Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Hi A difference of a quarter of a mg affects Conor’s blood so you probably will have to go on to .5 or less increments. He has been on 1.25mg and 1.5mg alternate days and only alters his dose .25mg at a time! I got my 1st coaguchek donated by the British heart foundation and my recent one from another charity. They are £400 to buy, not sure what that is in dollars. If you do a search for coaguchek xs made my Roche you will find them to buy. We couldn’t have managed without one when Conor was little as it was very hard to get his levels stable. I still check his blood at least weekly and still have to make alterations occasionally. Diet and being unwell can affect his INR levels. Hope this is of some help to you and you are welcome to email me at jo.whitehead@... if you want to chat. Regards Jo From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Jim Lanigan Sent: 19 December 2008 18:34 To: DownSyndromeInfoExchange Subject: [DownSyndromeInfoExchange] Re: Lovenox Jo; Thanks for the info. The doctors went to Lovenox first becuase of the fluctuations with coumadin. Everything went pretty well (except that the bruised easily) until he had a bone scan and it detected thinning throughout his body so they decided to change to coumadin. We've been doing coumadin for about a month and we still can't get his levels to stabalize. If we give him 4mg, he is too low, if we give him 4.5mg, he's too high and it appears that we can only go in .5 increments. How did you get the monitor? We're looking into that now, but haven't had much luck. Jim & Theresa Quote Link to comment Share on other sites More sharing options...
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