Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 have nothing to add to your comments , we have not used bh4, but interesting that they mention both ribavarin and amantadine. I have been looking into both of those, as are said to be effective on bornavirus, which I believe plays a big role in many cases of autism (at least in ds). also interesting that no one seems to have heard or tried ribavarin, even not used on NIDS protocol, which uses many types of rx antivirals.... Please anyone post if you know more, or know of any naturals that may be effective. natasa x The first story is old - but another kid recently survived rabies without the vaccine too. The " Milwaukee " protocol is medically induced coma, anti virals and BH4. I thought I saw IVIG in one of the articles, but I'm skimming them in haste and can't find it again. http://www.sciam.com/article.cfm?id=jeanna-giese-rabies-survivor http://www.sciam.com/article.cfm?id=hope-for-rabies-victims-unorthodox-coma-therapy-shows-promise Quote ***************** " In addition to inducing the coma, doctors also gave her the antivirals ribavarin and amantadine. They tapered off the anesthetics after about a week, when tests showed that Giese's immune system was battling the virus. For about six months after awakening from the coma, physicians also gave her a compound called tetrahydrobiopterin that is chemically similar to the B-complex vitamin folic acid, which may have improved her speech and ability to eat, Willoughby says. He notes that physicians gave her the supplement after tests showed that she had a deficiency of the compound, which is known to boost production of serotonin and dopamine neurotransmitters needed to perform motor, speech and other routine bodily functions. " ******************** Is anyone giving Bh4 (tetrahydrobiopterin)? My son was on it for a year or so, then I weaned him off it (it's so expensive!) and now he's back on it again for MCS. Interesting that the SCIAM says it's for motor and speech. I wasn't giving it with that specific intention, but because he was low and couldn't tolerate any of the pre-cursors/supports. So I just had to supplement him with it directly. It's Schricks Labs brand - ordered by my son's doctor and has to be kept frozen. It's a pain, especially when you need to travel. But something to consider if you are looking for motor and speech gains though. During the time my son was on it, he generally improved in gross motor organization and planning. He never had fine motor, so that was not a factor. His speech also became more fluid and expressive during that time. I don't want to attribute improvements directly to it - but they did happen within the same 18 month time frame. With a zillion other things too. So it's just a possible connection. Quote Link to comment Share on other sites More sharing options...
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