Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 Intracranial hypertension may work like that. Venous sinus stenosis shows up in a lot of patients and some say that this is a kind of common final pathway for ICH. It may start for a number of reasons, but once the stenosis is established the pressure backs up on the arachnoid villi and may make the ICH self-perpetuating. It seems like it sort of *has* to be that way. I've read an account of a physician, for example, who woke up from general anaesthesia with what became chronic ICH. Various compounds like excessive vitamin A, antibiotics, etc can do this. Lyme, and probably other forms of infection/inflammation can do this. In my case, I think head trauma set it off, though I'm quite uncertain about that. In most cases the initiating insult can be long gone with the ICH chronic. I'm not big into mathematical/computer modeling of biological illnesses, but insofar as the ICH field is embracing this more-or-less plumbing/hydrodynamic view of at least a subset of ICH I think this paper (a day or two old) may be on to something: " Simulations predict that a temporary perturbation that causes a transient elevation of ICP can induce a permanent transition from the normal to the higher steady state. " http://tinyurl.com/33xw57 > > That is weird. As you know I usually emphasize the thought that some > factors involved in a disease's genesis may not be involved in its > perpetuation, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 Matt, did you say you tried Diamox? I am seeing the first neurologist (he was better - didn't call it a tension headache) tomorrow. I'm worried he will decide I have polymyalgia rheumatica and try to get me to take steroids. I'm really feeling incapable of defending myself at this point as the head pressure does get bad under stress which then makes the doc think I have tension headache. I am not winning here. a > > Intracranial hypertension may work like that. Venous sinus stenosis > shows up in a lot of patients and some say that this is a kind of > common final pathway for ICH. It may start for a number of reasons, > but once the stenosis is established the pressure backs up on the > arachnoid villi and may make the ICH self-perpetuating. It seems like > it sort of *has* to be that way. I've read an account of a physician, > for example, who woke up from general anaesthesia with what became > chronic ICH. Various compounds like excessive vitamin A, antibiotics, > etc can do this. Lyme, and probably other forms of > infection/inflammation can do this. In my case, I think head trauma > set it off, though I'm quite uncertain about that. In most cases the > initiating insult can be long gone with the ICH chronic. > > I'm not big into mathematical/computer modeling of biological > illnesses, but insofar as the ICH field is embracing this more-or- less > plumbing/hydrodynamic view of at least a subset of ICH I think this > paper (a day or two old) may be on to something: > > " Simulations predict that a temporary perturbation that causes a > transient elevation of ICP can induce a permanent transition from the > normal to the higher steady state. " > > http://tinyurl.com/33xw57 > > > > > > > > That is weird. As you know I usually emphasize the thought that some > > factors involved in a disease's genesis may not be involved in its > > perpetuation, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 > > Matt, did you say you tried Diamox? Two whole days. First day was 125 mg. Second day 250 mg. This is quite modest. I started cramping up, including my throat. The throat thing happened all of a sudden. I spoke to my boss and the voice that came out was a boy's. His eyes got a little big; my did too; we pretended it wasn't happening and I left early. It got a little scary since I didn't know how bad the cramp was going to get and if I was going to have problems breathing. (At least I assume it was a cramp in my throat. If it was an allergic reaction then another go of diamox is going to be interesting). I think this can be dealt with by playing around with sodium and potassium. I'm close to trying diamox again. Veterans keep saying that the worst of the diamox symptoms dissapate a bit after a couple of weeks, so I plan on easing into it. Turns out that Prilosec inhibits CSF production at the choroid plexus,: http://tinyurl.com/35q2qk http://tinyurl.com/2w3t2e ....so I'm looking into the possibility of a combo. I haven't looked yet at the mechanisms of the two drugs to see if they would merely be redundant (and not worth the trouble) or additive. Some people with ICH take prilosec to combat the acidity that builds up in the stomach due to diamox, but they didn't mention if they thought it was also, serindipitously, helping their ICH. > > I am seeing the first neurologist (he was better - didn't call it a > tension headache) tomorrow. I'm worried he will decide I have > polymyalgia rheumatica and try to get me to take steroids. Have you ever tried steroids? I took a bunch for an allergic reaction and at the end of the taper I was feeling fantastic. Steroids reduce CSF production at the choroid plexus, just like diamox and prilosec. I wouldn't do the steroids long term in light of the risks of diabetes, skeletal wasting, etc., but it was very informative just the same. As you know, Lyme loves steroids, so I won't belabor that point.... > > I'm really feeling incapable of defending myself at this point as the > head pressure does get bad under stress which then makes the doc > think I have tension headache. I am not winning here. This is why the loose talk about " stress " over at CFSFMexp is so unwise. Why would you put that gun into the hands of trigger-happy physicians? If the stress of an office visit causes your head pressure to flare, and you want to be evaluated for ICH, then just say that the pressure waxes and wanes throughout the day (which presumably is true to some extent for you; this is called pulse waves, or wave forms in the ICH field; I'm quite cognizant of mine-- my head starts aching more, I get more hyperacuisis and fatigued, etc.). He/she doesn't need to know that you believe stress is aggravating your headache. > > a > > > Quote Link to comment Share on other sites More sharing options...
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