Re: Should we pursue Lyme diagnosis further?

[Guest guest]

Sheri,

Because all the bands 23-25, 31, and 39 (except band 41) that your child has

an " indeterminate " test result are Borrelia-specific. I would suggest that

you further pursue with Lyme and coinfection diagnosis. Many LLMDs agree

that Lyme should be of clinic diagnosis based upon symptoms, and labs are

used as reference. Quite a few in this group choose to treat it first, and

then test for it. I, for one, adopted this approach, because it is

difficult for a weaken immune system commonly seen in ASD children to form

antibodies against stealthy antigens such as Lyme.

After 3.5 months into herbal treatment, my son still got an inconclusive

Western Blot. He however was tested positive to 3 major coinfectors. When

speaking with Dr. JB not long ago, he suggested that I do not consider my

son's IGeneX test result inconclusive, but rather a weak positive. He

explained that an indeterminate band means the lab technician has identified

some antibody activities, but s/he is not ready to call it positive yet.

Have you done a coinfection panel? Testing for coinfectors can help to

clarify the grand picture of multiple infections. CD-57 via LabCorp might

be also helpful, as Lyme is the only known pathogen that can lower the

levels of CD-57.

Limin

--------------------------------------------------

Sent: Saturday, November 22, 2008 22:28

To: <BorreliaMultipleInfectionsAndAutism >

Subject: Should we pursue Lyme

diagnosis further?

> My ASD son had a western blot test performed by IGeneX recently. Our

> DAN says that the test doesn't indicate that Lyme is an issue for

> him, but I thought I would run the results by you guys to get a

> little more feedback. I'm still really learning about these tests,

> and need a little input.

>

> The IgM result came back as " negative " with only " indeterminate " for

> the 23-25 band and the 41 band.

> The IgG result also came back " negative " , but had " indeterminate " for

> the 31 and 39 bands, and " +++ " on the 41 band.

> Hope that makes sense!

>

> What is your take on these results? We have not been treating him

> with prescription antibiotics at all since starting biomed in

> January. The only supplements he's taken that have any antibacterial

> properties would be OLE (for about 2 months in the spring) and OoO

> (for about 2 months prior to this test). I've heard/read that a test

> may very well show up as negative even if Lyme is present, and that

> it might only be after you start to treat it that it then could test

> positive (sorry, I really don't know a lot about this).

>

> Thanks for any input,

> Sheri

>

>

> ------------------------------------

>

>

[Guest guest]

Ditto everything Limin said. I would also like to add that I believe

that the kids born with congenital lyme may be very different than

those who contracted lyme by a tick bite. Since the goal of our

immune systems during the first two years of life is to determine what

is self and not self; it is very likely that the children born with

congenital lyme infections have had their immune systems identify the

lyme bacteria/co-infections as self. After all these bugs have been

with them since conception in some cases. Since they have identified

them as self they have not defeloped antibodies to these bugs and thus

can not test positive on the tests we have available today. I usually

recommend to mom's who suspect congenital lyme that they test

themselves first. If they come back positive then treat themselves

and the child and test the child again after treating for a few months.

Our experience was that my husband tested CDC positive, I tested

IGeneX positive, my ASD son had one IND band, and my NT daughter (who

was perhaps the most physically symptomatic in the family) had zero

bands. We treated the kids (with antibiotics and homeopathy) and when

we retested them again...my NT daughter tested IGeneX positive after 5

months of treatment and my ASD son tested CDC positive after 11 months

of treatment.

Health and Hope!

Cam's Voice

>

> Sheri,

>

> Because all the bands 23-25, 31, and 39 (except band 41) that your

child has

> an " indeterminate " test result are Borrelia-specific. I would

suggest that

> you further pursue with Lyme and coinfection diagnosis. Many LLMDs

agree

> that Lyme should be of clinic diagnosis based upon symptoms, and

labs are

> used as reference. Quite a few in this group choose to treat it

first, and

> then test for it. I, for one, adopted this approach, because it is

> difficult for a weaken immune system commonly seen in ASD children

to form

> antibodies against stealthy antigens such as Lyme.

>

> After 3.5 months into herbal treatment, my son still got an

inconclusive

> Western Blot. He however was tested positive to 3 major

coinfectors. When

> speaking with Dr. JB not long ago, he suggested that I do not

consider my

> son's IGeneX test result inconclusive, but rather a weak positive. He

> explained that an indeterminate band means the lab technician has

identified

> some antibody activities, but s/he is not ready to call it positive yet.

>

> Have you done a coinfection panel? Testing for coinfectors can help to

> clarify the grand picture of multiple infections. CD-57 via LabCorp

might

> be also helpful, as Lyme is the only known pathogen that can lower the

> levels of CD-57.

>

> Limin

>

> --------------------------------------------------

>

> Sent: Saturday, November 22, 2008 22:28

> To: <BorreliaMultipleInfectionsAndAutism >

> Subject: Should we pursue Lyme

> diagnosis further?

>

> > My ASD son had a western blot test performed by IGeneX recently. Our

> > DAN says that the test doesn't indicate that Lyme is an issue for

> > him, but I thought I would run the results by you guys to get a

> > little more feedback. I'm still really learning about these tests,

> > and need a little input.

> >

> > The IgM result came back as " negative " with only " indeterminate " for

> > the 23-25 band and the 41 band.

> > The IgG result also came back " negative " , but had " indeterminate " for

> > the 31 and 39 bands, and " +++ " on the 41 band.

> > Hope that makes sense!

> >

> > What is your take on these results? We have not been treating him

> > with prescription antibiotics at all since starting biomed in

> > January. The only supplements he's taken that have any antibacterial

> > properties would be OLE (for about 2 months in the spring) and OoO

> > (for about 2 months prior to this test). I've heard/read that a test

> > may very well show up as negative even if Lyme is present, and that

> > it might only be after you start to treat it that it then could test

> > positive (sorry, I really don't know a lot about this).

> >

> > Thanks for any input,

> > Sheri

> >

> >

> > ------------------------------------

> >

> >