Re: CFS Conference / teitelbaum, et. al.,

[Guest guest]

LOL. I agree -- I had the same intial reactions -- Fatigued to Fantastic -- and

" endfatigue " -- I too thought he was making outrageous claims.

I think he has however " grown up " perhaps in the last 4-5 years. He stressed

over and

over that this was indeed a real physical illness, a very complex one -- and

although I

wasn't in total agreement with his emphasis (I think) on hormone therapy...the

rest of what

he said made sense. He was attacking " it " from all angles. I hope he wouldn't

now

discourage those who are forced into going on disability to not do so...common

sense

would dictate that if they're disabled, they're disabled, so they have no other

choice..

Plus, he doesn't make a nickle from the products he endorses -- a good thing.

Anyway, the conference sounds like a great idea -- it'll be interesting to see

how all these

folks with diverging protocols listen to and learn from each other.

I wonder if Pall is invited?

d.

> > > >

> > > > I almost forgot - this is wonderful - a group of experts sharing. But

> > > > I wonder how much money over the years the NIH has spent on so-

> > > > called " state of the science " meetings where MDs and scientists were

> > > > flown to Washington to discuss cfs - the one I attended in 2000 was a

> > > > gathering of about 20 docs who, with possibly 3 exceptions KNEW

> > > > NOTHING ABOUT CFS AND HAD ONLY READ THE WORK SENT THEM A COUPLE OF

> > > > DAYS BEFORE THE CONFERENCE. To my knowledge not even Cheney has

> > > > ever been included in such an NIH session. So I hope this

> > > > knowledgable group will put some pieces together. I have to wonder if

> > > > they included any Lyme specialists. Bob, do you know????

> > > >

> > > > a Carnes

> > > >

> > > > I know a CFS

> > > > > clinician who understands this well enough that, with the help of a

> > > > > wealthy patient, is bringing together CFS researchers from all over

> > > > the

> > > > > world in a few weeks, to a retreat where they can get to know each

> > > > other

> > > > > and cross-pollinate. That's how progress is made with disease

> > > > states

> > > > > like this.

> > > > >

> > > > > --Bob

> > > >

> > > >

> > >

> >

> >

>