Guest guest Posted May 5, 2007 Report Share Posted May 5, 2007 Sorry about your lymphoma. I hope it can be treated. Unless you consider it a private matter, please let us know what you will be taking for it (feel free to e-mail me if you want). Certain of theanti- cancer drugs could have various effects on your CFS or other immune disease that would be of immense scientific interest. I've flown from Virginia (basically sea level) to Denver (5,300 feet) on a plane, and had no problems. I felt great in Denver. However, while in Colorado I went up around 10,000 feet and went for a jog. This (apparantly) made me extremely sick within a few hours of retunring, until the next morning. At the time, in Virginia, I could run to exhaustion (~3 miles) and feel great, just a little sore the next day. Conclusion = ? I also had an insane knee cramp " thing " after having ridden in a car up to 10,000 feet. It hurt very sharply. It was OK after moving around a bit. Never had anything like it before. > > Hi, > Have been with you ever since you left Trevor and before. I did all the things, off all Vita D, bought dark glasses the whole bit and than I got non-hodgkins lymphoma. It is not bad yet but who knows but all my symptoms are the same thing that you all talk about. The head pressure, have been to see 5 or 6 Neuros and none of them will do a spinal tap for the constant head pressure. Am on constant antibiotics in order to survive the headaches. Have taken the test for Lyme and the Lyme Dr. said that it showed that I had been exposed to Lyme, what an answer. > Now I am taking high dose IVC hoping it will help but so for nothing. > Am planning a trip to Canada and flying tears my head up, the additional pressure and I do all the things that anyone had ever heard of. Know the plane is pressurized but it still isn't the same pressure as on the ground. Does flying bother anyone? > Just wanted to chime in. > H. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2007 Report Share Posted May 5, 2007 Have you been to an neuroophthalmologist to have him/her specifically look for papilledema? A papilledema diagnosis seems to be the surest way to get your opening pressure measured. As you may know, plane trips aggravate ICH in a lot of patients. Here is a recent thread on this topic at a related forum: http://tinyurl.com/3ykojp Note that there is an " Airplanes and Rollercoasters " link on the left-hand margin that you can use to find more info on this. Here is a PubMed report on the risks of flying with ICH: http://tinyurl.com/2mnoqr In this case, the ICH is produced by space-occupying lesions, but the important point here is the " reduced intracranial compliance " that they refer to. As the volume of one of the cranial compartments increases (as with CSF) the pressure doesn't actually increase that much. The cranium is said to have " compliance " . But as the volume increases still further, you approach a point, or region, of " decompensation " . This is where your cranium can no longer efficiently accomodate an increase in volume, and further increases in volume markedly increase intracranial pressure. Presumably, the degree to which someone is sensitive to plane trips depends on how close they are to the point of decompensation. The patients with space occupying lesions are presumably extreme cases. Matt --- In infections , HelenW8262@... wrote: > The head pressure, have been to see 5 or 6 Neuros and none of them will do a spinal tap for the constant head pressure. Am planning a trip to Canada and flying tears my head up, the additional pressure and I do all the things that anyone had ever heard of. Know the plane is pressurized but it still isn't the same pressure as on the ground. Does flying bother anyone? > Just wanted to chime in. > H. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2007 Report Share Posted May 5, 2007 How bout dizziness? I remember going on a simple little kiddy ride with my daughters a few years back and seriously thought I was going to pass out. It was one of those rides where you all sit in a circle and spin a wheel in the center to go faster. The second we started to turn that wheel, I had to put my head between my knees and had total vertigo. It was really terrible. My family stopped turning the wheel entirely, and I still thought I was flying a thousand miles a minute. That's the last ride I've ever been on. It caught me totally by surprise as I had a wrist band for the day. Never had anything like that happen before. This was one of the first indicators that there was something wrong inside my head, either inner ear, or sinus or something. I did have indications of altitude sickness from a younger age. I remember going to the alps about 20 years ago, and when I got to the top, my husband was running around psyched about how incredible it was, and all I could manage was to walk to the nearest bench and lay down where I literally slept the entire time we were up there. He woke me up, and we took the tram back down the mountain. Later, about 10 years ago, I drove from sea level to about 6,000 ft in 3 hours or so and got incredibly sick. Terrible headache, dehydration, lasted for 2 days. It was really awful. I'm extremely careful about altitude changes now as well as everything that can cause dizziness, which I'm very prone to now. pennyphagelod <mpalmer@...> wrote: Have you been to an neuroophthalmologist to have him/her specifically look for papilledema? A papilledema diagnosis seems to be the surest way to get your opening pressure measured.As you may know, plane trips aggravate ICH in a lot of patients. Here is a recent thread on this topic at a related forum:http://tinyurl.com/3ykojpNote that there is an "Airplanes and Rollercoasters" link on the left-hand margin that you can use to find more info on this.Here is a PubMed report on the risks of flying with ICH:http://tinyurl.com/2mnoqrIn this case, the ICH is produced by space-occupying lesions, but the important point here is the "reduced intracranial compliance" that they refer to. As the volume of one of the cranial compartments increases (as with CSF) the pressure doesn't actually increase that much. The cranium is said to have "compliance". But as the volume increases still further, you approach a point, or region, of "decompensation". This is where your cranium can no longer efficiently accomodate an increase in volume, and further increases in volume markedly increase intracranial pressure. Presumably, the degree to which someone is sensitive to plane trips depends on how close they are to the point of decompensation. The patients with space occupying lesions are presumably extreme cases.Matt>The head pressure, have been to see 5 or 6 Neuros and none of them will do a spinal tap for the constant head pressure. Am planning a trip to Canada and flying tears my head up, the additional pressure and I do all the things that anyone had ever heard of. Know the plane is pressurized but it still isn't the same pressure as on the ground. Does flying bother anyone?> Just wanted to chime in.> H.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2007 Report Share Posted May 5, 2007 It looks like ICH does cause dizziness/vertigo in some people: http://tinyurl.com/ypul5a http://tinyurl.com/ynuwmg Here's a thread on a related forum about dizziness: http://www.findmemyhouse.com/ptc/ptc_forum/viewtopic.php? t=1562 & highlight=dizzy I've wondered if Hillenbrand has ICH. Matt > > How bout dizziness? > > > penny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 Matt, I continue trying to figure out what the heck to do. My symptoms started about one year ago with vertigo, headache, slight stiff neck and vestibular nerve damage. I had no hearing loss. I have had trouble with remembering words and doing math. In the last month I am beginning to feel like my vision is being affected. I plan to call my opthomologist Monday. As I wrote earlier my CT scan and MRI were " normal for your age. " The spinal fluid was normal, but the initial pressure was 210 and then it did take forever to get enough fluid to run all the tests with not enough to do the MS test. I have been reading a lot to see if maybe I have low cerebral pressure. That seems to have similar symptoms. However an initial pressure of 210 doesn't fit that picture I don't think. a > > It looks like ICH does cause dizziness/vertigo in some people: > > http://tinyurl.com/ypul5a > > http://tinyurl.com/ynuwmg > > > Here's a thread on a related forum about dizziness: > > http://www.findmemyhouse.com/ptc/ptc_forum/viewtopic.php? > t=1562 & highlight=dizzy > > > I've wondered if Hillenbrand has ICH. > > Matt > > > > > > > > > How bout dizziness? > > > > > > > penny > > > Quote Link to comment Share on other sites More sharing options...
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