Mama" at around 6 mo. of age whenever he wanted to nurse. But by 15 mos, he dropped it in favor of more primitive growling, grunting, or crying. The first signs I taught him were "please" and "milk" and "more", which got used plenty. But he'd only use "Mama" when he was really mad, and then he would scream it, almost like a swear word. (LOL) It's good to finally be summoned with "Mama", even in the middle of the night. Yet if we ask him to say "Mama", he will say "bahbahbah"! Is that poor oral motor planning? All his attempts at verbalization are really basic: "buh", "ba", "duh", "da", or "dih". Oh the wonder of "buh"! He uses it for bus, ball, bath, book, bye, bib, bowl, cup, boy, etc. Only by his accompanying sign can we figure out what he is talking about. He says "ubuh" for up and apple and open, and "buhbuh" for baby and powder and bubbles and Bubba (nickname for oldest brother). His brother is "Duhduh" and Josiah is "Duhduhduh" (or something like that). He says "ba" for splash and bang and "baa" and back (meaning "put it back"), "da" for "that", "Dada" for Daddy (rarely) or (often) when he's calling for him. "Uhdah" means "all done." "Dih" means "this", and "dihdih" is "did it" or "get it." When was an infant, I was told it was good that I was nursing him because it would help him develop the muscles he'd need for speech. I nursed him until he was almost three years old, and yet he doesn't seem able to make very many speech sounds. I try to get him to copy various sounds and funny faces as we play, and he does copy a few other silly sounds, like a vibrating "thhhhhhh" sound, a panting sound "haahhaah", and a soft lip popping sound. He has one 30 min session of speech therapy once a week, and it has done nothing for him. She's given me a few ideas that I've worked on at home, but she's kind of "old school", if you know what I mean. Like practicing and practicing speech sounds is going to eventually produce speech. But she has never suggested any oral exercises, other than to stroke his tongue with a NUK brush, and I don't think that is really going to help his speech. She does it when he's sucking his tongue to get him to stop and retract his tongue. I don't have time to follow him around at home and use his NUK brush every time he sucks his tongue! Besides, he does it more when he is bored, which he seems to be in his speech sessions! From: Müller <mueller-winter@ hispeed.ch>Subject: [DownSyndromeInfoEx change] when did your child start talking???To: "DSInfoEx" <DownSyndromeInfoExc hange@yahoogroup s.com>Date: Sunday, November 30, 2008, 5:26 AMHello all I vowed never to look at any developmental milestone charts anymore, but I did anyway and as expected, I'm left with the nagging question when the he** is going to start talking??? I had a look at DS authority Pueschels chart where it says that children with DS start talking in short sentences around 24 months on average, ranging from 18 to 46 months (children without DS: 21 on average/ranging from 14 to 32 months). (turning four next Thursday) is nowhere near that; he uses a few single words and some signs and that's just about it. Ok, so he might just be one of the very slow ones and a boy on top of it, but what perplexes me is the fact that of all kids with DS we have gotten to know during the last 4 years - which amounts to quite a big bunch - there is only ONE (a boy!) who started to speak 2-3 word sentences before he turned three which is why we call him the little profesor :-) So that makes me question the accuracy of Pueschels time frame. How old was your child with DS when he or she started to talk? /Switzerland ------------ --------- --------- ------ 1. Anything suggested on this site or opinions offered are not intended to be medical or pharmaceutical advice or otherwise take the place of your physicians orders, nor to diagnose or treat your specific health problems. Please discuss all methods of treatment with your practitioner. 2 *****WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated. 3. Our HOME page is http://groups. yahoo.com/ group/DownSyndro meInfoExchange where all archived posts as well as photos,links, files, articles etc. are found. You "MUST" have a Yahoo ID and pass word to enter it. To contact Carol, owner & moderator doihavtasay@ comcast.net To contact Kathy, owner & moderator kathy_rCOMCAST (DOT) NET To contact , owner & moderator noliptoday@bellsout h.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 My sister Sara (who will be 20 this year) began speaking when she was 3-years old. My parents put into a deaf pre-school, and surprisingly she learned how to speak through the teachers saying the words while learning the signs. My mom thinks that all of the reading, and the musicals we used to watch in the house really helped as well too. Sara had three older sisters, the oldest being 11 years older, so maybe she got talked to alot and maybe that helped as well. To this day Sara still reads her books and watches her musicals (I'm pretty sure she has them ALL...LOL) and it helps her with her speech. I remember she was in speech therapy through out all of her school years but in her freshman year, they said that they had done all they could for her, and even since then her sentences and ideas form together more than they did, and again I think that is from all the extra grown-up conversations she is now having. I have faith that your little boy will start giving you all th joy in the world, and soon he'll be talking so much that you won't even remember when he wasn't making full sentences. LOL. Take care and have a wonderful holiday season. / United States Keener wrote: turned 3 mid-Aug, and he has very little clear speech. Most people can understand that "buhbuh" as "bye bye" within its context of someone leaving and waving, and, once in a while, he comes out with a fairly clear "hi!" He's just recently discovered the usefulness of "Mama" to get my attention (especially in the middle of the night!). I do reinforce that by responding, as it's so much better than crying or yelling "Aaaaaah!" Oddly, his older siblings taught him to say "Mama" at around 6 mo. of age whenever he wanted to nurse. But by 15 mos, he dropped it in favor of more primitive growling, grunting, or crying. The first signs I taught him were "please" and "milk" and "more", which got used plenty. But he'd only use "Mama" when he was really mad, and then he would scream it, almost like a swear word. (LOL) It's good to finally be summoned with "Mama", even in the middle of the night. Yet if we ask him to say "Mama", he will say "bahbahbah"! Is that poor oral motor planning? All his attempts at verbalization are really basic: "buh", "ba", "duh", "da", or "dih". Oh the wonder of "buh"! He uses it for bus, ball, bath, book, bye, bib, bowl, cup, boy, etc. Only by his accompanying sign can we figure out what he is talking about. He says "ubuh" for up and apple and open, and "buhbuh" for baby and powder and bubbles and Bubba (nickname for oldest brother). His brother is "Duhduh" and Josiah is "Duhduhduh" (or something like that). He says "ba" for splash and bang and "baa" and back (meaning "put it back"), "da" for "that", "Dada" for Daddy (rarely) or (often) when he's calling for him. "Uhdah" means "all done." "Dih" means "this", and "dihdih" is "did it" or "get it." When was an infant, I was told it was good that I was nursing him because it would help him develop the muscles he'd need for speech. I nursed him until he was almost three years old, and yet he doesn't seem able to make very many speech sounds. I try to get him to copy various sounds and funny faces as we play, and he does copy a few other silly sounds, like a vibrating "thhhhhhh" sound, a panting sound "haahhaah", and a soft lip popping sound. He has one 30 min session of speech therapy once a week, and it has done nothing for him. She's given me a few ideas that I've worked on at home, but she's kind of "old school", if you know what I mean. Like practicing and practicing speech sounds is going to eventually produce speech. But she has never suggested any oral exercises, other than to stroke his tongue with a NUK brush, and I don't think that is really going to help his speech. She does it when he's sucking his tongue to get him to stop and retract his tongue. I don't have time to follow him around at home and use his NUK brush every time he sucks his tongue! Besides, he does it more when he is bored, which he seems to be in his speech sessions! From: Müller <mueller-winter@ hispeed.ch>Subject: [DownSyndromeInfoEx change] when did your child start talking???To: "DSInfoEx" <DownSyndromeInfoExc hange@yahoogroup s.com>Date: Sunday, November 30, 2008, 5:26 AMHello all I vowed never to look at any developmental milestone charts anymore, but I did anyway and as expected, I'm left with the nagging question when the he** is going to start talking??? I had a look at DS authority Pueschels chart where it says that children with DS start talking in short sentences around 24 months on average, ranging from 18 to 46 months (children without DS: 21 on average/ranging from 14 to 32 months). (turning four next Thursday) is nowhere near that; he uses a few single words and some signs and that's just about it. Ok, so he might just be one of the very slow ones and a boy on top of it, but what perplexes me is the fact that of all kids with DS we have gotten to know during the last 4 years - which amounts to quite a big bunch - there is only ONE (a boy!) who started to speak 2-3 word sentences before he turned three which is why we call him the little profesor :-) So that makes me question the accuracy of Pueschels time frame. How old was your child with DS when he or she started to talk? /Switzerland ------------ --------- --------- ------ 1. Anything suggested on this site or opinions offered are not intended to be medical or pharmaceutical advice or otherwise take the place of your physicians orders, nor to diagnose or treat your specific health problems. Please discuss all methods of treatment with your practitioner. 2 *****WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated. 3. Our HOME page is http://groups. yahoo.com/ group/DownSyndro meInfoExchange where all archived posts as well as photos,links, files, articles etc. are found. You "MUST" have a Yahoo ID and pass word to enter it. To contact Carol, owner & moderator doihavtasay@ comcast.net To contact Kathy, owner & moderator kathy_rCOMCAST (DOT) NET To contact , owner & moderator noliptoday@bellsout h.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 Hello thanks for all of your answers. My wife and I really very much appreciated them, as we could see how large the spectrum is. by the way, just a few days ago jamie uttered his first two-word-sentence (in Dutch) while signing at the same time: " Watch tv! " - Of all things :-) So that was one milestone more! All the best, & family > From: Müller <mueller-winter@ hispeed.ch> > Subject: [DownSyndromeInfoEx change] when did your child start talking??? > To: " DSInfoEx " <DownSyndromeInfoExc hange@yahoogroup s.com> > Date: Sunday, November 30, 2008, 5:26 AM > > > Hello all I vowed never to look at any developmental milestone charts anymore, but I did anyway and as expected, I'm left with the nagging question when the he** is going to start talking??? I had a look at DS authority Pueschels chart where it says that children with DS start talking in short sentences around 24 months on average, ranging from 18 to 46 months (children without DS: 21 on average/ranging from 14 to 32 months). (turning four next Thursday) is nowhere near that; he uses a few single words and some signs and that's just about it. Ok, so he might just be one of the very slow ones and a boy on top of it, but what perplexes me is the fact that of all kids with DS we have gotten to know during the last 4 years - which amounts to quite a big bunch - there is only ONE (a boy!) who started to speak 2-3 word sentences before he turned three which is why we call him the little profesor :-) So that makes me question the accuracy > of Pueschels time frame. How old was your child with DS when he or she started to talk? /Switzerland ------------ --------- --------- ------ 1. Anything suggested on this site or opinions offered are not intended to be medical or pharmaceutical advice or otherwise take the place of your physicians orders, nor to diagnose or treat your specific health problems. Please discuss all methods of treatment with your practitioner. 2 *****WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated. 3. Our HOME page is http://groups. yahoo.com/ group/DownSyndro meInfoExchange where all archived posts as well as photos,links, files, articles etc. are found. You " MUST " have a Yahoo ID and pass word to enter it. To contact Carol, owner & moderator doihavtasay@ comcast.net To contact Kathy, owner & moderator kathy_rCOMCAST (DOT) NET To contact , owner & moderator noliptoday@bellsout h.net Yahoo! Groups > > > > > > > > > > * What seems like the end may really be a new beginning** > > Be happy and thankful for all that you have always.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 My daughter is 2.5 and has been saying "there you go" for 3 months now. She uses it appropriately too. [DownSyndromeInfoEx change] when did your child starttalking???> To: "DSInfoEx" <DownSyndromeInfoEx c hange@yahoogroup s.com>> Date: Sunday, November 30, 2008, 5:26 AM> > > Hello all I vowed never to look at any developmental milestonecharts anymore, but I did anyway and as expected, I'm left with thenagging question when the he** is going to start talking??? Ihad a look at DS authority Pueschels chart where it says that childrenwith DS start talking in short sentences around 24 months onaverage, ranging from 18 to 46 months (children without DS: 21 onaverage/ranging from 14 to 32 months). (turning four nextThursday) is nowhere near that; he uses a few single words and somesigns and that's just about it. Ok, so he might just be one of thevery slow ones and a boy on top of it, but what perplexes me is thefact that of all kids with DS we have gotten to know during the last4 years - which amounts to quite a big bunch - there is only ONE (aboy!) who started to speak 2-3 word sentences before he turned threewhich is why we call him the little profesor :-) So that makes mequestion the accuracy> of Pueschels time frame. How old was your child with DS when he orshe started to talk? /Switzerland ------------ ------------------ ------ 1. Anything suggested on this site or opinionsoffered are not intended to be medical or pharmaceutical advice orotherwise take the place of your physicians orders, nor to diagnoseor treat your specific health problems. Please discuss all methodsof treatment with your practitioner. 2 *****WARNING: Flames andinappropriate treatment of other members on this list will NOT betolerated. 3. Our HOME page is http://groups. yahoo.com/group/DownSyndro meInfoExchange where all archived posts as well asphotos,links, files, articles etc. are found. You "MUST" have a YahooID and pass word to enter it. To contact Carol, owner & moderator doihavtasay@ comcast.net To contact Kathy, owner & moderator kathy_rCOMCAST (DOT) NET To contact , owner & moderator noliptoday@bellsout h.net Yahoo! Groups> > > > > > > > > > * What seems like the end may really be a new beginning** > > Be happy and thankful for all that you have always....>= Quote Link to comment Share on other sites More sharing options...
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