Re: Chronic Parvo B19 (viral)

May 1, 2007

Barb,

There is some risk with IVIG (or IMIG) because it's a human blood

product, but my wife (CFS/MCS) has used it with some benefit. I don't

recall the details anymore but we read a lot of product data sheets and

settled on Bayer's Baygam which doesn't seem to have the detergent

residues in it that is a side effect of processing. Bayer sold that

product line to someone else a year or so ago and we get it under a new

name now. If interested let me know and i'll rummage through the

fridge for it. Another thing: there are periodic shortages of the

stuff, usually connected with natural disasters or war. The pipeline

went dry for awhile after Katrina, and the start of the current Iraq

war, and back around the time of the first Gulf war.

Have tried both IM and IV. IV is time consuming and expensive and

often administered too fast for MCS patients to cope with. We didn't

see enough benefit to take the chemical hit (most IV administration

facilities are, due to being a public facility, heavily perfumed). So

she uses the IM, mainly to boost her immune system when she has been

exposed to someone with cold or flu. She usually has a 24 hr delayed

immune activation response (mild) and often feels better overall from

her ongoing symptoms; and, yes, it seems to help prevent contracting

things she's generally vulnerable to.

One's mileage will, of course, vary.

--Bob

Barb Peck wrote:

A friends wife had Parvovirus B19 2 years ago as an adult and she

hasn't been the same since.

Her Docs have documented 2 separate spikes of IgM antibodies (and

this year she has a 4.9 titer for IgG (IgM is in range. range is

negative=<1.0)

She's got very bad joint pain - can hardly get out of bed- takes an

hr or more to get going - is starting to feel like she has chronic

fatigue on top of it.

In any case- she is looking at IVIG (IV immunogobulins)..any body

know the side effects of that?

OR- and this is a stretch - any anti virals that would work on Parvo.?

I've read where researchers now think there's a defect in someone

humoral immune system if Parvo becomes chronic... hmmmmmmmm maybe

it's supressing that arm of the immune system?

Barb

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