Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 a I'm going to bet my house you've got sinuses from hell and your that stubborn about what you want your disease to be you'll never get real answers.You basically can't have such a rotten head problem without having a massive infection festering in there.. I must also have the mold gene yet it's disappearing with my infection.. Again the most studied area of this disease process 'viral infections' rears it's ugly head... > > > > > > > > > > > > > > > > > > So what infection would dilate veins? I got this > > pressure > > > > > > > headache, > > > > > > > > > damaged vestibular nerves and vertigo following a > fever > > > and > > > > > > what > > > > > > > > > looked like a minor viral illness. Now I have a huge > > > level > > > > of > > > > > > IgG > > > > > > > > > EBV - did I get reactivated mono from the vocal cord > > exam? > > > > > > > > > > > > > > > > > > a in Wonderland > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My migraines are only helped through > vasoconstrictors > > > > > > (although > > > > > > > > > vasoconstrictors like Immitrex & pseudophedrine also > > make > > > > my > > > > > > > heart > > > > > > > > > feel very iffy). But narcotics don't work at all for > > me. > > > > > Since > > > > > > > > > vasoconstriction helps, that indicates that increased > > > blood > > > > > > > volume > > > > > > > > > and the resulting pressure on nerves is one major > cause > > > of > > > > > > > > migraines. > > > > > > > > > Other things may also increase pressure on those > nerves > > > > (like > > > > > > > > > elevated or fluctuating cerebrospinal fluid). > > > > > > > > > > > > > > > > > > > > I read recently that a very large percentage of > > > people > > > > > who > > > > > > > have > > > > > > > > > surgical forehead lifts suddenly stop having > migraines. > > > > > Theory > > > > > > is > > > > > > > > > that perhaps it desensitizes the nerves somehow, but > > they > > > > > don't > > > > > > > > > really know. > > > > > > > > > > > > > > > > > > > > The other big breakthrough in migraines was the > > > recent > > > > > > study > > > > > > > > that > > > > > > > > > showed that repairing a small hole between the > chambers > > > of > > > > > the > > > > > > > > heart > > > > > > > > > (to prevent heart attacks) had the startling side > > effect > > > of > > > > > > > curing > > > > > > > > > almost everyone who had suffered from migraines up to > > > that > > > > > > point. > > > > > > > > > > > > > > > > > > > > Obviously, migraines (and some other headaches) > > must > > > be > > > > > > > caused > > > > > > > > by > > > > > > > > > vascular problems which cause enough > > > swelling/inflammation > > > > to > > > > > > > cause > > > > > > > > > nerve irritation. For some reason, most people don't > > > > suffer, > > > > > so > > > > > > > > > either their nerves aren't as sensitive or apparently > > > their > > > > > > > bodies > > > > > > > > > adapt better to increased intracranial pressure? > > Perhaps > > > > it's > > > > > > > > people > > > > > > > > > who already have increased csf levels who are the > ones > > > who > > > > > are > > > > > > > > overly > > > > > > > > > sensitive to headaches as they can't effectively cope > > > with > > > > > any > > > > > > > > > further increase in pressure whether vascular, > > hormonal, > > > > > > > > atmospheric > > > > > > > > > or...? > > > > > > > > > > > > > > > > > > > > penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 God, Tony, I think you should give up on this one because if you don't I'm going to scream. I just can't handle another one of these posts from a. She simply does not hear anything but what she wants to hear. We've been warning her of exactly this for how long now?... and yet here she is, completely surprised by what's happening to her. It's hopeless. By the way, Tony, your writing has improved tremendously. Is it the alcohol? :-) penny dumbaussie2000 <dumbaussie2000@...> wrote: aI'm going to bet my house you've got sinuses from hell and your that stubborn about what you want your disease to be you'll never get real answers.You basically can't have such a rotten head problem without having a massive infection festering in there..I must also have the mold gene yet it's disappearing with my infection..Again the most studied area of this disease process 'viral infections' rears it's ugly head...> > > > > > > > >> > > > > > > > > So what infection would dilate veins? I got this > > pressure > > > > > > > headache, > > > > > > > > > damaged vestibular nerves and vertigo following a > fever > > > and > > > > > > what > > > > > > > > > looked like a minor viral illness. Now I have a huge > > > level > > > > of > > > > > > IgG > > > > > > > > > EBV - did I get reactivated mono from the vocal cord > > exam?> > > > > > > > > > > > > > > > > > a in Wonderland> > > > > > > > > > > > > > > > > > >> > > > > > > > > > My migraines are only helped through > vasoconstrictors > > > > > > (although > > > > > > > > > vasoconstrictors like Immitrex & pseudophedrine also > > make > > > > my > > > > > > > heart > > > > > > > > > feel very iffy). But narcotics don't work at all for > > me. > > > > > Since > > > > > > > > > vasoconstriction helps, that indicates that increased > > > blood > > > > > > > volume > > > > > > > > > and the resulting pressure on nerves is one major > cause > > > of > > > > > > > > migraines. > > > > > > > > > Other things may also increase pressure on those > nerves > > > > (like > > > > > > > > > elevated or fluctuating cerebrospinal fluid). > > > > > > > > > > > > > > > > > > > > I read recently that a very large percentage of > > > people > > > > > who > > > > > > > have > > > > > > > > > surgical forehead lifts suddenly stop having > migraines. > > > > > Theory > > > > > > is > > > > > > > > > that perhaps it desensitizes the nerves somehow, but > > they > > > > > don't > > > > > > > > > really know.> > > > > > > > > > > > > > > > > > > > The other big breakthrough in migraines was the > > > recent > > > > > > study > > > > > > > > that > > > > > > > > > showed that repairing a small hole between the > chambers > > > of > > > > > the > > > > > > > > heart > > > > > > > > > (to prevent heart attacks) had the startling side > > effect > > > of > > > > > > > curing > > > > > > > > > almost everyone who had suffered from migraines up to > > > that > > > > > > point.> > > > > > > > > > > > > > > > > > > > Obviously, migraines (and some other headaches) > > must > > > be > > > > > > > caused > > > > > > > > by > > > > > > > > > vascular problems which cause enough > > > swelling/inflammation > > > > to > > > > > > > cause > > > > > > > > > nerve irritation. For some reason, most people don't > > > > suffer, > > > > > so > > > > > > > > > either their nerves aren't as sensitive or apparently > > > their > > > > > > > bodies > > > > > > > > > adapt better to increased intracranial pressure? > > Perhaps > > > > it's > > > > > > > > people > > > > > > > > > who already have increased csf levels who are the > ones > > > who > > > > > are > > > > > > > > overly > > > > > > > > > sensitive to headaches as they can't effectively cope > > > with > > > > > any > > > > > > > > > further increase in pressure whether vascular, > > hormonal, > > > > > > > > atmospheric > > > > > > > > > or...?> > > > > > > > > > > > > > > > > > > > penny> > > > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 Penny On the writing front I'm actually reading back before I press send. I alway's felt people would interact alot more about trying to get to grips with toxins, infections, bacterial resistances, and the like, so I felt a lot of backward and forward sessions of communication would take place and obviously the people passionate about there disease wouldn't leave a stone unturned- but after several years, this obviously ain't the case.I'm just amazed at how after so much time on forums people don't even step up to the plate and just push the envelope a little further at there doctors appointments('nothing changes' is what I keep observing).. On another front a claims you know we can't do that here..We'll you know our mutual friend Penny puts all that to bed and actually demands, gets, works everything to her total advantage- because she has the balls to get herself diagnosed BEST and treated with the BEST TREATMENTS.So don't tell me after all these years you don't want to devise a strategy to get your sick asses taken care of margianally better... because when our close friend corresponds with her friends there treatment strategies go thru the stratosphere. An egs would be our friend from san fran getting treated by her lyme doctor for lyme, osteomyelitis, and constantly using multiple treatment abx regimes required to get her better.. tony > > > > > > > > > > > > > > > > > > > > So what infection would dilate veins? I got this > > > pressure > > > > > > > > headache, > > > > > > > > > > damaged vestibular nerves and vertigo following a > > fever > > > > and > > > > > > > what > > > > > > > > > > looked like a minor viral illness. Now I have a > huge > > > > level > > > > > of > > > > > > > IgG > > > > > > > > > > EBV - did I get reactivated mono from the vocal > cord > > > exam? > > > > > > > > > > > > > > > > > > > > a in Wonderland > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My migraines are only helped through > > vasoconstrictors > > > > > > > (although > > > > > > > > > > vasoconstrictors like Immitrex & pseudophedrine > also > > > make > > > > > my > > > > > > > > heart > > > > > > > > > > feel very iffy). But narcotics don't work at all > for > > > me. > > > > > > Since > > > > > > > > > > vasoconstriction helps, that indicates that > increased > > > > blood > > > > > > > > volume > > > > > > > > > > and the resulting pressure on nerves is one major > > cause > > > > of > > > > > > > > > migraines. > > > > > > > > > > Other things may also increase pressure on those > > nerves > > > > > (like > > > > > > > > > > elevated or fluctuating cerebrospinal fluid). > > > > > > > > > > > > > > > > > > > > > > I read recently that a very large percentage of > > > > people > > > > > > who > > > > > > > > have > > > > > > > > > > surgical forehead lifts suddenly stop having > > migraines. > > > > > > Theory > > > > > > > is > > > > > > > > > > that perhaps it desensitizes the nerves somehow, > but > > > they > > > > > > don't > > > > > > > > > > really know. > > > > > > > > > > > > > > > > > > > > > > The other big breakthrough in migraines was the > > > > recent > > > > > > > study > > > > > > > > > that > > > > > > > > > > showed that repairing a small hole between the > > chambers > > > > of > > > > > > the > > > > > > > > > heart > > > > > > > > > > (to prevent heart attacks) had the startling side > > > effect > > > > of > > > > > > > > curing > > > > > > > > > > almost everyone who had suffered from migraines up > to > > > > that > > > > > > > point. > > > > > > > > > > > > > > > > > > > > > > Obviously, migraines (and some other headaches) > > > must > > > > be > > > > > > > > caused > > > > > > > > > by > > > > > > > > > > vascular problems which cause enough > > > > swelling/inflammation > > > > > to > > > > > > > > cause > > > > > > > > > > nerve irritation. For some reason, most people > don't > > > > > suffer, > > > > > > so > > > > > > > > > > either their nerves aren't as sensitive or > apparently > > > > their > > > > > > > > bodies > > > > > > > > > > adapt better to increased intracranial pressure? > > > Perhaps > > > > > it's > > > > > > > > > people > > > > > > > > > > who already have increased csf levels who are the > > ones > > > > who > > > > > > are > > > > > > > > > overly > > > > > > > > > > sensitive to headaches as they can't effectively > cope > > > > with > > > > > > any > > > > > > > > > > further increase in pressure whether vascular, > > > hormonal, > > > > > > > > > atmospheric > > > > > > > > > > or...? > > > > > > > > > > > > > > > > > > > > > > penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 Yes, Tony, keeping our ears open, and talking with and learning from our peers is key. Sometimes I think perhaps I'm fortunate that the fatigue has kept me from jumping on every treatment that comes along. Out of necessity I've had to sit back and watch and wait for others' results. I've made some mistakes, (i.e hyperbaric oxygen chamber, Marshall Protocol-except the ARB part) but I've also avoided some really bad mistakes made by my more energetic counterparts, ie. biophosphonates for Osteomyelitis, which turns out can cause more bone death than it grows. Mainly, by listening carefully to the hoardes of people who take the more conventional paths (like autoimmune or EBV), or who jump on the latest alternative band wagon cures (like glutathione depletion), I can tell (as can you), the treatment plans to not waste my precious time on. penny dumbaussie2000 <dumbaussie2000@...> wrote: PennyOn the writing front I'm actually reading back before I press send. I alway's felt people would interact alot more about trying to get to grips with toxins, infections, bacterial resistances, and the like, so I felt a lot of backward and forward sessions of communication would take place and obviously the people passionate about there disease wouldn't leave a stone unturned- but after several years, this obviously ain't the case.I'm just amazed at how after so much time on forums people don't even step up to the plate and just push the envelope a little further at there doctors appointments('nothing changes' is what I keep observing)..On another front a claims you know we can't do that here..We'll you know our mutual friend Penny puts all that to bed and actually demands, gets, works everything to her total advantage- because she has the balls to get herself diagnosed BEST and treated with the BEST TREATMENTS.So don't tell me after all these years you don't want to devise a strategy to get your sick asses taken care of margianally better... because when our close friend corresponds with her friends there treatment strategies go thru the stratosphere. An egs would be our friend from san fran getting treated by her lyme doctor for lyme, osteomyelitis, and constantly using multiple treatment abx regimes required to get her better..tony> > > > > > > > > >> > > > > > > > > > So what infection would dilate veins? I got this > > > pressure > > > > > > > > headache, > > > > > > > > > > damaged vestibular nerves and vertigo following a > > fever > > > > and > > > > > > > what > > > > > > > > > > looked like a minor viral illness. Now I have a > huge > > > > level > > > > > of > > > > > > > IgG > > > > > > > > > > EBV - did I get reactivated mono from the vocal > cord > > > exam?> > > > > > > > > > > > > > > > > > > > a in Wonderland> > > > > > > > > > > > > > > > > > > > >> > > > > > > > > > > My migraines are only helped through > > vasoconstrictors > > > > > > > (although > > > > > > > > > > vasoconstrictors like Immitrex & pseudophedrine > also > > > make > > > > > my > > > > > > > > heart > > > > > > > > > > feel very iffy). But narcotics don't work at all > for > > > me. > > > > > > Since > > > > > > > > > > vasoconstriction helps, that indicates that > increased > > > > blood > > > > > > > > volume > > > > > > > > > > and the resulting pressure on nerves is one major > > cause > > > > of > > > > > > > > > migraines. > > > > > > > > > > Other things may also increase pressure on those > > nerves > > > > > (like > > > > > > > > > > elevated or fluctuating cerebrospinal fluid). > > > > > > > > > > > > > > > > > > > > > > I read recently that a very large percentage of > > > > people > > > > > > who > > > > > > > > have > > > > > > > > > > surgical forehead lifts suddenly stop having > > migraines. > > > > > > Theory > > > > > > > is > > > > > > > > > > that perhaps it desensitizes the nerves somehow, > but > > > they > > > > > > don't > > > > > > > > > > really know.> > > > > > > > > > > > > > > > > > > > > > The other big breakthrough in migraines was the > > > > recent > > > > > > > study > > > > > > > > > that > > > > > > > > > > showed that repairing a small hole between the > > chambers > > > > of > > > > > > the > > > > > > > > > heart > > > > > > > > > > (to prevent heart attacks) had the startling side > > > effect > > > > of > > > > > > > > curing > > > > > > > > > > almost everyone who had suffered from migraines up > to > > > > that > > > > > > > point.> > > > > > > > > > > > > > > > > > > > > > Obviously, migraines (and some other headaches) > > > must > > > > be > > > > > > > > caused > > > > > > > > > by > > > > > > > > > > vascular problems which cause enough > > > > swelling/inflammation > > > > > to > > > > > > > > cause > > > > > > > > > > nerve irritation. For some reason, most people > don't > > > > > suffer, > > > > > > so > > > > > > > > > > either their nerves aren't as sensitive or > apparently > > > > their > > > > > > > > bodies > > > > > > > > > > adapt better to increased intracranial pressure? > > > Perhaps > > > > > it's > > > > > > > > > people > > > > > > > > > > who already have increased csf levels who are the > > ones > > > > who > > > > > > are > > > > > > > > > overly > > > > > > > > > > sensitive to headaches as they can't effectively > cope > > > > with > > > > > > any > > > > > > > > > > further increase in pressure whether vascular, > > > hormonal, > > > > > > > > > atmospheric > > > > > > > > > > or...?> > > > > > > > > > > > > > > > > > > > > > penny> > > > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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