Re: Leg Jigglers

[Guest guest]

Pretty much anything moving, jiggling, rubbing or picking in my peripheral vision...without the need to make any noise. Yeah, the exact same negative and offensive feelings and response. If everything and everyone could be still and noiseless I think that life would be perfect ) I was just thinking how interesting it would be if we all got together for a dinner party...I guess it would be a foodless, gumless, body noisless, chewless, plate and silverwareless party and we would all sit VERY still, not make ANY sounds or movements and tried desperately not to breathe while we all sat and stared at eachother...have our mouths taped over and we would communicate telepathically...or by blinking...(that is, until blinking became a problem).I have never

really been with anyone that has the same condition as me. I can imagine being so hypersensitive to what the other person was feeling...for those of you with family members that also have 4S...do those family members that have the same condition bother you as well? Do you find it easier to communicate with them about the things that bother you?Also, has anyone tried EMDR?andraTo: Soundsensitivity Sent: Sunday, November 23, 2008 10:10:57 AMSubject:

Leg Jigglers

They don't USUALLY make any sounds (unless they have keys or change in their pockets, or they're kicking a table or something).......but the leg jiggling causes the SAME response in me as offensive sounds....anxiety, anger, the need to look away/ escape (though it's not always possible)Anyone else have an aversion to leg jigglers?------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

Holy cow that totally brought back a memory that I had long forgotton

from when I was a kid. I remember my dad used to carry change and keys

in his pockets and he'd always have his hand in his pocket shuffling it

all around. clank, clink, clank, clink.... I hated it! I remember

telling him to stop playing with his pockets! LOL. I've not noticed

that bothering me since... though come to think of it I'm not around

anyone who does that thank heavens!!

>

> They don't USUALLY make any sounds (unless they have keys or change

in their pockets, or

> they're kicking a table or something)....

>

> ...but the leg jiggling causes the SAME response in me as offensive

sounds....anxiety, anger,

> the need to look away/ escape (though it's not always possible)

>

> Anyone else have an aversion to leg jigglers?

>

[Guest guest]

I remember my dad doing that when I was younger also. Though strangely enough, not in my later years, I guess he grew out of it...I actually remember a couple of older men when I was younger that used to CONSTANTLY, jingle change in their pockets without stopping. It was as if it used to help them think. I started suspecting whether they planted the change in their pockets JUST so that they could play with it. I don't see that anymore...I guess it was fad...soon it'll be shuffling credit cards )From: Darlene

To: Soundsensitivity Sent: Sunday, November 23, 2008 2:54:53 PMSubject: Re: Leg Jigglers

Holy cow that totally brought back a memory that I had long forgotton from when I was a kid. I remember my dad used to carry change and keys in his pockets and he'd always have his hand in his pocket shuffling it all around. clank, clink, clank, clink.... I hated it! I remember telling him to stop playing with his pockets! LOL. I've not noticed that bothering me since... though come to think of it I'm not around anyone who does that thank heavens!!>> They don't USUALLY make any sounds (unless they have keys or change in their pockets, or > they're kicking a table or something)....> > ...but the leg jiggling causes the SAME response in me as offensive

sounds....anxiety, anger, > the need to look away/ escape (though it's not always possible)> > Anyone else have an aversion to leg jigglers?>------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

Not so much with the leg jiggling unless they are jingling keys and

coins around then I have a problem. For me it is more with the FEET. It

twists me up inside to see someone move their feet around and wiggle

their toes, either barefoot or in socks. I cannot look at their feet and

makes me frustrated. If they are wearing shoes I don't have as big of a

problem.

[Guest guest]

I know what you mean...I don't understand it why it's worse if someone has their shoes off. For some reason when it's a "slithering" and "curling" it's worse than when it's just a bigger mass "waving."Does anyone hate murmuring? Like the murmuring that you would hear from a conversation or TV playing in the other room? This was horrible and used to really get to me as a child...it still does but it depends on the person, TV, loudness and environment. For some reason when it's LOUD or YELLING it doesn't bother me...it's the murmuring that's just horrible. andra To: Soundsensitivity Sent: Sunday, November 23, 2008 6:44:33 PMSubject: Re: Leg Jigglers

Not so much with the leg jiggling unless they are jingling keys and coins around then I have a problem. For me it is more with the FEET. It twists me up inside to see someone move their feet around and wiggle their toes, either barefoot or in socks. I cannot look at their feet and makes me frustrated. If they are wearing shoes I don't have as big of a problem.------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

Wow, I am glad to hear someone else mention the jingling of keys and

coins with hands in pockets. Thank you andra!

Growing up I noticed older men who wore suits always with their hands in

their pockets jingling their keys and coins. I always hated having to go

to anything formal like a wedding or funeral because of that. All I

could hear were the keys and coins jingling and not what people were

saying. It made my ears hurt and made me frustrated.

In high school and college teachers would do the same thing while

teaching the class. And of course it affected my grades because I could

not concentrate in class because all I heard was keys and coins

jingling. For some reason I was under the impression that it would be

rude and not appropriate for me to ask them to stop. I would sit as far

away from the teacher as I could and just endure the pain as madly as I

could bear.

I had a job once where my boss would stand next to my ear and jingle the

keys and coins in his pocket. I've mentioned it before in this group.

When I finally had the courage to ask him to stop doing that he reacted

as if I was crazy. He did not believe it was causing me intense pain in

my ear and pulled all the stuff in his pockets out and threw them all

over his desk! I ended up quitting and never returning to that job ever

again because I had reached my breaking point.

-Randall

[Guest guest]

I had the same problem too. As a kid when family would watch TV and I of

course was expected to too, I always had to put pillows up around me to

block out the movements of all my family members, so I could focus on

the TV set. Otherwise it would twist me up inside and make me extremely

uncomfortable. To this day I still have to do the same thing. That is

why I don't watch TV or movies much ever with anyone. So sad.

[Guest guest]

Wow, I thought for sure I was the only one with this problem. Peripheral moving visuals It makes it extremely difficult or impossible to pay attention to anything. I can't even read on the train anymore...so hard to focus. It feels as though I have to be on constant "surveillance" and then you just can't relax...unless I'm at home, alone with no movements and no noises. I never realized how difficult it is for us until I started to share my experiences...I guess we really do become consumed by such negative feelings and thoughts. But if we all work together there is hope and we will find a way to make this manageable for us all. Then we will all have a gum party where we chew and pop like crazy!!! (such a horrid thought at the moment)To: Soundsensitivity Sent: Monday, November 24, 2008 1:07:31 AMSubject: Re: Leg Jigglers

I had the same problem too. As a kid when family would watch TV and I of course was expected to too, I always had to put pillows up around me to block out the movements of all my family members, so I could focus on the TV set. Otherwise it would twist me up inside and make me extremely uncomfortable. To this day I still have to do the same thing. That is why I don't watch TV or movies much ever with anyone. So sad.------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

I absolutely abhor gum chewing. My sister would always chew gum when I

was a kid and I had to plea with my mother to tell her to stop.

Especially when I was stuck in the car with her.

When I ride on our Lane Transit District buses here, I usually have to

find a seat where I can look away from everyone. Otherwise I end up

closing my eyes for most of the ride.

A few times I've been stuck across from someone who was snapping their

gum. My eyes close and the volume on the headphones go up! That is the

only way I can survive it. A lot of times people don't respect you

asking them to stop chewing the gum.

I usually spend most of my time alone in my room unless I have to go

downtown or out to deliver my route early in the morning. Being out in

the early morning is nice because there is usually nobody around and I

can wear my headphones and be able to truly relax and not be so stressed

out.

During the day it is harder to do that because there are sounds and

people everywhere and I have to be on constant " surveillance " as you

described it. That is tiring when you have other things you have to

focus on too.

I'm always battling being consumed by negative feelings and thoughts. It

is hard not to feel that way when you have to deal with this 24/7. I

feel like I'm being robbed of my life and ability to succeed because I'm

having to deal with this distressing condition all the time.

I am seeing a Therapist initially to get help with this. What she is

able to do is help me better manage how I go about my life dealing with

this condition. She can't get rid of it for me, but she has been helping

me learn how to reduce the stress I feel from it.

It helps, but I am exhausted from having to deal with this condition so

much. It is very disabling, yet I can't get anyone to consider it a

disability!

[Guest guest]

As for leg jiggling, it's always bothered me. Or my husband does this

thing like he's waving his foot really fast. It relaxes him...it

drives me crazy!

As for the " murmuring, " I know what you're talking about. It's like

the bass travels through the walls, and that's all you can hear. That

one is worse for me when I'm trying to sleep.

>

> I know what you mean...I don't understand it why it's worse if

someone has their shoes off. For some reason when it's a " slithering "

and " curling " it's worse than when it's just a bigger mass " waving. "

>

> Does anyone hate murmuring? Like the murmuring that you would hear

from a conversation or TV playing in the other room? This was

horrible and used to really get to me as a child...it still does but

it depends on the person, TV, loudness and environment. For some

reason when it's LOUD or YELLING it doesn't bother me...it's the

murmuring that's just horrible.

>

> andra

>

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Sunday, November 23, 2008 6:44:33 PM

> Subject: Re: Leg Jigglers

>

> Not so much with the leg jiggling unless they are jingling keys and

> coins around then I have a problem. For me it is more with the FEET. It

> twists me up inside to see someone move their feet around and wiggle

> their toes, either barefoot or in socks. I cannot look at their feet

and

> makes me frustrated. If they are wearing shoes I don't have as big of a

> problem.

>

> ------------------------------------

>

> PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO

MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP

MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

>

> ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

> Thank you. MJ

[Guest guest]

Depends how tired I am but if im in bad way then yes it sure

does any movement out of the side of my eyes causes me to slip, not so much

anger as with other sounds but it more overloads my senses and I cant think....

hmmm Cant figure that one out

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of incognita72

Sent: Sunday, 23 November 2008 12:11 PM

To: Soundsensitivity

Subject: Leg Jigglers

They don't USUALLY make any sounds (unless they

have keys or change in their pockets, or

they're kicking a table or something)....

....but the leg jiggling causes the SAME response in me as offensive

sounds....anxiety, anger,

the need to look away/ escape (though it's not always possible)

Anyone else have an aversion to leg jigglers?

[Guest guest]

Thanks for that that made me laugh J

My girlfriend has a lesser degree then my self of 4S but sadly

like so many of us as time goes by it gets worse. I do find it easier to talk to

her about it all rather then my family even though my family is very

understanding, its just simpler to talk about something that is very hard to

explain to someone who already gets it....

In one way it is similar but in another its much harder, as we

both work off each others moods and if she is in a bad way with 4s im soon to

fall into a slip, but luckly for her it is not the other way around as much

unless she is tired. When we move out of home next year it is going to be a lot

easer for us as we know all the noises that are annoying and instinctively dodge

them so therefore our 4s will shrink... hopefully.... Funny that we find each

other as partners both with the same condition.

Rich

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of andra Ruiz

Sent: Sunday, 23 November 2008 12:58 PM

To: Soundsensitivity

Subject: Re: Leg Jigglers

Pretty

much anything moving, jiggling, rubbing or picking in my peripheral

vision...without the need to make any noise. Yeah, the exact same

negative and offensive feelings and response. If everything and everyone

could be still and noiseless I think that life would be perfect )

I was just thinking how interesting it would be if we all got together for a

dinner party...I guess it would be a foodless, gumless, body noisless,

chewless, plate and silverwareless party and we would all sit VERY still, not

make ANY sounds or movements and tried desperately not to breathe while we all

sat and stared at eachother...have our mouths taped over and we would

communicate telepathically...or by blinking...(that is, until blinking became a

problem).

I have never really been with anyone that has the same condition as me. I

can imagine being so hypersensitive to what the other person was feeling...for

those of you with family members that also have 4S...do those family members

that have the same condition bother you as well? Do you find it easier to

communicate with them about the things that bother you?

Also, has anyone tried EMDR?

andra

To: Soundsensitivity

Sent: Sunday, November 23, 2008 10:10:57 AM

Subject: Leg Jigglers

They don't USUALLY make any sounds (unless they have keys or change in their

pockets, or

they're kicking a table or something)....

....but the leg jiggling causes the SAME response in me as offensive

sounds....anxiety, anger,

the need to look away/ escape (though it's not always possible)

Anyone else have an aversion to leg jigglers?

------------------------------------

PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE

USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED

OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

Thank you. MJ

[Guest guest]

Leg bouncers/jigglers make me crazy. It might as well be a triggering sound. Just having it in my peripheral vision is enough make my skin crawl. I definitely have the anger, agitation, anxiety reaction. I immediately find myself looking for the nearest exit or way out to get as far away as possible from the person. It's awful!

Depends how tired I am but if im in bad way then yes it sure

does any movement out of the side of my eyes causes me to slip, not so much

anger as with other sounds but it more overloads my senses and I cant think....

hmmm Cant figure that one out

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of incognita72

Sent: Sunday, 23 November 2008 12:11 PM

To: Soundsensitivity

Subject: Leg Jigglers

They don't USUALLY make any sounds (unless they

have keys or change in their pockets, or

they're kicking a table or something)....

....but the leg jiggling causes the SAME response in me as offensive

sounds....anxiety, anger,

the need to look away/ escape (though it's not always possible)

Anyone else have an aversion to leg jigglers?

[Guest guest]

Hey Rich...wow, what a coincidence that your girlfriend has the same condition. Did you meet her through a 4s group? I'm wondering because if not then it just makes me feel like this condition is much more common than we all think. I envy you...it must be nice for your partner to know what it feels like and be able to relate to you.You're right, it does gets worse at time goes by...never really seems to improve which makes me worry. I also worry about having children as I think about the chances of this being inherited and how horrible I would feel to pass this on to my children. Would love to hear your thoughts...andraTo: Soundsensitivity Sent: Monday, November 24, 2008 10:44:12 AMSubject: RE: Leg Jigglers

Thanks for that that made me laugh J My girlfriend has a lesser degree then my self of 4S but sadly

like so many of us as time goes by it gets worse. I do find it easier to talk to

her about it all rather then my family even though my family is very

understanding, its just simpler to talk about something that is very hard to

explain to someone who already gets it.... In one way it is similar but in another its much harder, as we

both work off each others moods and if she is in a bad way with 4s im soon to

fall into a slip, but luckly for her it is not the other way around as much

unless she is tired. When we move out of home next year it is going to be a lot

easer for us as we know all the noises that are annoying and instinctively dodge

them so therefore our 4s will shrink... hopefully.... Funny that we find each

other as partners both with the same condition. Rich

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of andra Ruiz

Sent: Sunday, 23 November 2008 12:58 PM

To: Soundsensitivity

Subject: Re: Leg Jigglers

Pretty

much anything moving, jiggling, rubbing or picking in my peripheral

vision...without the need to make any noise. Yeah, the exact same

negative and offensive feelings and response. If everything and everyone

could be still and noiseless I think that life would be perfect )

I was just thinking how interesting it would be if we all got together for a

dinner party...I guess it would be a foodless, gumless, body noisless,

chewless, plate and silverwareless party and we would all sit VERY still, not

make ANY sounds or movements and tried desperately not to breathe while we all

sat and stared at eachother...have our mouths taped over and we would

communicate telepathically...or by blinking...(that is, until blinking became a

problem).

I have never really been with anyone that has the same condition as me. I

can imagine being so hypersensitive to what the other person was feeling...for

those of you with family members that also have 4S...do those family members

that have the same condition bother you as well? Do you find it easier to

communicate with them about the things that bother you?

Also, has anyone tried EMDR?

andra

To: Soundsensitivity

Sent: Sunday, November 23, 2008 10:10:57 AM

Subject: Leg Jigglers

They don't USUALLY make any sounds (unless they have keys or change in their

pockets, or

they're kicking a table or something)....

....but the leg jiggling causes the SAME response in me as offensive

sounds....anxiety, anger,

the need to look away/ escape (though it's not always possible)

Anyone else have an aversion to leg jigglers?

------------------------------------

PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE

USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED

OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

Thank you. MJ

[Guest guest]

Hi andra,

It is a coincidence, I wonder if the likes attract likes saying

has more to it then I was ever aware. I did not meet her through a group, when

I met her 6 years ago i had no idea that she had the condition, in fact at that

time I only had the condition on a very low level. (she used to be a chronic

chip chomper but I guess its amazing what you can put up with for the people

you care about) i think this condition is more common then I first through, i

was talking to my girlfriend the other night and asked her to talk about when

she first thought it started. ( I will make another post to the forum about

this soonish) But she mentioned that there was a time before she met me and

could define the condition that she remembered being at the dinner table and becoming

very very angry with others around her, in her words she was a bitch. She and

her family were never very good with expressing emotions or feelings, in fact

they were excellent at the opposite, hiding and ignoring their feelings. She

mentioned that she felt the anger but could not identify where it was coming

from she just knew she was annoyed at something.

Maybe this is something that a lot of people have, they

have the condition but don’t know how to identify it and as such never

look into it. Sometimes I wished that I never learned my triggers and could

just force them away and just “be annoyed” and not know why, easy

to get over that way and not worry when walking into a room full of people

eating....

It is wonderful to have someone at home to talk with, but done

be envious, you have all of us J

I too worry about the chance of passing it onto the next

generation, in fact I worry even further that the more that we think about that

happening the more likely it will happen due to the neural pathways being excessively

formed, what do they call that , genetic memory??.... just thinking out loud.

Sometimes it scares me away from thinking about a future family.... sad really.

But, I believe that we are on the frontier of finding a cure for

4s. The energy of the people inside this group are causing ripples throughout

the medical world, and with the internet at our fingertips the snow ball is

gathering momentum and with each letter we type each new doctor we make aware,

there is hope of a future for us and our children without 4S. That is a day

that we can look back on this day and realise all of us made this possible.

I live for that day.

Rich.

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of andra Ruiz

Sent: Monday, 24 November 2008 12:56 PM

To: Soundsensitivity

Subject: Re: Leg Jigglers

Hey

Rich...wow, what a coincidence that your girlfriend has the same

condition. Did you meet her through a 4s group? I'm wondering

because if not then it just makes me feel like this condition is much more

common than we all think. I envy you...it must be nice for your partner

to know what it feels like and be able to relate to you.

You're right, it does gets worse at time goes by...never really seems to

improve which makes me worry. I also worry about having children as I

think about the chances of this being inherited and how horrible I would feel

to pass this on to my children. Would love to hear your thoughts...

andra

To: Soundsensitivity

Sent: Monday, November 24, 2008 10:44:12 AM

Subject: RE: Leg Jigglers

Thanks for that that made me laugh J

My girlfriend has a lesser degree then

my self of 4S but sadly like so many of us as time goes by it gets worse. I do

find it easier to talk to her about it all rather then my family even though my

family is very understanding, its just simpler to talk about something that is

very hard to explain to someone who already gets it....

In one way it is similar but in another

its much harder, as we both work off each others moods and if she is in a bad

way with 4s im soon to fall into a slip, but luckly for her it is not the other

way around as much unless she is tired. When we move out of home next year it

is going to be a lot easer for us as we know all the noises that are annoying

and instinctively dodge them so therefore our 4s will shrink... hopefully.... Funny

that we find each other as partners both with the same condition.

Rich

From: Soundsensitivity [mailto:Soundsensitivity ]

On Behalf Of andra Ruiz

Sent: Sunday, 23 November 2008 12:58 PM

To: Soundsensitivity

Subject: Re: Leg Jigglers

Pretty much anything moving,

jiggling, rubbing or picking in my peripheral vision...without the need to make

any noise. Yeah, the exact same negative and offensive feelings and

response. If everything and everyone could be still and noiseless I think

that life would be perfect )

I was just thinking how interesting it would be if we all got together for a

dinner party...I guess it would be a foodless, gumless, body noisless,

chewless, plate and silverwareless party and we would all sit VERY still, not

make ANY sounds or movements and tried desperately not to breathe while we all

sat and stared at eachother...have our mouths taped over and we would

communicate telepathically...or by blinking...(that is, until blinking became a

problem).

I have never really been with anyone that has the same condition as me. I

can imagine being so hypersensitive to what the other person was feeling...for

those of you with family members that also have 4S...do those family members

that have the same condition bother you as well? Do you find it easier to

communicate with them about the things that bother you?

Also, has anyone tried EMDR?

andra

From:

incognita72

To: Soundsensitivity

Sent: Sunday, November 23, 2008 10:10:57 AM

Subject: Leg Jigglers

They don't USUALLY make any sounds (unless they have keys or change in their

pockets, or

they're kicking a table or something)....

....but the leg jiggling causes the SAME response in me as offensive

sounds....anxiety, anger,

the need to look away/ escape (though it's not always possible)

Anyone else have an aversion to leg jigglers?

------------------------------------

PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE

USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED

OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

Thank you. MJ

[Guest guest]

Beautifully said...going for the tissues now!!!To: Soundsensitivity Sent: Monday, November 24, 2008 11:39:16 AMSubject: RE: Leg Jigglers

Hi andra, It is a coincidence, I wonder if the likes attract likes saying

has more to it then I was ever aware. I did not meet her through a group, when

I met her 6 years ago i had no idea that she had the condition, in fact at that

time I only had the condition on a very low level. (she used to be a chronic

chip chomper but I guess its amazing what you can put up with for the people

you care about) i think this condition is more common then I first through, i

was talking to my girlfriend the other night and asked her to talk about when

she first thought it started. ( I will make another post to the forum about

this soonish) But she mentioned that there was a time before she met me and

could define the condition that she remembered being at the dinner table and becoming

very very angry with others around her, in her words she was a bitch. She and

her family were never very good with expressing emotions or feelings, in fact

they were excellent at the opposite, hiding and ignoring their feelings. She

mentioned that she felt the anger but could not identify where it was coming

from she just knew she was annoyed at something. Maybe this is something that a lot of people have, they

have the condition but don’t know how to identify it and as such never

look into it. Sometimes I wished that I never learned my triggers and could

just force them away and just “be annoyed” and not know why, easy

to get over that way and not worry when walking into a room full of people

eating.... It is wonderful to have someone at home to talk with, but done

be envious, you have all of us J I too worry about the chance of passing it onto the next

generation, in fact I worry even further that the more that we think about that

happening the more likely it will happen due to the neural pathways being excessively

formed, what do they call that , genetic memory??.... just thinking out loud.

Sometimes it scares me away from thinking about a future family.... sad really. But, I believe that we are on the frontier of finding a cure for

4s. The energy of the people inside this group are causing ripples throughout

the medical world, and with the internet at our fingertips the snow ball is

gathering momentum and with each letter we type each new doctor we make aware,

there is hope of a future for us and our children without 4S. That is a day

that we can look back on this day and realise all of us made this possible.

I live for that day. Rich.

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of andra Ruiz

Sent: Monday, 24 November 2008 12:56 PM

To: Soundsensitivity

Subject: Re: Leg Jigglers

Hey

Rich...wow, what a coincidence that your girlfriend has the same

condition. Did you meet her through a 4s group? I'm wondering

because if not then it just makes me feel like this condition is much more

common than we all think. I envy you...it must be nice for your partner

to know what it feels like and be able to relate to you.

You're right, it does gets worse at time goes by...never really seems to

improve which makes me worry. I also worry about having children as I

think about the chances of this being inherited and how horrible I would feel

to pass this on to my children. Would love to hear your thoughts...

andra

To: Soundsensitivity

Sent: Monday, November 24, 2008 10:44:12 AM

Subject: RE: Leg Jigglers

Thanks for that that made me laugh J My girlfriend has a lesser degree then

my self of 4S but sadly like so many of us as time goes by it gets worse. I do

find it easier to talk to her about it all rather then my family even though my

family is very understanding, its just simpler to talk about something that is

very hard to explain to someone who already gets it.... In one way it is similar but in another

its much harder, as we both work off each others moods and if she is in a bad

way with 4s im soon to fall into a slip, but luckly for her it is not the other

way around as much unless she is tired. When we move out of home next year it

is going to be a lot easer for us as we know all the noises that are annoying

and instinctively dodge them so therefore our 4s will shrink... hopefully.... Funny

that we find each other as partners both with the same condition. Rich

From: Soundsensitivity [mailto:Soundsensitivity ]

On Behalf Of andra Ruiz

Sent: Sunday, 23 November 2008 12:58 PM

To: Soundsensitivity

Subject: Re: Leg Jigglers

Pretty much anything moving,

jiggling, rubbing or picking in my peripheral vision...without the need to make

any noise. Yeah, the exact same negative and offensive feelings and

response. If everything and everyone could be still and noiseless I think

that life would be perfect )

I was just thinking how interesting it would be if we all got together for a

dinner party...I guess it would be a foodless, gumless, body noisless,

chewless, plate and silverwareless party and we would all sit VERY still, not

make ANY sounds or movements and tried desperately not to breathe while we all

sat and stared at eachother...have our mouths taped over and we would

communicate telepathically...or by blinking...(that is, until blinking became a

problem).

I have never really been with anyone that has the same condition as me. I

can imagine being so hypersensitive to what the other person was feeling...for

those of you with family members that also have 4S...do those family members

that have the same condition bother you as well? Do you find it easier to

communicate with them about the things that bother you?

Also, has anyone tried EMDR?

andra

From:

incognita72

To: Soundsensitivity

Sent: Sunday, November 23, 2008 10:10:57 AM

Subject: Leg Jigglers

They don't USUALLY make any sounds (unless they have keys or change in their

pockets, or

they're kicking a table or something)....

....but the leg jiggling causes the SAME response in me as offensive

sounds....anxiety, anger,

the need to look away/ escape (though it's not always possible)

Anyone else have an aversion to leg jigglers?

------------------------------------

PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE

USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED

OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

Thank you. MJ

[Guest guest]

I'm going to tape that to my mirror and read it each day... I live

for that day too!

> But, I believe that we are on the frontier of finding a cure for

4s. The

> energy of the people inside this group are causing ripples

throughout the

> medical world, and with the internet at our fingertips the snow

ball is

> gathering momentum and with each letter we type each new doctor we

make

> aware, there is hope of a future for us and our children without

4S. That is

> a day that we can look back on this day and realise all of us made

this

> possible. I live for that day.

>

>

>

> Rich.

>

[Guest guest]

Yes definitely, I can't stand it, I have to put a cushion on my lap or something or hide the offender's legs, or feet. My mom moves her feet in a circular motion and bites her lips. Aghhh!!! Bless her though, I do love her a lot.

To: Soundsensitivity Sent: Sunday, November 23, 2008 1:10:57 AMSubject: Leg Jigglers

They don't USUALLY make any sounds (unless they have keys or change in their pockets, or they're kicking a table or something).. .....but the leg jiggling causes the SAME response in me as offensive sounds....anxiety, anger, the need to look away/ escape (though it's not always possible)Anyone else have an aversion to leg jigglers?

[Guest guest]

This is very strange. I hate murmuring. When I was a kid trying to do homework and people talking in another room. My husband has to have the tv really low when I am in bed and he is downstairs. It drives me mad, so I put cotton wool in my ears.

To: Soundsensitivity Sent: Sunday, November 23, 2008 1:16:19 PMSubject: Re: Leg Jigglers

I know what you mean...I don't understand it why it's worse if someone has their shoes off. For some reason when it's a "slithering" and "curling" it's worse than when it's just a bigger mass "waving."Does anyone hate murmuring? Like the murmuring that you would hear from a conversation or TV playing in the other room? This was horrible and used to really get to me as a child...it still does but it depends on the person, TV, loudness and environment. For some reason when it's LOUD or YELLING it doesn't bother me...it's the murmuring that's just horrible. andra

From: Randall <coderandgmail (DOT) com>To: Soundsensitivity@ yahoogroups. comSent: Sunday, November 23, 2008 6:44:33 PMSubject: Re: Leg JigglersNot so much with the leg jiggling unless they are jingling keys and coins around then I have a problem. For me it is more with the FEET. It twists me up inside to see someone move their feet around and wiggle their toes, either barefoot or in socks. I cannot look at their feet and makes me frustrated. If they are wearing shoes I don't have as big of a problem.------------ --------- --------- ------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR

REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

My Dad always jangles his coins in his pockets and I end up snapping at him. If my husband walks around shopping with his keys, I just say 'shall I put those in my bag for you'. He knows why I am saying it.

To: Soundsensitivity Sent: Sunday, November 23, 2008 4:01:30 PMSubject: Re: Re: Leg Jigglers

Wow, I am glad to hear someone else mention the jingling of keys and coins with hands in pockets. Thank you andra!Growing up I noticed older men who wore suits always with their hands in their pockets jingling their keys and coins. I always hated having to go to anything formal like a wedding or funeral because of that. All I could hear were the keys and coins jingling and not what people were saying. It made my ears hurt and made me frustrated.In high school and college teachers would do the same thing while teaching the class. And of course it affected my grades because I could not concentrate in class because all I heard was keys and coins jingling. For some reason I was under the impression that it would be rude and not appropriate for me to ask them to stop. I would sit as far away from the teacher as I could and just endure the pain as madly as I could bear.I had a job once

where my boss would stand next to my ear and jingle the keys and coins in his pocket. I've mentioned it before in this group. When I finally had the courage to ask him to stop doing that he reacted as if I was crazy. He did not believe it was causing me intense pain in my ear and pulled all the stuff in his pockets out and threw them all over his desk! I ended up quitting and never returning to that job ever again because I had reached my breaking point.-Randall

[Guest guest]

I believe it! I don't watch TV with anyone hardly ever anymore, because

it is unsettling.

wrote:

>

>

> I have spent so much time behind cushions, you wouldn't believe!! Or

> maybe you would.

>

> ------------------------------------------------------------------------

> *From:* Randall

> *To:* Soundsensitivity

> *Sent:* Sunday, November 23, 2008 4:07:31 PM

> *Subject:* Re: Leg Jigglers

>

> I had the same problem too. As a kid when family would watch TV and I of

> course was expected to too, I always had to put pillows up around me to

> block out the movements of all my family members, so I could focus on

> the TV set. Otherwise it would twist me up inside and make me extremely

> uncomfortable. To this day I still have to do the same thing. That is

> why I don't watch TV or movies much ever with anyone. So sad.

[Guest guest]

Hi Randall,Thanks for sharing your experience. I know it's very difficult at times but you are very strong, keep hanging in there. Do you actually have "pain" in your ears? This is not a problem for me, I experience the emotional pain most but not any ear pain. Do you have the emotional pain in ADDITION to ear pain? If that's the case I can imagine it must just be unbearable.I'm sure the parents nor the child knew what kind of impact it was having on you. If they had, I'm sure that they would have done something to stop it. Sometimes we tend to think people should perceive the stimulus and understand it's effects the same as we do. It can be hard to realize that most people are completely oblivious, unaware and these noises

don't affect them in the least.It sounds like you are in a great deal of pain...I wish you the best of luck and will be praying for all of us to find some relief from this.Best,andraTo: Soundsensitivity Sent: Tuesday, November 25, 2008 1:32:46 AMSubject: Re: Re: Leg Jigglers

Hi .I'm always having to remind my family and friends about not jingling keys around me too. Sometimes they remember and some times they forget. They just don't seem to understand that when I hear the keys jingling I have to then deal with pain in my ears. Even when they stop I still have to deal with the pain.That is why I wear headphones most the time, to try and filter out the trigger sounds like the keys. The downside of doing that is it makes it hard to be in a conversation. Oh well, better than going crazy with the pain.I was standing in line at my credit union a couple of months ago (thank goodness I was wearing my headphones) and the couple behind me gave their little 3 year old son their keys. He was walking around jingling them. No one else seemed to care and I could not believe it!I was so thankful when it was my turn and I had to turn down my headphones so I

could communicate with the teller, that the kid had stopped jingling the keys for a brief period. When I was leaving he started jingling them again!It was insane, if I had a kid I would never let him jingle keys that loudly in a public place!-Randall------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

....AND I have a severe problem with things in my periphery. Growing

up, there couldn't be anybody in front of me when we were watching TV.

I'd be too distracted by their movements. And my dad always had his

foot up on the ottoman, wiggling his toes in his socks, and I couldn't

watch TV with that going on, so I'd surround myself with pillows to

keep myself from seeing it.

I wonder if it's not so much an auditory problem we have, but a

general oversensitivity to stimulation. I also can't stand the feeling

of tags in shirts. When I was a kid I couldn't wear turtlenecks

because I felt like they were choking me. If I see wiggling or

movement--ESPECIALLY feet--out of the corner of my eye, my

concentration goes right out the window. And all the sound stuff, too.

Weird.

[Guest guest]

Hi Randall,Wow, it sounds like you're really being tortured daily with this. I was reading through your email and saw how similar your symptoms are to someone suffering from hyperacusis. Could you be suffering from that? I'm sure you have already looked into this and I was curious as to how your symptoms are different...if indeed they are. Could your anger be coming from the frustration and constant pain you have to endure. I'm struggling to understand the difference between those symptoms that qualify as hyperacusis and those that fall under the realm of SSSS.Thanks,andraTo: Soundsensitivity Sent: Tuesday, November 25, 2008 2:56:01 AMSubject: Re: Re: Leg Jigglers

Hi andra,Thanks for writing back.Yes I do feel actual pain in my ears. I get gnarly headaches sometimes too if the sound is intense enough. I do also have the emotional pain in addition to the physical pain. I've been seeing a therapist and she's helping me with the emotional side of it.It can be unbearable and it is worse when I am in the middle of having to do something and it becomes unbearable. I used to have more endurance to endure the pain when I was younger. But 25 years or so of dealing with this, my endurance has faded a lot. I can only imagine someone who has had to deal with this even longer than that!My parents really had no clue, even when I told them my ears were hurting from the sound they made, like doing dishes. That caused a big chunk of the emotional pain, because as a kid I felt I had to endure this condition and hide it, because I wasn't suppose to be

feeling this way. Where do we learn to feel like that as children?!That makes me sad and why I'm so happy parent's are in this group seeking help for their children. I also grew up in a religion where I wasn't taken to see doctors, so I felt I had to heal myself and if I couldn't then I had to hide my condition and pretend I had been healed. That just made things even worse.My mother feels bad about that and if she could do it over again she would now choose to have taken me to see a doctor for help. I appreciate my mother feeling that way now, but it doesn't help me now. The damage has already been done and I'm having to deal with that now.I deal with pain all the time. I mostly have to be a recluse or I wear my headphones when I have to go out and about. Even then I still run into situations where sounds are so loud they cause me pain. I'm very thankful I'm able to see the therapist

right now. She has been a great help to me.I so want to find someone who deals with this same condition so we can make a home together where we both can feel relaxed and not on edge all the time. You are right when people don't understand this condition it is hard to do that.-Randall------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

Hi andra,

I do have Hyperacusis. I am sensitive to high frequency sounds like keys

and dishes. But I also have symptoms of 4S like gum chewing, the sound

of paper rubbing against paper, and the sound of people scuffing their

feet across the floor for example. The latter two feels like someone

rubbing sand paper across my ear drum. Ouch!

And of course visual things like people wiggling their feet and toes. I

also have to deal with really bad Tinnitus where I hear loud high

pitched tones in my ears 24/7. It is frustrating and painful dealing

with all of these every day.

The one person who has been able to give some help was Dr. Marsha

, moderator of this group. I saw her about 3 or so years ago and

got a pair of Sound Generators which I've been wearing ever since. Of

course the cost was prohibitive, but I was fortunate to get some help to

pay for them. They really don't help with the Hyperacusis, but do help

to mask most but not all of my Tinnitus. And filter out some sounds like

computer hum.

I was fortunate to be able to get some Health Insurance through my State

last year and it is now paying for me to see a Therapist. She has been

helping me with my anger and depression and the emotional side of

dealing with all I've mentioned above. She seems to believe me about

what I deal with. I never realized how helpful seeing a therapist could

be. But, I still deal with the pain and frustration of having these

conditions.

A way I would describe it is like I live within reach of a giant wasp

nest where I am always getting stung and their is nothing I can do about

it. Everyday I have to deal with the pain and frustration of being stung

multiple times, and sometimes having an allergic reaction. The only

thing I can do is wear a suit the wasps can't get into. Hence wearing

headphones listening to brown noise so I don't get " stung " by the sounds

that cause pain in my ears.

Of course doing that makes it harder to be around others, converse with

others, engage in social activities, be able to work, etc.. But if I

don't I'll lose my sanity. I do hope more research will be done into

these conditions. It just seems like trying to make that happen is like

pulling teeth!

-Randall