Re: this sucks! a

[Guest guest]

a:

Your story with this Doc. and the lack of urgency they

feel to follow-up with subsequent appointments just makes me even

MORE discusted with the whole profession (if that's even possible).

It's almost like 'good' patients are just insured hot-potatoes.

Barb

>

> , your title fits today's experience precisely. Actually your

> article tends to fit my predicament for a year only I missed the

> cruise. Here is a quote from the article that probably fits my

> situation.

>

> Dr. Gordon said. " There are many patients that have the same

symptoms

> following head trauma or a viral infection without previous

exposure

> to sailing. "

>

> Rich, I would be happy to try the basic Yasko protocol, but my

current

> situation of one year duration doesn't seem to relate to cfs or

Lyme.

> So I don't know what to do. If I can get the emergency care I have

> tried to get for a year I will certainly try the supplements. I

just

> don't think the supplements have anything to do with my head right

now.

> (My best guess is that I have several low grade reactivations of

> infections, certainly EBV and probably MRSA and maybe babesia and

> borrelia. This combo has caused swelling in my head and reduced

spinal

> fluid flow causing intracranial hypertension that cannot be

measured

> in a spinal tap as the flow gets closed off when they tap the

spine.)

>

> The neurologist today threw three words at me which might as well

have

> been in Chinese. So I asked him what they meant. One meant my pupil

> was dilated in the right eye. The other meant the pupil in the left

> eye might be constricted. I was so spaced out from the headache I

> couldn't remember the word " vestibular " which is the nerve damage I

> have had diagnosed a year ago. He decides that I don't even know if

I

> have vestibular nerve damage because I can only document loss of

> balance. (He disrespects all other docs diagnoses.) Then when I

tell

> him I have documented nystagmus and my eyes also drift sideways he

> gives me the big fancy name for eyes drifting sideways with a grin

on

> his face like aren't I smarter than you? Never mind how this

symptom

> might help explain what is going on.

>

> I was so freaked that I didn't even connect that I can't possibly

have

> a constricted pupil in the left eye since vision in that eye is

> normal. I must have a dilated pupil in the right eye because THE

> VISION IN THAT EYE IS NOW DOUBLE. When I left I was told I must get

> another audiology exam and that I didn't have intracranial

> hypertension. Why? Because my MRI of which he doesn't have a copy

is

> NORMAL.

>

> My next apointment was to be in four MONTHS. I am a nice, quiet,

> polite person, so I almost started crying and said, " I am going

blind

> and he doesn't want me to come back for four months? "

>

> " Oh, it will take that long to get the MRI results. "

>

> " What are you talking about? You will have the MRI results the next

> day? "

>

> So now I have a " stroke " from freaking out.Hum, wonder if they

would

> take that seriously? One more tidbit, he can't see why my family

> practice doc gave me Diamox since I don't have intracranial

> hypertension based on the MRI he never saw.

>

> I have had a relative and a dear friend die in Las Vegas because of

> terrible medical care. I'm getting worried about myself. Hopefully

I

> can see the neuro-opthamologist in Reno asap.

>

> a with a headache

>

>

> >

> > Make wonder on this rarity, o City of Men: a crux for the

> > pathologists... stiff quiz for theodicians... a turn-on for the

> > medico-sadist a-hole:

> >

> > http://www.nytimes.com/2007/06/12/health/12mal.html?

> _r=1 & adxnnl=1 & oref=slogin & adxnnlx=1181677627-aJAOZgwspBYwnnpTPrAfcw

> >

> > When 71-year-old Marilyn Josselyn finished a weeklong cruise on

the

> > Volga River in Russia with her husband, , in 1998, she

expected

> > to feel like a bobbing buoy for a little while after returning to

> > land. " I felt a rocking sensation, but I thought it was just the

> usual

> > kind of thing, " she said. But when the feeling persisted for

weeks,

> > then months, she began to realize something in her brain was

truly

> off

> > kilter.

> >

>