Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 Marie, I just talked to my dear brilliant son re the weird good results of coffee. He also mentioned immediately that caffeine affects circulation. I am thinking that I may still have babesia which has not been adequately treated. This would impair blood circulation and lower oxygen levels. Then I may have MRSA going on which could have entered my brain via the nick I experienced a year ago when my vocal cords were scoped. But I notice Tony and Penny have not given us a nice long list of effective antibiotics for MRSA. I know I have the coag negative staph, as does my husband. How to treat it we have no clue even after flying across the country to see Shoemaker and swabbing our noses for weeks with Septrim. Tony, what is wrong with the MP choice of antibiotics? Hey, they get to Septrim. The only thing they leave out is the penicillins. Big deal. Okay, I know you think it is. Maybe the head honcho is obese because he houses adenovirus 36. Maybe he needs to add Valtrex/Valcyte to the protocol. Penny, you said I didn't stick with diflucan/penicillin long enough. Who knows. I never would have used either one except for the bizarro headache. I was doing great prior to the throat exam/headache. So if the diflucan/pennicillin did NOTHING for the headache why would I continue that? Right now the Valtrex, Zithromax and coffee are working. Does that mean my problem really is babesia which the Zithro is reducing and the coffee is improving circulation? If I get a blood test for babs will it be worth the money if the Zithromax has temporarily reduced the level of infection???? Maybe the infected RBCs won't show up on dark field microscopy with all that Zithromax floating around. Tony, my book I wrote is not science. It is personal and spiritual. Perhaps I should go to a faith healer. How about the guy who gives you tapes of him talking nonsense and then prays with you over the phone - for a fee, of course. Yeah, that's the ticket. You know the atheists don't like me, and the Christians don't either. I am not winning. Best to all, a Carnes Also opens blood vessels which is good for asthma and migraines. Mariecarmelann <carmelanncharter (DOT) net> wrote:Caffeine thins the blood which is good for migrainesFaith, Hope, and Love,Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 I don't know, a, I feel like crying 'cuz I can't seem to get anything across to you. How can you think you were doing so great when all it took was one little nick in your throat to send you into a complete tail spin? You think you suddenly acquired some new bug that kicked your butt? Heck, you were already dx'd with coag neg staph. Do you seriously think it just goes away because you take a few weeks of abx? If it were that easy, we wouldn't be sick, would we? And how or why you can't see why the same 3 abx (MP) won't work for every possible person's bug combinations is...well...just completely beyond me (and infectious medicine in general). That's all we've been talking about for years. These bugs don't just lay down when you hit 'em with a drug or two. It takes intensive drug therapy, it takes the RIGHT ones for YOUR bugs which are probably different mutations from mine, and it takes a massive effort to penetrate the various bio-films and defense mechanisms they've developed to continue living happily in your body, pumping out their nasty little toxins and slowly wearing you out until you have no fight left. penny a Carnes <pj7@...> wrote: Marie, I just talked to my dear brilliant son re the weird good results of coffee. He also mentioned immediately that caffeine affects circulation. I am thinking that I may still have babesia which has not been adequately treated. This would impair blood circulation and lower oxygen levels. Then I may have MRSA going on which could have entered my brain via the nick I experienced a year ago when my vocal cords were scoped. But I notice Tony and Penny have not given us a nice long list of effective antibiotics for MRSA. I know I have the coag negative staph, as does my husband. How to treat it we have no clue even after flying across the country to see Shoemaker and swabbing our noses for weeks with Septrim. Tony, what is wrong with the MP choice of antibiotics? Hey, they get to Septrim. The only thing they leave out is the penicillins. Big deal. Okay, I know you think it is. Maybe the head honcho is obese because he houses adenovirus 36. Maybe he needs to add Valtrex/Valcyte to the protocol. Penny, you said I didn't stick with diflucan/penicillin long enough. Who knows. I never would have used either one except for the bizarro headache. I was doing great prior to the throat exam/headache. So if the diflucan/pennicillin did NOTHING for the headache why would I continue that? Right now the Valtrex, Zithromax and coffee are working. Does that mean my problem really is babesia which the Zithro is reducing and the coffee is improving circulation? If I get a blood test for babs will it be worth the money if the Zithromax has temporarily reduced the level of infection???? Maybe the infected RBCs won't show up on dark field microscopy with all that Zithromax floating around. Tony, my book I wrote is not science. It is personal and spiritual. Perhaps I should go to a faith healer. How about the guy who gives you tapes of him talking nonsense and then prays with you over the phone - for a fee, of course. Yeah, that's the ticket. You know the atheists don't like me, and the Christians don't either. I am not winning. Best to all, a Carnes Also opens blood vessels which is good for asthma and migraines. Mariecarmelann <carmelanncharter (DOT) net> wrote:Caffeine thins the blood which is good for migrainesFaith, Hope, and Love,Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 Penny, you don't feel like crying as much as I did. My problem is that the pieces don't fit. I was doing better for a year on NOTHING except Recuperation. I've never said I was cured of any of my infections. I am sure that the headache of one year duration NO MATTER WHAT I TAKE is related to some infection or several. It just didn't get better AT ALL on diflucan and penicillin. I can't see continuing that combo several more months when NOTHING improved. I don't know what the coffee is doing. Is my " normal " MRI in fact not normal? How the heck do I know? Maybe the headache specialist I see in two weeks will know. Yes, I goofed by saying caffeine expands blood vessels, it constricts them. BUT THAT DOESN'T MAKE ANY SENSE EITHER, DOES IT? Why does caffeine help some migraines and make others worse? Why would constricting blood vessels in my case help anything? Y'all stop scolding me. I have no clue, and I'm not saying I do. I'm saying my one year long constant headache is bizarre. a Carnes - who feels pretty good today - day 5 I think - so I could care less if I still have babesia, borrelia, MRSA and mycoplasma - just for today. > > I don't know, a, I feel like crying 'cuz I can't seem to get anything across to you. > > How can you think you were doing so great when all it took was one little nick in your throat to send you into a complete tail spin? You think you suddenly acquired some new bug that kicked your butt? Heck, you were already dx'd with coag neg staph. Do you seriously think it just goes away because you take a few weeks of abx? If it were that easy, we wouldn't be sick, would we? > > And how or why you can't see why the same 3 abx (MP) won't work for every possible person's bug combinations is...well...just completely beyond me (and infectious medicine in general). That's all we've been talking about for years. These bugs don't just lay down when you hit 'em with a drug or two. It takes intensive drug therapy, it takes the RIGHT ones for YOUR bugs which are probably different mutations from mine, and it takes a massive effort to penetrate the various bio-films and defense mechanisms they've developed to continue living happily in your body, pumping out their nasty little toxins and slowly wearing you out until you have no fight left. > > penny > > > > > > a Carnes <pj7@...> wrote: > Marie, > I just talked to my dear brilliant son re the weird good results of coffee. He also mentioned immediately that caffeine affects circulation. > > I am thinking that I may still have babesia which has not been adequately treated. This would impair blood circulation and lower oxygen levels. > > Then I may have MRSA going on which could have entered my brain via the nick I experienced a year ago when my vocal cords were scoped. > > But I notice Tony and Penny have not given us a nice long list of effective antibiotics for MRSA. I know I have the coag negative staph, as does my husband. How to treat it we have no clue even after flying across the country to see Shoemaker and swabbing our noses for weeks with Septrim. > > Tony, what is wrong with the MP choice of antibiotics? Hey, they get to Septrim. The only thing they leave out is the penicillins. Big deal. Okay, I know you think it is. Maybe the head honcho is obese because he houses adenovirus 36. Maybe he needs to add Valtrex/Valcyte to the protocol. > > Penny, you said I didn't stick with diflucan/penicillin long enough. Who knows. I never would have used either one except for the bizarro headache. I was doing great prior to the throat exam/headache. So if the diflucan/pennicillin did NOTHING for the headache why would I continue that? > > Right now the Valtrex, Zithromax and coffee are working. Does that mean my problem really is babesia which the Zithro is reducing and the coffee is improving circulation? If I get a blood test for babs will it be worth the money if the Zithromax has temporarily reduced the level of infection???? Maybe the infected RBCs won't show up on dark field microscopy with all that Zithromax floating around. > > Tony, my book I wrote is not science. It is personal and spiritual. Perhaps I should go to a faith healer. How about the guy who gives you tapes of him talking nonsense and then prays with you over the phone - for a fee, of course. Yeah, that's the ticket. You know the atheists don't like me, and the Christians don't either. I am not winning. > > Best to all, > a Carnes > > > > Also opens blood vessels which is good for asthma and migraines. > Marie > > carmelann <carmelann@...> wrote: > Caffeine thins the blood which is good for migraines > > Faith, Hope, and Love, > Katrina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 a I cited two papers for you describing caffeine and hypotension. You re-posted one, but it was the other one that offered a possible mechanism for the pain relief that caffeine may give for a low pressure headache: " It seems that not the low CSF pressure itself is the cause for the headache but the unphysiological, increased vasodilatation of intracranial and epidural veins. " http://tinyurl.com/22dn6e That is why I referred to the vasoconstricting effects of caffeine. Have you tested the influence of caffeine by " pulsing " it? One day on, the other off. I'm thinking that the vasculature may build tolerance to the effects of caffiene, but I'm not sure. If it does you may return to previous pain levels even with the caffiene, and experience an exacerbation of the pain when you stop the caffiene. Matt > > Yes, I goofed by saying caffeine expands blood vessels, it constricts > them. BUT THAT DOESN'T MAKE ANY SENSE EITHER, DOES IT? Why does > caffeine help some migraines and make others worse? Why would > constricting blood vessels in my case help anything? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 Ouch. Thanks, Matt. I knew I read something that indicated the caffeine did something. I think that the effect of the caffeine starts to wear off even in about 12 hours. But then when I lie down my head feels better anyway. a > > a > > I cited two papers for you describing caffeine and hypotension. You > re-posted one, but it was the other one that offered a possible > mechanism for the pain relief that caffeine may give for a low > pressure headache: > > " It seems that not the low CSF pressure itself is the cause for the > headache but the unphysiological, increased vasodilatation of > intracranial and epidural veins. " > > http://tinyurl.com/22dn6e > > That is why I referred to the vasoconstricting effects of caffeine. > > Have you tested the influence of caffeine by " pulsing " it? One day > on, the other off. > > I'm thinking that the vasculature may build tolerance to the effects > of caffiene, but I'm not sure. If it does you may return to > previous pain levels even with the caffiene, and experience an > exacerbation of the pain when you stop the caffiene. > > Matt > > > > > > > > Yes, I goofed by saying caffeine expands blood vessels, it > constricts > > them. BUT THAT DOESN'T MAKE ANY SENSE EITHER, DOES IT? Why does > > caffeine help some migraines and make others worse? Why would > > constricting blood vessels in my case help anything? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 a, I wonder if your trigeminal nerve was somehow injured during the exam. Did the headaches start immediately or some time afterwards? Do the symptoms fit into any of the major categories of headache (migraine, cluster, tension...)? Tried Imitrex or some other migraine medication? Stopped Recup for a few days? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 I got sick with something 12 hours after the exam. It was like a mild flu. All the symptoms started at that time including a few days of thrush which cleared up, but the head pressure did not, nor did the vertigo or nystagmus and vestibular nerve damage. I also have rather severe hypoglycemia. It's possible the coffee is increasing adrenaline which improves the low blood sugar and decreases food cravings. a > > a, I wonder if your trigeminal nerve was somehow injured during > the exam. Did the headaches start immediately or some time > afterwards? Do the symptoms fit into any of the major categories of > headache (migraine, cluster, tension...)? Tried Imitrex or some other > migraine medication? Stopped Recup for a few days? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 My migraines are only helped through vasoconstrictors (although vasoconstrictors like Immitrex & pseudophedrine also make my heart feel very iffy). But narcotics don't work at all for me. Since vasoconstriction helps, that indicates that increased blood volume and the resulting pressure on nerves is one major cause of migraines. Other things may also increase pressure on those nerves (like elevated or fluctuating cerebrospinal fluid). I read recently that a very large percentage of people who have surgical forehead lifts suddenly stop having migraines. Theory is that perhaps it desensitizes the nerves somehow, but they don't really know. The other big breakthrough in migraines was the recent study that showed that repairing a small hole between the chambers of the heart (to prevent heart attacks) had the startling side effect of curing almost everyone who had suffered from migraines up to that point. Obviously, migraines (and some other headaches) must be caused by vascular problems which cause enough swelling/inflammation to cause nerve irritation. For some reason, most people don't suffer, so either their nerves aren't as sensitive or apparently their bodies adapt better to increased intracranial pressure? Perhaps it's people who already have increased csf levels who are the ones who are overly sensitive to headaches as they can't effectively cope with any further increase in pressure whether vascular, hormonal, atmospheric or...? penny phagelod <mpalmer@...> wrote: aI cited two papers for you describing caffeine and hypotension. You re-posted one, but it was the other one that offered a possible mechanism for the pain relief that caffeine may give for a low pressure headache:"It seems that not the low CSF pressure itself is the cause for the headache but the unphysiological, increased vasodilatation of intracranial and epidural veins."http://tinyurl.com/22dn6eThat is why I referred to the vasoconstricting effects of caffeine.Have you tested the influence of caffeine by "pulsing" it? One day on, the other off.I'm thinking that the vasculature may build tolerance to the effects of caffiene, but I'm not sure. If it does you may return to previous pain levels even with the caffiene, and experience an exacerbation of the pain when you stop the caffiene.Matt> > Yes, I goofed by saying caffeine expands blood vessels, it constricts > them. BUT THAT DOESN'T MAKE ANY SENSE EITHER, DOES IT? Why does > caffeine help some migraines and make others worse? Why would > constricting blood vessels in my case help anything?> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 To me the thrush is the big red flag. I remember you said that for a few days the diflucan and penicillin seemed to help the headache a lot. I can dig up the posts if you really want. This indicates that you could very well have what a lot of us have. A combo bacterial/fungal infection. In my experience, the diflucan doesn't work for long. I found V-fend to be more effective and Lamisil to be most effective. If the headache comes back, I'd ask the doc to switch anti-fungals for you and see how your headache responds. Personally, I can't do anti-fungals alone just as I can't do antibiotics alone. I need both. penny pjeanneus <pj7@...> wrote: I got sick with something 12 hours after the exam. It was like a mild flu. All the symptoms started at that time including a few days of thrush which cleared up, but the head pressure did not, nor did the vertigo or nystagmus and vestibular nerve damage.I also have rather severe hypoglycemia. It's possible the coffee is increasing adrenaline which improves the low blood sugar and decreases food cravings.a>> a, I wonder if your trigeminal nerve was somehow injured during > the exam. Did the headaches start immediately or some time > afterwards? Do the symptoms fit into any of the major categories of > headache (migraine, cluster, tension...)? Tried Imitrex or some other > migraine medication? Stopped Recup for a few days?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2007 Report Share Posted May 17, 2007 So what infection would dilate veins? I got this pressure headache, damaged vestibular nerves and vertigo following a fever and what looked like a minor viral illness. Now I have a huge level of IgG EBV - did I get reactivated mono from the vocal cord exam? a in Wonderland > > My migraines are only helped through vasoconstrictors (although vasoconstrictors like Immitrex & pseudophedrine also make my heart feel very iffy). But narcotics don't work at all for me. Since vasoconstriction helps, that indicates that increased blood volume and the resulting pressure on nerves is one major cause of migraines. Other things may also increase pressure on those nerves (like elevated or fluctuating cerebrospinal fluid). > > I read recently that a very large percentage of people who have surgical forehead lifts suddenly stop having migraines. Theory is that perhaps it desensitizes the nerves somehow, but they don't really know. > > The other big breakthrough in migraines was the recent study that showed that repairing a small hole between the chambers of the heart (to prevent heart attacks) had the startling side effect of curing almost everyone who had suffered from migraines up to that point. > > Obviously, migraines (and some other headaches) must be caused by vascular problems which cause enough swelling/inflammation to cause nerve irritation. For some reason, most people don't suffer, so either their nerves aren't as sensitive or apparently their bodies adapt better to increased intracranial pressure? Perhaps it's people who already have increased csf levels who are the ones who are overly sensitive to headaches as they can't effectively cope with any further increase in pressure whether vascular, hormonal, atmospheric or...? > > penny > > > > phagelod <mpalmer@...> wrote: > a > > I cited two papers for you describing caffeine and hypotension. You > re-posted one, but it was the other one that offered a possible > mechanism for the pain relief that caffeine may give for a low > pressure headache: > > " It seems that not the low CSF pressure itself is the cause for the > headache but the unphysiological, increased vasodilatation of > intracranial and epidural veins. " > > http://tinyurl.com/22dn6e > > That is why I referred to the vasoconstricting effects of caffeine. > > Have you tested the influence of caffeine by " pulsing " it? One day > on, the other off. > > I'm thinking that the vasculature may build tolerance to the effects > of caffiene, but I'm not sure. If it does you may return to > previous pain levels even with the caffiene, and experience an > exacerbation of the pain when you stop the caffiene. > > Matt > > > > > > > Yes, I goofed by saying caffeine expands blood vessels, it > constricts > > them. BUT THAT DOESN'T MAKE ANY SENSE EITHER, DOES IT? Why does > > caffeine help some migraines and make others worse? Why would > > constricting blood vessels in my case help anything? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2007 Report Share Posted May 17, 2007 I took diflucan one month alone. It did nothing. Then I took penicillin one month alone. I had a few days of relief. The headache returned. I took diflucan and penicillin combined, on your recommendation - didn't tell the doc - for a month. The headache stayed the same - no relief - sometimes worse. I got a note from Sharon Briggs. She told me she was doing Valcyte a la Montoya studies and was doing great. So I got my doc to run the virus tests and give me Valtrex plus 500 mg of Zithromax a day. I noted after a week on Valtrex that coffee got rid of the headache or mostly so. Also, my lab test for EBV came back with an " off the chart " high IgG. Meanwhile it is now 2 weeks and I am still doing well - more energy - can work all day and run around. Is it Valtrex " Coffee? Too soon to tell. a > > To me the thrush is the big red flag. > > I remember you said that for a few days the diflucan and penicillin seemed to help the headache a lot. I can dig up the posts if you really want. > > This indicates that you could very well have what a lot of us have. A combo bacterial/fungal infection. In my experience, the diflucan doesn't work for long. I found V-fend to be more effective and Lamisil to be most effective. > > If the headache comes back, I'd ask the doc to switch anti- fungals for you and see how your headache responds. Personally, I can't do anti-fungals alone just as I can't do antibiotics alone. I need both. > > penny > > > pjeanneus <pj7@...> wrote: > I got sick with something 12 hours after the exam. It was like a mild > flu. All the symptoms started at that time including a few days of > thrush which cleared up, but the head pressure did not, nor did the > vertigo or nystagmus and vestibular nerve damage. > > I also have rather severe hypoglycemia. It's possible the coffee is > increasing adrenaline which improves the low blood sugar and decreases > food cravings. > > a > > > > > a, I wonder if your trigeminal nerve was somehow injured during > > the exam. Did the headaches start immediately or some time > > afterwards? Do the symptoms fit into any of the major categories > of > > headache (migraine, cluster, tension...)? Tried Imitrex or some > other > > migraine medication? Stopped Recup for a few days? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 a WHAT IS MONO!!!!!!!!! It's just one of those terms used by doctors describing your throat infection. IT MEANS NOTHING! It also means you ain't going to get any treatment! unfortuntely...I woulkd much prefer a throat swab and you have pseudonomal infection or an MRSA infection rather than being told it's mono or even trying to interpret high EBV titers, which again means nothing and most importantly- NO TREATMENT! a you have had thyroid issues followed by voice box issues- could you possably have had an ongoing infection in these regions that woke up and escalated at the oppurtunity arising from the examination... I personally feel that our ilnesses are amplified and lie in the CO2 zones of our body hence the throat and frequent lung manifestations of ill health.. cheers tony > > > > > > > > Yes, I goofed by saying caffeine expands blood vessels, it > > constricts > > > them. BUT THAT DOESN'T MAKE ANY SENSE EITHER, DOES IT? Why does > > > caffeine help some migraines and make others worse? Why would > > > constricting blood vessels in my case help anything? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Hello Tony, You are not listening. I don't have a sore throat and have not had a lung infection or sinus infection in 14 years. I had no clue I had mono. I just have a sky high EBV IgG titre. I also have elevated C reactive protein, signs of infection in a urine test and elevated hemoglobin. I had my vocal cords examined, not because I was sick, but because I used to be a classical singer, first soprano soloist and developed a weird vibration in my vocal cords. I figured it was a polyp. It was not. There are a few of us now who look like we have borrelia, mycoplasma and EBV and HHV6 all combined. Hey, no one is more surprised than me. But just because it doesn't fit my pet theory for 10 years doesn't mean I am not willing to add Valtrex. And, yes, my doctor did prescribe Valtrex. She will prescribe Valcyte if I get a positive HHV6 lab result. So how's the weather in aussie land? Las Vegas is HOT and sunny. a > > a > WHAT IS MONO!!!!!!!!! It's just one of those terms used by doctors > describing your throat infection. IT MEANS NOTHING! It also means you > ain't going to get any treatment! unfortuntely...I woulkd much prefer > a throat swab and you have pseudonomal infection or an MRSA infection > rather than being told it's mono or even trying to interpret high EBV > titers, which again means nothing and most importantly- NO TREATMENT! > a you have had thyroid issues followed by voice box issues- could > you possably have had an ongoing infection in these regions that woke > up and escalated at the oppurtunity arising from the examination... > I personally feel that our ilnesses are amplified and lie in the CO2 > zones of our body hence the throat and frequent lung manifestations > of ill health.. > cheers tony > > > > > > > > > > So what infection would dilate veins? I got this pressure headache, > > damaged vestibular nerves and vertigo following a fever and what > > looked like a minor viral illness. Now I have a huge level of IgG > > EBV - did I get reactivated mono from the vocal cord exam? > > > > a in Wonderland > > > > > > > > My migraines are only helped through vasoconstrictors (although > > vasoconstrictors like Immitrex & pseudophedrine also make my heart > > feel very iffy). But narcotics don't work at all for me. Since > > vasoconstriction helps, that indicates that increased blood volume > > and the resulting pressure on nerves is one major cause of > migraines. > > Other things may also increase pressure on those nerves (like > > elevated or fluctuating cerebrospinal fluid). > > > > > > I read recently that a very large percentage of people who have > > surgical forehead lifts suddenly stop having migraines. Theory is > > that perhaps it desensitizes the nerves somehow, but they don't > > really know. > > > > > > The other big breakthrough in migraines was the recent study > that > > showed that repairing a small hole between the chambers of the > heart > > (to prevent heart attacks) had the startling side effect of curing > > almost everyone who had suffered from migraines up to that point. > > > > > > Obviously, migraines (and some other headaches) must be caused > by > > vascular problems which cause enough swelling/inflammation to cause > > nerve irritation. For some reason, most people don't suffer, so > > either their nerves aren't as sensitive or apparently their bodies > > adapt better to increased intracranial pressure? Perhaps it's > people > > who already have increased csf levels who are the ones who are > overly > > sensitive to headaches as they can't effectively cope with any > > further increase in pressure whether vascular, hormonal, > atmospheric > > or...? > > > > > > penny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 PAula Everyone read this, it's my mass reply!!!YOU ARE THE ONE THAT " S NOT LISTENING.a if you read carefully on the forums you may notice the 'mass similarity' that somethings going on in people's HEADS!!!!!!!!!!!!!!!!!!!!!!!!!You have chosen to go off into an alice in wonderland diagnostic of mycoplasma positive, or/plus an antibiotic driven borrelia positive..Ummmmm How comfortable do you sit with that as a scientific diagnosis?You've obviously avoided querying the what's in your head that's causing the mass similarity of symptoms complained by everyone else on many forums problem.. My problem is, I " M LISTENING, And taking notes- I " LL REPEAT THAT LAST BIT, TAKING NOTES!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!Do you understand anything about toxin or toxic problems?you've never mentioned anything on this topic.. I mean your so on the frontline of these ilnesses- yet have turned your head to the elephants your confronted with of this disease process... On the valtrex, valcyte, I couldn't give a rats ass... I feel annything that can break the quorum sensing aspect of these ilnesses can give you a false sense of being on the right track... your mission is to get the facts- like membrane damaging toxins and worm holing capabilities of these bacteria and toxins.So chase a real villain and a better understanding of what is destroying you, as is the case with many others, that keep complaining about problems in THE HEAD....... cheers tony- a little bit tipsy at this time of the night..... > > > > > > So what infection would dilate veins? I got this pressure > headache, > > > damaged vestibular nerves and vertigo following a fever and what > > > looked like a minor viral illness. Now I have a huge level of IgG > > > EBV - did I get reactivated mono from the vocal cord exam? > > > > > > a in Wonderland > > > > > > > > > > > My migraines are only helped through vasoconstrictors (although > > > vasoconstrictors like Immitrex & pseudophedrine also make my > heart > > > feel very iffy). But narcotics don't work at all for me. Since > > > vasoconstriction helps, that indicates that increased blood > volume > > > and the resulting pressure on nerves is one major cause of > > migraines. > > > Other things may also increase pressure on those nerves (like > > > elevated or fluctuating cerebrospinal fluid). > > > > > > > > I read recently that a very large percentage of people who > have > > > surgical forehead lifts suddenly stop having migraines. Theory is > > > that perhaps it desensitizes the nerves somehow, but they don't > > > really know. > > > > > > > > The other big breakthrough in migraines was the recent study > > that > > > showed that repairing a small hole between the chambers of the > > heart > > > (to prevent heart attacks) had the startling side effect of > curing > > > almost everyone who had suffered from migraines up to that point. > > > > > > > > Obviously, migraines (and some other headaches) must be > caused > > by > > > vascular problems which cause enough swelling/inflammation to > cause > > > nerve irritation. For some reason, most people don't suffer, so > > > either their nerves aren't as sensitive or apparently their > bodies > > > adapt better to increased intracranial pressure? Perhaps it's > > people > > > who already have increased csf levels who are the ones who are > > overly > > > sensitive to headaches as they can't effectively cope with any > > > further increase in pressure whether vascular, hormonal, > > atmospheric > > > or...? > > > > > > > > penny > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Hello Tony, I haven't had head symptoms for 8 years. Only time I had them was the first 2 years I was sick and then this past year out of the blue, and, guess what, my EBV titre was up back then. Am I aware of toxins? Which ones? I react to toxic mold. I could be a mold dog. What am I infected with? mycoplasma fermentans, borrelia, babesia mycoplasmal pneumonia, and EBV, maybe HHV6???? So what's the big deal about adding Valtrex to the antibiotics? Why not? I haven't had the nerve to quit drinking coffee yet. But since you are still drinking beer, I guess I can be a caffeine addict. Watch out for them crocs on your way home at night, Tony. a > > PAula > Everyone read this, it's my mass reply!!!YOU ARE THE ONE THAT " S NOT > LISTENING.a if you read carefully on the forums you may notice > the 'mass similarity' that somethings going on in people's > HEADS!!!!!!!!!!!!!!!!!!!!!!!!!You have chosen to go off into an alice > in wonderland diagnostic of mycoplasma positive, or/plus an > antibiotic driven borrelia positive..Ummmmm How comfortable do you > sit with that as a scientific diagnosis?You've obviously avoided > querying the what's in your head that's causing the mass similarity > of symptoms complained by everyone else on many forums problem.. > My problem is, I " M LISTENING, And taking notes- I " LL REPEAT THAT LAST > BIT, TAKING NOTES!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!Do you > understand anything about toxin or toxic problems?you've never > mentioned anything on this topic.. I mean your so on the frontline of > these ilnesses- yet have turned your head to the elephants your > confronted with of this disease process... > On the valtrex, valcyte, I couldn't give a rats ass... I feel > annything that can break the quorum sensing aspect of these ilnesses > can give you a false sense of being on the right track... your > mission is to get the facts- like membrane damaging toxins and worm > holing capabilities of these bacteria and toxins.So chase a real > villain and a better understanding of what is destroying you, as is > the case with many others, that keep complaining about problems in > THE HEAD....... > cheers tony- a little bit tipsy at this time of the night..... > > > > > > > > > > > > So what infection would dilate veins? I got this pressure > > headache, > > > > damaged vestibular nerves and vertigo following a fever and > what > > > > looked like a minor viral illness. Now I have a huge level of > IgG > > > > EBV - did I get reactivated mono from the vocal cord exam? > > > > > > > > a in Wonderland > > > > > > > > > > > > > > My migraines are only helped through vasoconstrictors > (although > > > > vasoconstrictors like Immitrex & pseudophedrine also make my > > heart > > > > feel very iffy). But narcotics don't work at all for me. Since > > > > vasoconstriction helps, that indicates that increased blood > > volume > > > > and the resulting pressure on nerves is one major cause of > > > migraines. > > > > Other things may also increase pressure on those nerves (like > > > > elevated or fluctuating cerebrospinal fluid). > > > > > > > > > > I read recently that a very large percentage of people who > > have > > > > surgical forehead lifts suddenly stop having migraines. Theory > is > > > > that perhaps it desensitizes the nerves somehow, but they don't > > > > really know. > > > > > > > > > > The other big breakthrough in migraines was the recent > study > > > that > > > > showed that repairing a small hole between the chambers of the > > > heart > > > > (to prevent heart attacks) had the startling side effect of > > curing > > > > almost everyone who had suffered from migraines up to that > point. > > > > > > > > > > Obviously, migraines (and some other headaches) must be > > caused > > > by > > > > vascular problems which cause enough swelling/inflammation to > > cause > > > > nerve irritation. For some reason, most people don't suffer, so > > > > either their nerves aren't as sensitive or apparently their > > bodies > > > > adapt better to increased intracranial pressure? Perhaps it's > > > people > > > > who already have increased csf levels who are the ones who are > > > overly > > > > sensitive to headaches as they can't effectively cope with any > > > > further increase in pressure whether vascular, hormonal, > > > atmospheric > > > > or...? > > > > > > > > > > penny > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 PAula my point was missed again. You are at the forefront of these conditions-almost like an authority figure of this whole auto immune mess. You go to all the medical seminars and just about get up on stage your so high up in the door knocking and answer searching business for cfs/lyme. But for some reason you've got yourself in this little corner and just show that you DON " T PAY ATTENTION to what it is that ails everyone in this whole menagerie of symptoms. ME is the english word for cfs it is called myalgic encephalitis reffering to a problem in the head encephalopathy..surprisingly it's a softer version of meningitis- neck stiffness, headaches, visual problems but not as intense- in full blown meningitis the ducs don't think your chin can touch your chest-just another of those brilliant medical tests- NOT!!! Now to show your ignorance, you claim 'no head problems' since you first come down with the condition?If anyone with these conditions didn't have head problems they really wouldn't have this ilness- 96% of people with these ilnesses have sinus infections .Our penny has the sinus infection from hell and she didn't have a symptom of sinus problems.I'm pretty comfortable in anatomy that a sinus infection isn't that far from your inner ear/brain, POSSABLY GIVING YOU A MYRIAD OF OTHER PROBLEMS that you seem to have, yet have no answer for, nor show any real passion to venture away from your pet pathogen diagnosis...Yet from shoemaker and esoterix you have the highly resistant, reactive, microbes with all the bells and whistles damaging toxins but we don't really want to get an idea where they are at? cheers recovering tony > > > > > > > > > > So what infection would dilate veins? I got this pressure > > > headache, > > > > > damaged vestibular nerves and vertigo following a fever and > > what > > > > > looked like a minor viral illness. Now I have a huge level of > > IgG > > > > > EBV - did I get reactivated mono from the vocal cord exam? > > > > > > > > > > a in Wonderland > > > > > > > > > > > > > > > > > My migraines are only helped through vasoconstrictors > > (although > > > > > vasoconstrictors like Immitrex & pseudophedrine also make my > > > heart > > > > > feel very iffy). But narcotics don't work at all for me. > Since > > > > > vasoconstriction helps, that indicates that increased blood > > > volume > > > > > and the resulting pressure on nerves is one major cause of > > > > migraines. > > > > > Other things may also increase pressure on those nerves (like > > > > > elevated or fluctuating cerebrospinal fluid). > > > > > > > > > > > > I read recently that a very large percentage of people > who > > > have > > > > > surgical forehead lifts suddenly stop having migraines. > Theory > > is > > > > > that perhaps it desensitizes the nerves somehow, but they > don't > > > > > really know. > > > > > > > > > > > > The other big breakthrough in migraines was the recent > > study > > > > that > > > > > showed that repairing a small hole between the chambers of > the > > > > heart > > > > > (to prevent heart attacks) had the startling side effect of > > > curing > > > > > almost everyone who had suffered from migraines up to that > > point. > > > > > > > > > > > > Obviously, migraines (and some other headaches) must be > > > caused > > > > by > > > > > vascular problems which cause enough swelling/inflammation to > > > cause > > > > > nerve irritation. For some reason, most people don't suffer, > so > > > > > either their nerves aren't as sensitive or apparently their > > > bodies > > > > > adapt better to increased intracranial pressure? Perhaps it's > > > > people > > > > > who already have increased csf levels who are the ones who > are > > > > overly > > > > > sensitive to headaches as they can't effectively cope with > any > > > > > further increase in pressure whether vascular, hormonal, > > > > atmospheric > > > > > or...? > > > > > > > > > > > > penny > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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