Re: Leg Jigglers

[Guest guest]

Randall,

Your example about the wasp nest fits perfectly, I feel very

sorry for you and wish you the best, It must be a very tough struggle.

R

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of Randall

Sent: Tuesday, 25 November 2008 8:37 PM

To: Soundsensitivity

Subject: Re: Re: Leg Jigglers

Hi andra,

I do have Hyperacusis. I am sensitive to high frequency sounds like keys

and dishes. But I also have symptoms of 4S like gum chewing, the sound

of paper rubbing against paper, and the sound of people scuffing their

feet across the floor for example. The latter two feels like someone

rubbing sand paper across my ear drum. Ouch!

And of course visual things like people wiggling their feet and toes. I

also have to deal with really bad Tinnitus where I hear loud high

pitched tones in my ears 24/7. It is frustrating and painful dealing

with all of these every day.

The one person who has been able to give some help was Dr. Marsha

, moderator of this group. I saw her about 3 or so years ago and

got a pair of Sound Generators which I've been wearing ever since. Of

course the cost was prohibitive, but I was fortunate to get some help to

pay for them. They really don't help with the Hyperacusis, but do help

to mask most but not all of my Tinnitus. And filter out some sounds like

computer hum.

I was fortunate to be able to get some Health Insurance through my State

last year and it is now paying for me to see a Therapist. She has been

helping me with my anger and depression and the emotional side of

dealing with all I've mentioned above. She seems to believe me about

what I deal with. I never realized how helpful seeing a therapist could

be. But, I still deal with the pain and frustration of having these

conditions.

A way I would describe it is like I live within reach of a giant wasp

nest where I am always getting stung and their is nothing I can do about

it. Everyday I have to deal with the pain and frustration of being stung

multiple times, and sometimes having an allergic reaction. The only

thing I can do is wear a suit the wasps can't get into. Hence wearing

headphones listening to brown noise so I don't get " stung " by the

sounds

that cause pain in my ears.

Of course doing that makes it harder to be around others, converse with

others, engage in social activities, be able to work, etc.. But if I

don't I'll lose my sanity. I do hope more research will be done into

these conditions. It just seems like trying to make that happen is like

pulling teeth!

-Randall

[Guest guest]

I'm not a fan of murmuring either. It's one of my earliest and most long-standing triggers.

And this is weird--when I was a kid, around the same time I remember noticing little noises, I couldn't stand to look at feet either. Especially if I was watching TV or reading, and I could see someone's foot in my peripheral vision. What's up with that? I don't mind it as much now, but it's still a bit irritating to me.