this sucks!

[Guest guest]

Make wonder on this rarity, o City of Men: a crux for the

pathologists... stiff quiz for theodicians... a turn-on for the

medico-sadist a-hole:

http://www.nytimes.com/2007/06/12/health/12mal.html?_r=1 & adxnnl=1 & oref=slogin & ad\

xnnlx=1181677627-aJAOZgwspBYwnnpTPrAfcw

When 71-year-old Marilyn Josselyn finished a weeklong cruise on the

Volga River in Russia with her husband, , in 1998, she expected

to feel like a bobbing buoy for a little while after returning to

land. " I felt a rocking sensation, but I thought it was just the usual

kind of thing, " she said. But when the feeling persisted for weeks,

then months, she began to realize something in her brain was truly off

kilter.

[Guest guest]

Ally: Have you tried salt/c and Rife? I have many of your symptoms and have

had in stages for

approx 20 years. I have been on salt/c and rife for almost one year and some

symptoms are

completely gone. Others come and go but are definitely better. After much

reading when I realized

what I had, I chose this path. When I say symptoms come, I mean degrees less

than they were before

beginning treatment. I don't seem to have negative side effects from all the

salt. Just a thought.

------- Original Message -------

From : rissaweim[mailto:alessandra.folz@...]

Sent : 7/21/2009 4:46:58 PM

To :

Cc :

Subject : RE: [ ] This SUCKS!

Hi All,

I have been battling lyme for the past 4 years, after being misdiagnosed for 15

years. I know this

is common. But I finally feel at the end of my rope. I have the greatest

LLMDs, I have endured

just about every treatment they have come up with. I have had more picc lines

stuck in me than a

cadaver in medical school. I have had months and months of shots in my ass. I

have had enough. I

was just starting to really feel well. I started seeing an excellent homeopath

(after having run

out of types of abx to try), and I felt really really well. And then it

started. The headaches,

the fatigue, and slowly, but surely, the hallucinations, the joint pain, the

palsy, the loss of

motor skills, the loss of bladder control, pretty much just a multi-system

failure. Everyone is

conferencing trying to figure out what to do. I guess I just don't see the

point. I am 30 years

old, and all I can see stretched out before me is endless misery. I am so

tired. So deeply and

profoundly exhausted. And no, I don't want to kill myself, but I can see the

appeal in being dead --

at least I'd have one nights sleep without dreaming that people are chasing

after me trying to kill

me. I just feel like this disease has systematically taken away every single

thing that I dreamed

of doing with my life. And I feel like no one really understands. Because " but

you look so good "

is really all people can tell me. I guess I just wanted to know that there is

someone out there who

knows what this feels like.

UGH. THIS REALLY SUCKS.

Ally