Re: Cysts Busters and Children

[Guest guest]

Robin, I wish I could help with your questions, but I'm new to all of

this, but....

I do have neurological Lyme symptoms. I have severe depression and

HIGH anxiety, cannot think, cannot handle stress, cannot remember a

thing. I feel like I'm yelling at my kids all the time b/c I'm

constantly over-stimulated, over-stressed. I'm trying to get a grip

on it, but I've never felt this out of control of my life. I want to

be a good role model for my kids, obviously, and I am not right now.

That's the worst part about depression for me is knowing that my kids

deserve the Mom I should/could be if I wasn't neurologically

impaired. I've never been depressed before this last year and a half

and it has just taken a toll on my entire family. I'm on Lexapro,

Klonopin, Xanax...I would like to treat naturally, but can only do so

much as far as money goes. And...frankly, I'm terrified of being as

depressed as I was when I first asked for help. I was crying all day,

everyday for no apparent reason, chest pains, the most excruciating

anxiety!

If you have successfully dealt with this naturally, affordably) and

have a good option for how to make this better so that I can get off

of these drugs I would greatly appreciate it.

I was seeing a holistic dr and I spent 15k last year just on me and I

was feeling better, but she doesn't take ins, of course. My

supplements were starting to get close to 1k per month. That doesn't

include my ASD son and now with our entire family infected with Lyme.

What can you do?????? ahhhhh...... So overwhelmed.

Thanks for listening and I wish I could help you more, but you are

NOT alone with the neurological symtpoms. How do yours manifest?

Blessings to all,

Sandi

>

> My daughter is on abx. I know that the cyst form is probably

forming.

> From what I understand all antimicrobials will put lyme into cyst

> form. How do you all address that? Our doctor told me that it is

> difficult to treat children with lyme because the drugs are hard on

> them and really meant for adults... the ones that get teh cell wall

> deficient forms as well as the ones that get the cyst forms..

>

> DD has been on doxy 6 weeks, now on ceftin 3 weeks then doxy 3

weeks.

> I am starting to fear I have started the a future cyst explosion

that

> we cant deal with.

>

> She has had simple die offs. Shaky legs a few days, tremoring

fingers

> on and off that cause no pain, fatigue on and off, headaches, but

> thats about it. She's 11.

>

> She is on Unda drops and modifilin.

>

> How do you all address this with your kids? I think I remember

grape

> seed extract? Is that it and what others then how with a child? Can

> homeopathics take care of it? Can you just wait for the next round

> and then how do you stay ahead of the game IF they multiply in cyst

> form? Does the KMT help or Valkion? Does the KMT put into cyst

form?

> I think Rife is not supposed to. Would valkion?

>

> Thank you. You all are amazing and amazingly smart, and I am

> overwhelmed again. Cant keep up. I cannot imagine dealing with what

> you all deal with.

>

> Do any of you have neurolyme and how do you handle that and taking

> such good care of your children staying on top of things like you

do?

> I go in spurts where I process the info, then poof.. I cant think

or

> handle stress very well.

>

> Robin

>

[Guest guest]

Sandi,

I completely identify with your description. It is this inability to

handle stress. Some days I am fine (and controlled) and other days it

is so hard. I feel for these children with neuro symptoms. I have a

logical mind. I can think about what is going on, but they cant. I

feel overwhelmed sensory wise.. noise, lights. I can crash

emotionally. I now know why I would wail in the past before lyme

diagnosis scrubbing the floor when a watermelon rotted on the wood

floor.. I forgot it was there and I wailed uncontrollably. That does

not happen as much except when I am on abx that hit the BBB and then

I am a nut case. Last time was zith and art. I crashed so hard..

depression like a boulder, crying all day over everything. This was

about 6 months ago and I would not touch an abx or antimicrobial for

months. I played with cumanda and samento a little. Then I had a bad

flare this fall. It was neurological again. Back to basket case.

Anxiety crying hard to think and make decisions.. this is all a low

to med hum with me all the time, esp the anxiety and decision

making.. which brings on anxiety. So new doc and I choose to go for

it.. low dose mino working up to 100 twice a day. Up to full dose and

I crash within a couple of days. We back off and I have been on half

dose since. The DAY after I backed off, I was about 80% better. It

must be controlling but not really killing. Or the flare has past or

they are in cyst. Whatever. We are starting flagyl (my first time)

very slowly.

I have small little tremors in my upper back and shakes. This can

travel into my arms and legs. I can feel this stuff in my spinal

cord. My sinuses seem to be involved when I have some of these

neurosymptoms. I think it must be inflammation. They throb then my

bhead does,,, cant deal with light and noise then its all downhill

from there.. those are the thinking and dealing with stress symptoms

and maybe some anxiety. The crying is another thing. The tremors and

shakes I cant tell where they come from except my spinal cord

possibly.

While I was on salt c (off because of abx) I did once have little

scabs on my back. I think I am infested in my CNS.

I am curious as to what antimicrobials penetrate the BBB. Do any of

the Nutramedix products?

Thank you Sandi. It is overwhelming. We are new to this and to find

out the whole family (except my son who muscle tested neg.. for

today) is infected.. its just a shock. The money. How to treat. The

info.. then putting the info together to make sense. Then deciding

what info to use.. and on and on. The brain fog and anxiety.. like a

haze of smoldering fire penetrating the brain.. Why cant this be

simpler? I think I am on every supplement known to man.. and have had

so many tests, then I hear of all these other tests that I dont have

access to. I'm lucky to get a homeopath who muscle tests. Do we need

those tests? I just want a simpler solution!

I hope the valkion comes with instructions my husband can read.:-D

Robin

> >

> > My daughter is on abx. I know that the cyst form is probably

> forming.

> > From what I understand all antimicrobials will put lyme into cyst

> > form. How do you all address that? Our doctor told me that it is

> > difficult to treat children with lyme because the drugs are hard

on

> > them and really meant for adults... the ones that get teh cell

wall

> > deficient forms as well as the ones that get the cyst forms..

> >

> > DD has been on doxy 6 weeks, now on ceftin 3 weeks then doxy 3

> weeks.

> > I am starting to fear I have started the a future cyst explosion

> that

> > we cant deal with.

> >

> > She has had simple die offs. Shaky legs a few days, tremoring

> fingers

> > on and off that cause no pain, fatigue on and off, headaches, but

> > thats about it. She's 11.

> >

> > She is on Unda drops and modifilin.

> >

> > How do you all address this with your kids? I think I remember

> grape

> > seed extract? Is that it and what others then how with a child?

Can

> > homeopathics take care of it? Can you just wait for the next

round

> > and then how do you stay ahead of the game IF they multiply in

cyst

> > form? Does the KMT help or Valkion? Does the KMT put into cyst

> form?

> > I think Rife is not supposed to. Would valkion?

> >

> > Thank you. You all are amazing and amazingly smart, and I am

> > overwhelmed again. Cant keep up. I cannot imagine dealing with

what

> > you all deal with.

> >

> > Do any of you have neurolyme and how do you handle that and

taking

> > such good care of your children staying on top of things like you

> do?

> > I go in spurts where I process the info, then poof.. I cant think

> or

> > handle stress very well.

> >

> > Robin

> >

>